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Found 9 result(s)

Nightingale Open Science

NGSCI

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Nightingale Open Science creates rich clinical datasets, linking imaging and waveforms to key health outcomes, and make them available to researchers, teachers, and learners around the world.

BORN Ontario

Better Outcomes Registry & Network

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The Better Outcomes Registry & Network (BORN) is Ontario's prescribed perinatal, newborn and child registry with the role of facilitating quality care for families across the province. BORN collects, interprets, shares and rigorously protects high-quality data essential to making Ontario the safest place in the world to have a baby.

National COVID Cohort Collaborative

National COVID Cohort Collaborative Data Enclave

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The N3C Data Enclave is a secure portal containing a very large and extensive set of harmonized COVID-19 clinical electronic health record (EHR) data. The data can be accessed through a secure cloud Enclave hosted by NCATS and cannot be downloaded due to regulatory control. Broad access is available to investigators at institutions that sign a Data Use Agreements and via Data Use Requests by investigators. The N3C is a unique open, reproducible, transparent, collaborative team science initiative to leverage sensitive clinical data to expedite COVID-19 discoveries and improve health outcomes.

Surveillance Epidemiology of Coronavirus (COVID19) Under Research Exclusion

SECURE-IBD

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Surveillance Epidemiology of Coronavirus (COVID19) Under Research Exclusion is an international, pediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients.

Cancer in Young People in Canada

CYP-C

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The Cancer in Young People in Canada (CYP-C) surveillance program collects in-depth data concerning risk factors, health outcomes, quality and accessibility of care, and late effects among children and youth with cancer. CYP-C represents a collaboration involving the C17 Council, Canadian Partnerships Against Cancer (CPAC), Public Health Agency of Canada (PHAC), provincial and territorial cancer registries, Statistics Canada and non-governmental organizations.

YODA Project

Yale University Open Data Access

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The YODA Project is an effort by a group of academically-based clinical researchers to facilitate access to participant-level clinical research data and/or comprehensive reports of clinical research, such as full Clinical Study Reports (CSRs), a level of detail not customarily found in journal publications, with the aim of promoting scientific research that may advance science or lead to improvements in individual and public health and healthcare delivery. The YODA Project is guided by the following core principles, which reflect the overall mission of the project to promote open science by: Promoting the sharing of clinical research data to advance science and improve public health and healthcare, Promoting the responsible conduct of research, Ensuring good stewardship of clinical research data, and Protecting the rights of research participants

Breast Cancer Surveillance Consortium

BCSC

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The Breast Cancer Surveillance Consortium (BCSC) is a research resource for studies designed to assess the delivery and quality of breast cancer screening and related patient outcomes in the United States. The BCSC is a collaborative network of seven mammography registries with linkages to tumor and/or pathology registries. The network is supported by a central Statistical Coordinating Center.

NCAA Student-Athlete Experiences Data Archive

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<<<!!!<<< This website will no longer be supported after September 30, 2020. Study data and documentation that you access from this website will continue to be available through ICPSR https://web.archive.org/web/20200813092858/https://www.icpsr.umich.edu/. >>>!!!>>>

HealthData.gov

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This site is dedicated to making high value health data more accessible to entrepreneurs, researchers, and policy makers in the hopes of better health outcomes for all. In a recent article, Todd Park, United States Chief Technology Officer, captured the essence of what the Health Data Initiative is all about and why our efforts here are so important.