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Found 71 result(s)

NCBI Virus

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NCBI Virus is a community portal for viral sequence data from RefSeq, GenBank and other NCBI repositories. To find, retrieve and analyze data, choose one of the offered options.

Covid-19 Immunity Task Force Databank

CITF

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From April 2020 to March 2023, the Covid-19 Immunity Task Force (CITF) supported 120 studies to generate knowledge about immunity to SARS-CoV-2. The subjects addressed by these studies include the extent of SARS-CoV-2 infection in Canada, the nature of immunity, vaccine effectiveness and safety, and the need for booster shots among different communities and priority populations in Canada. The CITF Databank was developed to further enhance the impact of CITF funded studies by allowing additional research using the data collected from CITF-supported studies. The CITF Databank centralizes and harmonizes individual-level data from CITF-funded studies that have met all ethical requirements to deposit data in the CITF Databank and have completed a data sharing agreement. The CITF Databank is an internationally unique resource for sharing epidemiological and laboratory data from studies about SARS-CoV-2 immunity in different populations. The types of research that are possible with data from the CITF Databank include observational epidemiological studies, mathematical modelling research, and comparative evaluation of surveillance and laboratory methods.

InTOR - Electronic Repository of Research and Scientific Papers

InTOR - Repository of the Institute “Torlak”

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InTOR is the institutional digital repository of the Institute of Virology, Vaccines and Sera “Torlak”. It provides open access to publications and other research outputs resulting from the projects implemented by the Institute of Virology, Vaccines and Sera “Torlak”. The software platform of the repository is adapted to the modern standards applied in the dissemination of scientific publications and is compatible with international infrastructure in this field.

Nightingale Open Science

NGSCI

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Nightingale Open Science creates rich clinical datasets, linking imaging and waveforms to key health outcomes, and make them available to researchers, teachers, and learners around the world.

Scotland's Rural College Research Data Repository

SRUC research data

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SRUC is currently on a transformational journey as we move towards becoming a unique, market-led and mission diverse 21st Century rural university, driving the future needs of a dynamic, innovative and competitive rural sector in Scotland, and working with our collaborators and partners worldwide to solve the biggest global agrifood challenges. Our researchers already carry out strategic and applied research on global and local food security issues, and actively support the translation of research results into practice. Our research ethos is strongly collaborative, and we have a long history of industrial, NGO and academic partnerships locally and internationally. As well as having longstanding disciplinary strengths in several key areas, we actively promote interdisciplinary research, especially linking natural and social sciences. We have a particular interest in research that helps inform policy, with Scottish and UK Government rural affairs and environment departments and the EU as key research clients.

UMCG Research Data Catalogue

University Medical Centre Groningen Data Catalogue

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The UMCG Research Data Catalogue is a manually filled catalogue for large data collections (i.e. Databanks and Biobanks) of the University medical center Groningen. Currently you can find more than 60 resources in this catalogue, however this catalogue is still in development. In the future we hope to share all re-usable research data of the UMCG in this catalogue.

COViMS

COVID-19 Infections in MS & Related Diseases

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COViMS (COVID-19 Infections in MS & Related Diseases) is a joint effort of the National MS Society, Consortium of MS Centers and Multiple Sclerosis Society of Canada to capture information on outcomes of people with MS and other CNS demyelinating diseases (Neuromyelitis Optica, or MOG antibody disease) who have developed COVID-19.

Biobanque québécoise de la COVID-19

BQC19

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The Biobanque québécoise de la COVID-19 (BQC19) is a pan-provincial initiative that collects, stores and shares data and blood samples from COVID-19 patients, both severe and non-severe cases and control cases, in an effort to respond effectively to the public health challenges posed by the pandemic. BQC19 believes that better understanding the disease will help society in returning to social activities and in preparing for future pandemics. It sees access to high-quality samples and data as essential in fulfilling research and works to bring about national and international research collaborations.

