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Found 34 result(s)

Indian Genetic Disease Database

IGDD

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>>>!!!<<< The repository is no longer available. >>>!!!<<< Indian Genetic Disease Database (IGDD) is an initiative of CSIR Indian Institute of Chemical Biology. It is supported by Council of Scientific and Industrial Research (CSIR) and Department of Biotechnology (DBT) of India. The Indian people represent one-sixth of the world population and consists of a ethnically, geographically, and genetically diverse population. In some communities the ratio of genetic disorder is relatively high due to consanguineous marriage practiced in the community. This database has been created to keep track of mutations in the causal genes for genetic diseases common in India and help the physicians, geneticists, and other professionals retrieve and use the information for the benefit of the public. The database includes scientific information about these genetic diseases and disabilities, but also statistical information about these diseases in today's society. Data is categorized by body part affected and then by title of the disease.

JenAge Ageing Factor Database

AgeFactDB

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The JenAge Ageing Factor Database AgeFactDB is aimed at the collection and integration of ageing phenotype and lifespan data. Ageing factors are genes, chemical compounds or other factors such as dietary restriction, for example. In a first step ageing-related data are primarily taken from existing databases. In addition, new ageing-related information is included both by manual and automatic information extraction from the scientific literature. Based on a homology analysis, AgeFactDB also includes genes that are homologous to known ageing-related genes. These homologs are considered as candidate or putative ageing-related genes.

Diabetes Study of Northern California

DISTANCE

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<<<!!!<<< This repository is no longer available. >>>!!!>>> The Diabetes Study of Northern California (DISTANCE) conducts epidemiological and health services research in diabetes among a large, multiethnic cohort of patients in a large, integrated health care delivery system.

ARS

Antibiotika-Resistenz-Surveillance

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With ARS - Antimicrobial Resistance Surveillance in Germany - the infrastructure for a nationwide surveillance of antimicrobial resistance has been established, which covers both the inpatient medical care and the ambulatory care sector. This is intended to reliable data on the epidemiology of antimicrobial resistance in Germany and differential statements provided by structural features of the health care and by region are possible. ARS is designed as a laboratory-based surveillance system for continuous collection of resistance data from routine for the full range of clinically relevant bacterial pathogens. Project participants and thus data suppliers are laboratories that analyze samples of medical facilities and doctors' offices microbiologically.

TOXMAP

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<<<!!!<<< The repository is no longer available. >>>!!!>>> Selected TOXMAP data can be accesse from the following sites: U.S. EPA Toxics Release Program (TRI) (https://www.epa.gov/toxics-release-inventory-tri-program) U.S. EPA Superfund Program (https://www.epa.gov/superfund) U.S. EPA Facilities Registry System (FRS) (https://www.epa.gov/frs) U.S. EPA Clean Air Markets Program (https://www.epa.gov/airmarkets) U.S. EPA Geospatial Applications (https://www.epa.gov/geospatial/epa-geospatial-applications) U.S. NIH NCI Surveillance, Epidemiology, and End Results Program (SEER) (https://seer.cancer.gov/) Government of Canada National Pollutant Release Inventory (NPRI) (https://www.canada.ca/en/services/environment/pollution-waste-management/national-pollutant-release-inventory.html) U.S. Census Bureau (https://www.census.gov/) U.S. Nuclear Regulatory Commission (NRC) (https://www.nrc.gov/) >>>!!!>>>

Growing Up Today Study

GUTS

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<<<!!!<<< The 2019-2020 Questionnaire is no longer live. >>>!!!>>>

NCBI dbMHC

Major histocompatibility Complex database

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<<<!!!<<< The repository is no longer available - Data previously on the site are now available at ftp://ftp.ncbi.nlm.nih.gov/pub/mhc/mhc/Final Archive. >>>!!!>>> The dbMHC database provides an open, publicly accessible platform for DNA and clinical data related to the human Major Histocompatibility Complex (MHC). The dbMHC provides access to human leukocyte antigen (HLA) sequences, HLA allele and haplotype frequencies, and clinical datasets.

