Repository details
Health Study Hub
Name of repository
Health Study Hub
Repository URL
Subject(s)
Description
The Health Study Hub is an inventory of German studies in the field of clinical, public health and epidemiological health research. The aim of the Health Study Hub is to enable and foster the implementation of the FAIR principles (Findability, Accessibility, Interoperability and Reusability) in the health domain. Unlike other initiatives, the Health Study Hub focuses not only on clinical research, but also on public health studies. The Health Study Hub also provides access to study materials such as (sample) questionnaires, data dictionaries and other information down to variable level. At the heart of the hub is a metadata model, which is part of the publication policy available here.
The content of the Health Study Hub consists of quality-assured submission by users, either via a registration form or an application programming interface. Submission and storage is free to anyone after initial account registration. In addition, data stewards actively collect available information from (public) sources. Furthermore, this platform aggregates and harmonises information already entered in different public repositories in order to provide a holistic view of the German research landscape in the aforementioned research areas. The date and time of the last data modification is displayed at the bottom of the screen.
As the platform is being developed for the community, it must meet the needs and requirements of the community. To ensure this, we are working closely with domain experts within the NFDI4Health project who represent communities of interest. However, we also invite everyone else to suggest features, ideas, requirements and report bugs to the development team. You can do this by sending us an email or by using the blue feedback box on the right side of the screen. We are constantly expanding and improving the Health Study Hub, information on past and future releases can be found here. The bottom of the screen also displays information about the current software and metadata version.
More information about the service and the project is available on our project website.
Contact(s)
- administrative: contact@nfdi4health.de
- administrative: helpdesk@nfdi4health.de
- support: helpdesk@nfdi4health.de
Keyword(s)
Repository size
43,868 resources
Repository type(s)
- disciplinary
Mission statement for designated community
Research data repository language(s)
- English
Data and/or service provider
- dataProvider
- serviceProvider
Institutions (11)
Additional name(s)
- BIH
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- DFG
- German Research Foundation
Country
Type(s) of responsibility
- funding
Type of institution
non-profit
Additional name(s)
- Fraunhofer-Institut für Digitale Medizin MEVIS
- MEVIS
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- HITS
- Heidelberger Institut für Theoretische Studien
- HITS gGmbH
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- KKS Network
- KKSN
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- BIPS
- Leibniz-Institut für Präventionsforschung und Epidemiologie
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- Robert Koch Institut
- RKI
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution
Additional name(s)
- IMISE
- Universität leipzig, Medizinische Fakultät, Institut für Medizinische Informatik, Statistik und Epidemiologie
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- Universitätsmedizin Greifswald
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- UMG
- University Medical Center Göttingen
Country
Type(s) of responsibility
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Additional name(s)
- ZB MED - Informationszentrum Lebenswissenschaften
Country
Type(s) of responsibility
- technical
- general
Type of institution
non-profit
Start date of responsibility
2020-07-01
Policies (1)
Policy Name
Database access
Type of access to research data repository
open
Data access (2)
Type of access to data
open
Type of access to data
restricted
Data access restriction type(s)
- feeRequired
Data licenses (1)
DataLicense
Data upload (1)
Type of data upload
restricted
Data upload restriction type(s)
- feeRequired
Persistent identifier system(s)
- DOI
Name of the repository software
- Dataverse
- other
Versioning
yes
Author identifier system(s)
- ORCID
Enhanced Publication
yes
Quality management
yes
Application programming interfaces (1)
Metadata standards (3)
Remarks
Remarks
Further information on API: https://health-study-hub.de/doc/api
Entry date
2021-06-30
Last update
2025-06-26
Cite this re3data.org record:
re3data.org: Health Study Hub; editing status 2025-06-26; re3data.org - Registry of Research Data Repositories. https://doi.org/10.17616/R31NJMZG last accessed: 2025-07-02- Current projects
- EOSC FAIR-IMPACT
-
To the extent possible under law,
re3data.org
has waived all copyright and related or neighboring rights to
the database entries of re3data.org.
-
Except where otherwise noted, content on this site is licensed under a
Creative Commons Attribution 4.0 International License
.
- Cite this service: re3data.org - Registry of Research Data Repositories. https://doi.org/10.17616/R3D last accessed: 2025-07-02