CANJEM

Canadian Job-Exposure Matrix

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CANJEM (CANadian Job-Exposure Matrix) is a large source of retrospective information on job-based exposure for a given occupation and time period. Covering most occupations and many agents, it provides information on the probability, frequency and intensity of exposure from a list of 258 occupational risk factors. CANJEM was built from past individual expert evaluations of occupational exposures in a series of four case control studies of various cancers conducted since the mid-1980s up to 2010 in the greater Montreal area. During these studies over 30 000 jobs from 1930 to 2005 held by close to 10 000 subjects were evaluated by experts who assigned exposures based on descriptions of tasks, processes, work environment, and exposure control measures."

TB Portals

Tuberculosis data science

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NIAID’s TB Portals Program is a multi-national collaboration for TB data sharing and analysis to advance TB research. As a global consortium of clinicians, scientists, and IT professionals from 40 sites in 16 countries throughout eastern Europe, Asia, and sub-Saharan Africa, the TB Portals Program is a web-based, open-access repository of multi-domain TB data and tools for its analysis. Researchers can find linked socioeconomic/geographic, clinical, laboratory, radiological, and genomic data from over 7,500 international published TB patient cases with an emphasis on drug-resistant tuberculosis.

Netherlands Cancer Registry

NCR

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The Netherlands Cancer Registry is the national registration since 1989, providing statistics on cancer in the Netherlands. The registry is maintained by the Netherlands Comprehensive Cancer Organisation (IKNL). Data on incidence, prevalence, survival, mortality can be viewed in NCR data & figures on the IKNL website.

German Central Health Study Hub

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The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.

European Mouse Mutant Archive

EMMA

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The European Mouse Mutant Archive – EMMA is a non-profit repository for the collection, archiving (via cryopreservation) and distribution of relevant mutant mouse strains essential for basic biomedical research. The laboratory mouse is the most important mammalian model for studying genetic and multi-factorial diseases in man. The comprehensive physical and data resources of EMMA support basic biomedical and preclinical research, and the available research tools and mouse models of human disease offer the opportunity to develop a better understanding of molecular disease mechanisms and may provide the foundation for the development of diagnostic, prognostic and therapeutic strategies.

PUBLISSO-Fachrepositorium Lebenswissenschaften

PUBLISSO-Repository for Life Sciences

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ZB MED's Repository for Life Sciences offers authors the chance to publish their scientific texts and research data from the fields of medicine, health, nutritional, environmental and agricultural sciences. In accordance with the principles of Open Access, these publications can be accessed over the Internet without restrictions. There is no charge to publish, archive or use the documents.

National COVID Cohort Collaborative

National COVID Cohort Collaborative Data Enclave

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The N3C Data Enclave is a secure portal containing a very large and extensive set of harmonized COVID-19 clinical electronic health record (EHR) data. The data can be accessed through a secure cloud Enclave hosted by NCATS and cannot be downloaded due to regulatory control. Broad access is available to investigators at institutions that sign a Data Use Agreements and via Data Use Requests by investigators. The N3C is a unique open, reproducible, transparent, collaborative team science initiative to leverage sensitive clinical data to expedite COVID-19 discoveries and improve health outcomes.

FAPESP COVID-19 Data Sharing/BR

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Contains data on patients who have been tested for COVID-19 (whether positive or negative) in participating health institutions in Brazil. This initiative makes available three kinds of pseudonymized data: demographics (gender, year of birth, and region of residency), clinical and laboratory exams. Additional hospitalization information - such as data on transfers and outcomes - is provided when available. Clinical, lab, and hospitalization information is not limited to COVID-19 data, but covers all health events for these individuals, starting November 1st 2019, to allow for comorbidity studies. Data are deposited periodically, so that health information for a given individual is continuously updated to time of new version upload.

