Repository details

Surveillance Epidemiology of Coronavirus (COVID19) Under Research Exclusion

Name of repository
Surveillance Epidemiology of Coronavirus (COVID19) Under Research Exclusion
Additional name(s)
  • SECURE-IBD
Repository URL
https://covidibd.org/
Subject(s)
Description
Surveillance Epidemiology of Coronavirus (COVID19) Under Research Exclusion is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients.
Contact(s)
  • COVID.IBD@unc.edu
Keyword(s)
Persistent identifier(s) of the repository
Repository size
7.038 cases
Repository type(s)
  • disciplinary
Mission statement for designated community
https://covidibd.org/reporter-acknowledgment/
Research data repository language(s)
  • English
Data and/or service provider
  • dataProvider

Institutions (1)

Institution
Crohn's & Colitis Foundation
Institution
Country
United States
Type(s) of responsibility
  • general
Type of institution
non-profit

Policies (3)

Policy Name
FAQ
Policy Name
Guidance Regarding Methods for De-identification of Protected Health Information in Accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule
Policy Name
SECURE-IBD Data Sharing Application

Database access

Type of access to research data repository
restricted
Database access restriction type
  • other

Data access (1)

Type of access to data
restricted
Data access restriction type(s)
  • other

Data licenses (1)

DataLicense
other

Data upload (1)

Type of data upload
restricted
Data upload restriction type(s)
  • other
Name of the repository software
  • other
Data citation guideline
https://covidibd.org/current-data/
Enhanced Publication
unknown
Quality management
unknown

Remarks

Remarks
Partners: https://covidibd.org/our-partners/
Entry date
2020-04-24
Last update
2024-05-21
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Cite this re3data.org record:

re3data.org: Surveillance Epidemiology of Coronavirus (COVID19) Under Research Exclusion; editing status 2024-05-21; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R31NJMRL last accessed: 2025-04-25