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Found 91 result(s)
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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.
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Our system consists of a portal (portal.geomar.de), providing access to several projects with personal password. The portal offers document exchange, common or individual blogs and fora and implementation of external webpages and -services. Moreover, you can access the expedition database, that organizes data description and exchange of cruises and expeditions for each project. Expeditions are linked to KML-files (Google-Earth compatible), allowing a visualization of all stations of a cruise/expedition. We established the linkage to the publications database /repository OceanRep (EPrints), as well as the description of model-output and linkage to paper publications.
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The TRR228DB is the project-database of the Collaborative Research Centre 228 "Future Rural Africa: Future-making and social-ecological transformation" (CRC/Transregio 228, https://www.crc228.de) funded by the German Research Foundation (DFG, German Research Foundation – Project number 328966760). The project-database is a new implementation of the TR32DB and online since 2018. It handles all data including metadata, which are created by the involved project participants from several institutions (e.g. Universities of Cologne and Bonn) and research fields (e.g. anthropology, agroeconomics, ecology, ethnology, geography, politics and soil sciences). The data is resulting from several field campaigns, interviews, surveys, remote sensing, laboratory studies and modelling approaches. Furthermore, outcomes of the scientists such as publications, conference contributions, PhD reports and corresponding images are collected.
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National Human Brain Bank for Development and Function was originally established in 2012 by the Institute of Basic Medical Sciences, Chinese Academy of Medical Sciences as a public interest institution dedicated to the preservation and research of human brain tissues based on the volunteer donor station of Peking Union Medical College. In 2019, it was officially recognised by the Ministry of Science and Technology as a national science and technology resource platform: National Human Brain Bank for Development and Function. Since its establishment, the Concordia Brain Bank has accepted and preserved more than two hundred and seventy whole brain tissue samples. While conducting its own research on the standardisation of brain banks, neuropathology and various histologies related to human brain ageing and dementia, it has also developed and published the Standardised Operational Protocol for Human Brain Tissue Banks in China for more than ten universities in China, and has provided valuable human brain tissue samples for a number of research groups in our own institutions and other units in China, which has strongly supported brain science and brain disease research in China. As a national resource platform, we will continue to aim to support and lead brain science research in China and make positive contributions to maintaining brain health and defeating brain diseases.
Regionaal Archief Tilburg (RA Tilburg) is one of the four institutions of foundation Mommerskwartier and is based in Tilburg, the Netherlands. The statutory task (Public Records Act https://bit.ly/3iCTI7f) of RA Tilburg is to function as a repository for decentralized, local government organizations such as municipalities, communal schemes, and Water Authorities. RA Tilburg also manages private archives, and archives of organizations, institutes, or the public in general.
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BExIS is the online data repository and information system of the Biodiversity Exploratories Project (BE). The BE is a German network of biodiversity related working groups from areas such as vegetation and soil science, zoology and forestry. Up to three years after data acquisition, the data use is restricted to members of the BE. Thereafter, the data is usually public available (https://www.bexis.uni-jena.de/ddm/publicsearch/index).
ARCHE (A Resource Centre for the HumanitiEs) is a service aimed at offering stable and persistent hosting as well as dissemination of digital research data and resources for the Austrian humanities community. ARCHE welcomes data from all humanities fields. ARCHE is the successor of the Language Resources Portal (LRP) and acts as Austria’s connection point to the European network of CLARIN Centres for language resources.
The WorldWide Antimalarial Resistance Network (WWARN) is a collaborative platform generating innovative resources and reliable evidence to inform the malaria community on the factors affecting the efficacy of antimalarial medicines. Access to data is provided through diverse Tools and Resources: WWARN Explorer, Molecular Surveyor K13 Methodology, Molecular Surveyor pfmdr1 & pfcrt, Molecular Surveyor dhfr & dhps.
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
The Roper Center has made available its entire collection of Primary exit polls. Primary exit polls datasets include standard demographic makeup of interviewee and questions pertinent to the issues of each state.
KLIPS (Korean Labor & Income Panel Study) is a longitudinal survey of the labor market / income activities of households and individuals residing in urban areas. The 1st Wave of the KLIPS was launched by the KLI (Korea Labor Institute) in 1998, amid an unprecedented economic crisis and labor market turmoil.
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Launched in February 2020, data.sciencespo is a repository that offers visibility, sharing and preservation of data collected, curated and processed at Sciences Po. The repository is based on the Dataverse open-source software and organised into collections: CDSP Collection This collection managed by the Centre des données socio-politiques (CDSP) includes the catalogue of surveys, in the social science and humanities, processed and curated by CDSP engineers since 2005. This catalogue brings together surveys produced at Sciences Po and other French and international institutions. - Sciences Po collection (self-deposit) This collection, which is managed by the Direction des ressources et de l'information scientifique (DRIS), is intended to host data produced by researchers affiliated with Sciences Po, following the self-deposit process assisted by the Library's staff.