AHRI Data Repository

Africa Health Research Institute Data Repository

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The Africa Health Research Institute (AHRI) has published its updated analytical datasets for 2016. The datasets cover socio-economic, education and employment information for individuals and households in AHRI’s population research area in rural northern KwaZulu-Natal. The datasets also include details on the migration patterns of the individuals and households who migrated into and out of the surveillance area as well as data on probable causes of death for individuals who passed away. Data collection for the 2016 individual interviews – which involves a dried blood spot sample being taken – is still in progress, and therefore datasets on HIV status and General Health only go up to 2015 for now. Over the past 16 years researchers have developed an extensive longitudinal database of demographic, social, economic, clinical and laboratory information about people over the age of 15 living in the AHRI population research area. During this time researchers have followed more than 160 000 people, of which 92 000 are still in the programme.

Surveillance Epidemiology and End Results

SEER

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A premier source for United States cancer statistics, SEER gathers information related to incidence, prevalence, and survival from specific geographic areas that represent 28 percent of the population, as well as compiles related reports and reports on the national cancer mortality rates. Their aim is to provide information related to cancer statistics and decrease the burden of cancer in the national population. SEER has been collecting data from cancer cases since 1973.

Center for Demography of Health and Aging

CDHA

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The CDHA assists researchers to create, document, and distribute public use microdata on health and aging for secondary analysis. Major research themes include: midlife development and aging; economics of population aging; inequalities in health and aging; international comparative studies of health and aging; and the investigation of linkages between social-demographic and biomedical research in population aging. The CDHA is one of fourteen demography centers on aging sponsored by the National Institute on Aging.

Pacific Islands Families Study

PIF Study

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The Pacific Islands Families (PIF) Study is an ongoing longitudinal birth cohort study that has been tracking the health and development of 1,398 Pacific children and their parents since the children were born at Middlemore Hospital in South Auckland in the year 2000. It is the only prospective study specifically of Pacific peoples in the world.

London Datastore

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The London Datastore is an initiative by the Greater London Authority (GLA) to release as much of the data that it holds as possible.

Biobank of blood donors

Biobank der Blutspender

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With its “Blood Donor BIOBANK”, the Bavarian Red Cross (BRK) Blood Donor Service offers a unique and innovative resource for biomarker research: the world’s first blood donor based biobank. Biobanks as collections of biological material together with associated medical data open new possibilities for the development of new targeted diagnostics and therapies. The BRK Blood Donor Service maintains a unique collection of over 3 million blood samples, making it one of the largest sample collections worldwide. Every working day 2,000 new samples are added to the collection.

The Cancer Immunome Atlas

TCIA

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The Cancer Immunome Database (TCIA) provides results of comprehensive immunogenomic analyses of next generation sequencing data (NGS) data for 20 solid cancers from The Cancer Genome Atlas (TCGA) and other datasource. The Cancer Immunome Atlas (TCIA) was developed and is maintained at the Division of Bioinformatics (ICBI). The database can be queried for the gene expression of specific immune-related gene sets, cellular composition of immune infiltrates (characterized using gene set enrichment analyses and deconvolution), neoantigens and cancer-germline antigens, HLA types, and tumor heterogeneity (estimated from cancer cell fractions). Moreover it provides survival analyses for different types immunological parameters. TCIA will be constantly updated with new data and results.

Open Government Data Portal of Surat City

Surat Municipal Corporation Open Data Initiative

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It is a platform (designed and developed by the National Informatics Centre (NIC), Government of India) for supporting Open Data initiative of Surat Municipal Corporation, intended to publish government datasets for public use. The portal has been created under Software as A Service (SaaS) model of Open Government Data (OGD) Platform, thus gives avenues for resuing datasets of the City in different perspective. This Portal has numerious modules; (a) Data Management System (DMS) for contributing data catalogs by various departments for making those available on the front end website after a due approval process through a defined workflow; (b) Content Management System (CMS) for managing and updating various functionalities and content types of Open Government Data Portal of Surat City; (c) Visitor Relationship Management (VRM) for collating and disseminating viewer feedback on various data catalogs; and (d) Communities module for community users to interact and share their zeal and views with others, who share common interests as that of theirs.

