Repository details
German Central Health Study Hub
Name of repository
German Central Health Study Hub
Repository URL
Subject(s)
Description
The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse.
The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated.
The service started during the COVID-19 pandemic.
Contact(s)
- contact@nfdi4health.de
- fb.studyhub@nfdi4health.de
Keyword(s)
Repository size
27.157 studies
Repository type(s)
- disciplinary
Mission statement for designated community
Research data repository language(s)
- English
Data and/or service provider
- dataProvider
- serviceProvider
Institutions (11)
Additional name(s)
- BIH
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- DFG
- German Research Foundation
Country
Type(s) of responsibility
- funding
Type of institution
non-profit
Additional name(s)
- Fraunhofer-Institut für Digitale Medizin MEVIS
- MEVIS
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- HITS
- Heidelberger Institut für Theoretische Studien
- HITS gGmbH
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- KKS Network
- KKSN
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- BIPS
- Leibniz-Institut für Präventionsforschung und Epidemiologie
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- Robert Koch Institut
- RKI
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution
Additional name(s)
- IMISE
- Universität leipzig, Medizinische Fakultät, Institut für Medizinische Informatik, Statistik und Epidemiologie
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- Universitätsmedizin Greifswald
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- UMG
- University Medical Center Göttingen
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- ZB MED - Informationszentrum Lebenswissenschaften
Country
Type(s) of responsibility
- technical
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
Policies (1)
Policy Name
Database access
Type of access to research data repository
open
Data access (2)
Type of access to data
open
Type of access to data
restricted
Data access restriction type(s)
- other
Data licenses (1)
DataLicense
Data upload (1)
Type of data upload
restricted
Data upload restriction type(s)
- other
Persistent identifier system(s)
- DOI
Versioning
no
Enhanced Publication
yes
Quality management
yes
Metadata standards (3)
Remarks
Entry date
2021-06-30
Last update
2024-10-02
Cite this re3data.org record:
re3data.org: German Central Health Study Hub; editing status 2024-10-02; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R31NJMZG last accessed: 2025-04-25- Current projects
- EOSC FAIR-IMPACT
-
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re3data.org
has waived all copyright and related or neighboring rights to
the database entries of re3data.org.
-
Except where otherwise noted, content on this site is licensed under a
Creative Commons Attribution 4.0 International License
.
- Cite this service: re3data.org - Registry of Research Data Repositories. https://doi.org/10.17616/R3D last accessed: 2025-04-25