The Magnetics Information Consortium (MagIC) improves research capacity in the Earth and Ocean sciences by maintaining an open community digital data archive for rock magnetic, geomagnetic, archeomagnetic (archaeomagnetic) and paleomagnetic (palaeomagnetic) data. Different parts of the website allow users access to archive, search, visualize, and download these data. MagIC supports the international rock magnetism, geomagnetism, archeomagnetism (archaeomagnetism), and paleomagnetism (palaeomagnetism) research and endeavors to bring data out of private archives, making them accessible to all and (re-)useable for new, creative, collaborative scientific and educational activities. The data in MagIC is used for many types of studies including tectonic plate reconstructions, geomagnetic field models, paleomagnetic field reversal studies, magnetohydrodynamical studies of the Earth's core, magnetostratigraphy, and archeology. MagIC is a domain-specific data repository and directed by PIs who are both producers and consumers of rock, geo, and paleomagnetic data. Funded by NSF since 2003, MagIC forms a major part of https://earthref.org which integrates four independent cyber-initiatives rooted in various parts of the Earth, Ocean and Life sciences and education.
The Archaeological Map of the Czech Republic (AMCR) is a repository designed for information on archaeological investigations, sites and finds, operated by the Archaeological Institutes of the CAS in Prague and Brno. The archives of these institutions contain documentation of archaeological fieldwork on the territory of the Czech Republic from 1919 to the present day, and they continue to enrich their collections. The AMCR database and related documents form the largest collection of archaeological data concerning the Czech Republic and are therefore an important part of our cultural heritage. The AMCR digital archive contains various types of records - individual archaeological documents (texts, field photographs, aerial photographs, maps and plans, digital data), projects, fieldwork events, archaeological sites, records of individual finds and a library of 3D models. Data and descriptive information are continuously taken from the AMCR and presented in the the AMCR Digital Archive interface.
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Research Data Centres offer a secure access to detailed microdata from Statistics Canada's surveys, and to Canadian censuses' data, as well as to an increasing number of administrative data sets. The search engine was designed to help you find out more easily which dataset among all the surveys available in the RDCs best suits your research needs.
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The Research Data Center for Higher Education Research and Science Studies (FDZ-DZHW) at the German Centre for Higher Education Research and Science Studies (DZHW) in Hannover provides the scientific community with quantitative and qualitative research data from the field of higher education and science studies for research and teaching purposes. The data pool of the Research Data Centre is based on two sources: Firstly, it contains the current surveys of the panels conducted in-house (especially DZHW Graduate Panel, Social Survey, DZHW Panel Study of School Leavers with a Higher Education Entrance Qualification, DZHW Scientists Survey), which are integrated by default. Secondly, the Research Data Centre constantly processes, documents and integrates inventory data of the DZHW and its prior organisations. External data from the research area is also integrated into the FDZ data pool.
The Global Hydrology Resource Center (GHRC) provides both historical and current Earth science data, information, and products from satellite, airborne, and surface-based instruments. GHRC acquires basic data streams and produces derived products from many instruments spread across a variety of instrument platforms.
Cocoon "COllections de COrpus Oraux Numériques" is a technical platform that accompanies the oral resource producers, create, organize and archive their corpus; a corpus can consist of records (usually audio) possibly accompanied by annotations of these records. The resources registered are first cataloged and stored while, and then, secondly archived in the archive of the TGIR Huma-Num. The author and his institution are responsible for filings and may benefit from a restricted and secure access to their data for a defined period, if the content of the information is considered sensitive. The COCOON platform is jointly operated by two joint research units: Laboratoire de Langues et civilisations à tradition orale (LACITO - UMR7107 - Université Paris3 / INALCO / CNRS) and Laboratoire Ligérien de Linguistique (LLL - UMR7270 - Universités d'Orléans et de Tours, BnF, CNRS).
Lithuania became a full member of CLARIN ERIC in January of 2015 and soon CLARIN-LT consortium was founded by three partner universities: Vytautas Magnus University, Kaunas Technology University and Vilnius University. The main goal of the consortium is to become a CLARIN B centre, which will be able to serve language users in Lithuania and Europe for storing and accessing language resources.
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The arctic data archive system (ADS) collects observation data and modeling products obtained by various Japanese research projects and gives researchers to access the results. By centrally managing a wide variety of Arctic observation data, we promote the use of data across multiple disciplines. Researchers use these integrated databases to clarify the mechanisms of environmental change in the atmosphere, ocean, land-surface and cryosphere. That ADS will be provide an opportunity of collaboration between modelers and field scientists, can be expected.
All ADNI data are shared without embargo through the LONI Image and Data Archive (IDA), a secure research data repository. Interested scientists may obtain access to ADNI imaging, clinical, genomic, and biomarker data for the purposes of scientific investigation, teaching, or planning clinical research studies. "The Alzheimer’s Disease Neuroimaging Initiative (ADNI) unites researchers with study data as they work to define the progression of Alzheimer’s disease (AD). ADNI researchers collect, validate and utilize data, including MRI and PET images, genetics, cognitive tests, CSF and blood biomarkers as predictors of the disease. Study resources and data from the North American ADNI study are available through this website, including Alzheimer’s disease patients, mild cognitive impairment subjects, and elderly controls. "
NACDA acquires and preserves data relevant to gerontological research, processing as needed to promote effective research use, disseminates them to researchers, and facilitates their use. By preserving and making available the largest library of electronic data on aging in the United States, NACDA offers opportunities for secondary analysis on major issues of scientific and policy relevance