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Found 105 result(s)
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Coscine is a web-based RDM platform for all kind of generic research data that was developed at RWTH Aachen University. It enables the storage, management and archiving for ten years of research and metadata generated in the context of research projects. The platform also promotes cooperation across organizational boundaries, as researchers can log in either via their organization via SSO or via ORCID. To enable meaningful metadata management for all research areas, Coscine allows flexible description with metadata based on established technologies (SHACL/RDF). The platform is designed to make warm/used/active data FAIR.
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From April 2020 to March 2023, the Covid-19 Immunity Task Force (CITF) supported 120 studies to generate knowledge about immunity to SARS-CoV-2. The subjects addressed by these studies include the extent of SARS-CoV-2 infection in Canada, the nature of immunity, vaccine effectiveness and safety, and the need for booster shots among different communities and priority populations in Canada. The CITF Databank was developed to further enhance the impact of CITF funded studies by allowing additional research using the data collected from CITF-supported studies. The CITF Databank centralizes and harmonizes individual-level data from CITF-funded studies that have met all ethical requirements to deposit data in the CITF Databank and have completed a data sharing agreement. The CITF Databank is an internationally unique resource for sharing epidemiological and laboratory data from studies about SARS-CoV-2 immunity in different populations. The types of research that are possible with data from the CITF Databank include observational epidemiological studies, mathematical modelling research, and comparative evaluation of surveillance and laboratory methods.
The Central Neuroimaging Data Archive (CNDA) allows for sharing of complex imaging data to investigators around the world, through a simple web portal. The CNDA is an imaging informatics platform that provides secure data management services for Washington University investigators, including source DICOM imaging data sharing to external investigators through a web portal, cnda.wustl.edu. The CNDA’s services include automated archiving of imaging studies from all of the University’s research scanners, automated quality control and image processing routines, and secure web-based access to acquired and post-processed data for data sharing, in compliance with NIH data sharing guidelines. The CNDA is currently accepting datasets only from Washington University affiliated investigators. Through this platform, the data is available for broad sharing with researchers both internal and external to Washington University.. The CNDA overlaps with data in oasis-brains.org https://www.re3data.org/repository/r3d100012182, but CNDA is a larger data set.
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The team have established the CardiacAI Data Repository that brings large amounts of Australian healthcare data together in a secure environment with strict conditions for use of these data with an appropriate level of oversight of research activities. The CardiacAI Data Repository collects de-identified EMR data about cardiovascular patients who are admitted to a group of urban and regional hospitals in NSW and links this with state-wide hospital and emergency deparment visit and mortality data and mobile-health remote monitoring data.
The Virtual Research Environment (VRE) is an open-source data management platform that enables medical researchers to store, process and share data in compliance with the European Union (EU) General Data Protection Regulation (GDPR). The VRE addresses the present lack of digital research data infrastructures fulfilling the need for (a) data protection for sensitive data, (b) capability to process complex data such as radiologic imaging, (c) flexibility for creating own processing workflows, (d) access to high performance computing. The platform promotes FAIR data principles and reduces barriers to biomedical research and innovation. The VRE offers a web portal with graphical and command-line interfaces, segregated data zones and organizational measures for lawful data onboarding, isolated computing environments where large teams can collaboratively process sensitive data privately, analytics workbench tools for processing, analyzing, and visualizing large datasets, automated ingestion of hospital data sources, project-specific data warehouses for structured storage and retrieval, graph databases to capture and query ontology-based metadata, provenance tracking, version control, and support for automated data extraction and indexing. The VRE is based on a modular and extendable state-of-the art cloud computing framework, a RESTful API, open developer meetings, hackathons, and comprehensive documentation for users, developers, and administrators. The VRE with its concerted technical and organizational measures can be adopted by other research communities and thus facilitates the development of a co-evolving interoperable platform ecosystem with an active research community.
HI HOPES aims is to provide free home based support and information without bias to every family with an infant or toddler with hearing loss. Through an early intervention framework of care, support, information and partnership in a culturally sensitive, community based manner to allow we aim to empower the family in their home environment and help the baby with a hearing loss to reach her/his full potential.
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Kadi4Mat instance for use at the Karlsruhe Institute of Technology (KIT) and for cooperations, including the Cluster of Competence for Solid-state Batteries (FestBatt), the Battery Competence Cluster Analytics/Quality Assurance (AQua), and more. Kadi4Mat is the Karlsruhe Data Infrastructure for Materials Science, an open source software for managing research data. It is being developed as part of several research projects at the Institute for Applied Materials - Microstructure Modelling and Simulation (IAM-MMS) of the Karlsruhe Institute of Technology (KIT). The goal of this project is to combine the ability to manage and exchange data, the repository , with the possibility to analyze, visualize and transform said data, the electronic lab notebook (ELN). Kadi4Mat supports a close cooperation between experimenters, theorists and simulators, especially in materials science, to enable the acquisition of new knowledge and the development of novel materials. This is made possible by employing a modular and generic architecture, which allows to cover the specific needs of different scientists, each utilizing unique workflows. At the same time, this opens up the possibility of covering other research disciplines as well.