Infectious Diseases Data Observatory

IDDO

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The Infectious Diseases Data Observatory (IDDO) assembles clinical, laboratory and epidemiological data on a collaborative platform to be shared with the research and humanitarian communities. The data are analysed to generate reliable evidence and innovative resources that enable research-driven responses to the major challenges of emerging and neglected infections. Access is available to individual patient data held for malaria and Ebola virus disease. Resources for visceral leishmaniasis, schistosomiasis and soil transmitted helminths, Chagas disease and COVID-19 are under development. IDDO contains the following repositories : COVID-19 Data Platform, Chagas Data Platform, Schistosomiasis & Soil Transmitted Helminths Data Platform, Visceral Leishmaniasis Data Platform, Ebola Data Platform, WorldWide Antimalarial Resistance Network (WWARN)

GePaRD

German Pharmacoepidemiological Research Database

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Since 2004, the Leibniz Institute for Prevention Research and Epidemiology – BIPS has been working on the establishment and maintenance of the project-based German Pharmacoepidemiological Research Database (short GePaRD). GePaRD is based on claims data from statutory health insurance (SHI) providers and currently includes information on about 20 million persons who have been insured with one of the participating providers since 2004. Per data year, there is information on approximately 17% of the general population from all geographical regions of Germany.

Novartis Clinical Trial Results Database

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Novartis provides the technical results and trial summaries for patients from Phase 1 through 4 interventional trials for innovative products within one year of trial completion. A trial summary for patients is a trial result written in easier to understand language than the technical results.

Dutch Trial Register

formerly: Netherlands Trial Register

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The Dutch Trial Register (LTR) is a register in which a part of the clinical studies in The Netherlands are registered. This currently includes all data from the former National Trial Register (NTR).

ISRCTN Registry

International Standard Randomised Controlled Trial Number Registry

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The ISRCTN registry is a primary clinical trial registry recognised by WHO and ICMJE that accepts all clinical research studies (whether proposed, ongoing or completed), providing content validation and curation and the unique identification number necessary for publication. All study records in the database are freely accessible and searchable. ISRCTN supports transparency in clinical research, helps reduce selective reporting of results and ensures an unbiased and complete evidence base. ISRCTN accepts all studies involving human subjects or populations with outcome measures assessing effects on human health and well-being, including studies in healthcare, social care, education, workplace safety and economic development.

European Centre for Disease Prevention and Control

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ECDC is an EU agency aimed at strengthening Europe's defences against infectious diseases. The core functions cover a wide spectrum of activities: surveillance, epidemic intelligence, response, scientific advice, microbiology, preparedness, public health training, international relations, health communication, and the scientific journal Eurosurveillance. Within the field of its mission, the Centre shall: search for, collect, collate, evaluate and disseminate relevant scientific and technical data; provide scientific opinions and scientific and technical assistance including training; provide timely information to the Commission, the Member States, Community agencies and international organisations active within the field of public health; coordinate the European networking of bodies operating in the fields within the Centre's mission, including networks that emerge from public health activities supported by the Commission and operating the dedicated surveillance networks; exchange information, expertise and best practices, and facilitate the development and implementation of joint actions.

EU Clinical Trial Register

EUCTR

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The European Union Clinical Trials Register allows you to search for protocol and results information on interventional clinical trials that are conducted in the European Union (EU) and the European Economic Area (EEA) and clinical trials conducted outside the EU / EEA that are linked to European paediatric-medicine development. The EU Clinical Trials Register is part of EudraPharm, which is the community database of authorised medicinal products. The website provides public access to information extracted from the European Union Drug Regulating Authorities Clinical Trials Database, EudraCT.

COVID-19 Research Collaborations

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Research Collaborators & Institutions related to Coronavirus Epidemic Aim: Identify potential research experts or collaborators in areas related to the coronavirus epidemic across basic science, translational research, or clinical practice. Scope: A selection of Researchers active or cited in the area of Coronavirus, Middle East Respiratory Syndrome (MERS), SARS, etc.

Chinese Clinical Trial Register

ChiCTR

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The mission of ChiCTR is to “unite clinicians, clinical epidemiologists, biostatisticians, epidemiologists and healthcare managers both at home and abroad, to manage clinical trials in a strict and scientific manner, and to promote their quality in China, so as to provide reliable evidence from clinical trials for health care workers, consumers and medical policy decision makers, and also to use medical resources more effectively to provide better service for Chinese people and all human beings.