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AusGeochem is an easy-to-use platform for uploading, visualising, analysing and discovering georeferenced sample information and data produced by various geoscience research institutions such as universities, geological survey agencies and museums. With respect to analytical research laboratories, AusGeochem provides a centralised repository allowing laboratories to upload, archive, disseminate and publish their datasets. The intuitive user interface (UI) allows users to access national publicly funded data quickly through the ability to view an area of interest, synthesise a variety of geochemical data in real-time, and extract the required data, gaining novel scientific insights through multi-method data collation. Lithodat Pty Ltd has integrated built-in data synthesis functions into the platform, such as cumulative age histograms, age vs elevation plots, and step-heating diagrams, allowing for rapid inter-study comparisons. Data can be extracted in multiple formats for re-use in a variety of software systems, allowing for the integration of regional datasets into machine learning and AI systems.
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The CHILDdb platform provides access to data produced by the CHILD project, a longitudinal birth cohort study of children from pregnancy to 8 years of age, across four Canadian provinces. This study analyzes the participants' home environment including physical, chemical, viral, bacterial, nutritional and psychosocial exposures. This data is expected to further knowledge of the genetic and environmental determinants of atopic diseases including asthma, allergy, allergic rhinitis, and eczema. Researchers can create an account to view meta and aggregate data; access demographic data summaries based on selected variables; and submit a scientific Concept Proposal for approval to access individual-level study data.
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Population Data BC (PopData) is a multi-university, data and education resource facilitating interdisciplinary research on the determinants of human health, well-being and development. Providing a range of services to researchers and data providers, PopData strives to ensure that researchers have timely access to the data and training they need to address research questions on population health. Research using these data informs policy-making and leads to healthier communities.
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NB-IRDT is expanding research potential through pseudonymised, linkable data sets. Our repository includes a growing collection to meet diverse research needs. We only host pseudonymous data in the NB-IRDT repository. NB-IRDT also offers public use data sets, which consist of de-identified data that is publicly accessible. All our data can be accessed in the NB-IRDT lab spaces.
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The Wildlife Management Information System (WMIS) is the Government of Northwest Territories (GNWT) online, geo-referenced wildlife database. WMIS provides a central repository for government staff, industry, researchers and public to store and access standardized wildlife observation data to support the conservation and management of wild species and their habitat in the Northwest Territories (NWT).
The Pennington/Louisiana NORC Biorepository is a collection of de-identified data from studies of human subjects conducted at Pennington Biomedical Research Center since 1980. The repository includes data from trials centered around obesity and nutrition and those funded by the National Institutes of Health, Department of Defense, United States Department of Agriculture, American Heart Association, American Diabetes Association and other government and non-profit organizations.
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The Canadian Laboratory Initiative on Pediatric Reference Intervals (CALIPER) is a nation-wide health initiative to improve the diagnosis and monitoring of children and adolescents with medical concerns. Our main objective is to establish a comprehensive database of reference intervals for blood test results in children and adolescents. CALIPER is designed to fill the gaps that currently exist in accurately interpreting blood test results with the ultimate goal of improving the care of children at SickKids and other children’s hospitals around the world.
A consolidated feed from 35 million instruments provides sophisticated normalized data, streamlining analysis and decisions from front office to operations. And with flexible delivery options including cloud and API, timely accurate data enables the enterprise to capture opportunities, evaluate risk and ensure compliance in fast-moving markets.
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The University of Tasmania Research Data Portal (RDP) enables UTAS researchers to securely store and publish their datasets. Datasets published in RDP are publicly available through the Research Data Australia Search Portal (https://researchdata.edu.au/).
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LiceBase is a database for sea lice genomics. LiceBase provides the genome annotation of the Atlantic salmon louse Lepeophtheirus salmonis, a genome browser, Blast functionality and access to related high-thoughput genomics data.
The N3C Data Enclave is a secure portal containing a very large and extensive set of harmonized COVID-19 clinical electronic health record (EHR) data. The data can be accessed through a secure cloud Enclave hosted by NCATS and cannot be downloaded due to regulatory control. Broad access is available to investigators at institutions that sign a Data Use Agreements and via Data Use Requests by investigators. The N3C is a unique open, reproducible, transparent, collaborative team science initiative to leverage sensitive clinical data to expedite COVID-19 discoveries and improve health outcomes.
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CosmoHub is a web application based on Hadoop to perform interactive exploration and distribution of massive cosmological datasets
Explore, search, and download data and metadata from your experiments and from public Open Data. The ESRF data repository is intended to store and archive data from photon science experiments done at the ESRF and to store digital material like documents and scientific results which need a DOI and long term preservation. Data are made public after an embargo period of maximum 3 years.
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The Marine Data Archive (MDA) is an online repository specifically developed to independently archive data files in a fully documented manner. The MDA can serve individuals, consortia, working groups and institutes to manage data files and file versions for a specific context (project, report, analysis, monitoring campaign), as a personal or institutional archive or back-up system and as an open repository for data publication.
CERIC Data Portal allows users to consult and manage data related to experiments carried out at CERIC (Central European Research Infrastructure Consortium) partner facilities. Data made available includes scientific datasets collected during experiments, experiment proposals, samples used and publications if any. Users can search for data based on related metadata (both their own data and other peoples' public data).