Agency for Healthcare Research and Quality, Data & Surveys

AHRQ data & surveys

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A collection of data at Agency for Healthcare Research and Quality (AHRQ) supporting research that helps people make more informed decisions and improves the quality of health care services. The portal contains U.S.Health Information Knowledgebase (USHIK) and Systematic Review Data Repository (SRDR) and other sources concerning cost, quality, accesibility and evaluation of healthcare and medical insurance.

Manitoba Population Research Data Repository

MCHP Data Repository

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The Population Health Research Data Repository housed at MCHP is a comprehensive collection of administrative, registry, survey, and other data primarily relating to residents of Manitoba. It was developed to describe and explain patterns of health care and profiles of health and illness, facilitating inter-sectoral research in areas such as health care, education, and social services.

ClinicalCodes.org

ClinicalCodes repository

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The ClinicalCodes repository aims to hold code lists for all published electronic medical record studies, irrespective of code type (e.g. Read, ICD9-10, SNOMED) and database (CPRD, QResearch, THIN etc.). Once deposited, code lists will be freely available, with no login needed to download codes.

diversitydata.org

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diversitydata.org is an online tool for exploring quality of life data across metropolitan areas for people of different racial/ethnic groups in the United States. It provides values and rankings for the largest U.S. metropolitan areas on different indicators in 8 areas of life (domains), including demographics, education, economic opportunity, housing, neighborhoods, and health. It also provides a simple mapping utility, showing the range of indicator values for metros across the U.S. Data from 1999 indicators is archives in the companion Diversity Data Archive (https://diversitydata-archive.org/). For a wider selection of data on child wellbeing, visit our partner site, diversitydatakids.org (https://www.diversitydatakids.org/). diversitydata.org has been named a Health Data All Star by the Health Data Consortium. The list was compiled in consultation with leading health researchers, government officials, entrepreneurs, advocates and others to identify the health data resources that matter most.

Nationale Kohorte

German National Cohort

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The German National Cohort (NAKO) has been inviting men and women aged between 20 and 69 to 18 study centers throughout Germany since 2014. The participants are medically examined and questioned about their living conditions. The GNC’s aim is to investigate the causes of chronic diseases, such as cancer, diabetes, cardiovascular diseases, rheumatism, infectious diseases, and dementia in order to improve prevention, early diagnoses and treatment of these very widely spread diseases.

Open Government Data Portal of Sikkim

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Open Government Data Portal of Sikkim–sikkim.data.gov.in - is a platform for supporting Open Data initiative of Government of Sikkim. The portal is intended to be used by Departments/Organizations of Government of Sikkim to publish datasets, documents, services, tools and applications collected by them for public use. It intends to increase transparency in the functioning of the state Government and also open avenues for many more innovative uses of Government Data to give different perspective. Open Government Data Portal of Sikkim is designed and developed by the Open Government Data Division of National Informatics Centre (NIC), Department of Electronics and Information Technology (DeitY), Government of India. The portal has been created under Software as A Service (SaaS) model of Open Government Data (OGD) Platform India of NIC. The data available in the portal are owned by various Departments/Organization of Government of Sikkim. Open Government Data Portal of Sikkim has following modules: Data Management System (DMS) – Module for contributing data catalogs by various state government agencies for making those available on the front end website after a due approval process through a defined workflow. Content Management System (CMS) – Module for managing and updating various functionalities and content types of Open Government Data Portal of Sikkim. Visitor Relationship Management (VRM) – Module for collating and disseminating viewer feedback on various data catalogs. Communities – Module for community users to interact and share their zeal and views with others, who share common interests as that of theirs.

Open Government Data Portal of Odisha

Odisha Open Government Data Portal

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It is a platform for supporting Open Data initiative of Government of Odisha, intends to publish datasets collected by them for public use. It also supports widely used file formats that are suitable for machine processing, thus gives avenues for many more innovative uses of Government Data in different perspective. This portal has been created under Software as A Service (SaaS) model of Open Government Data (OGD) Platform India of NIC. The data available in the portal are owned by various Departments/Organization of Government of Odisha. It follows principles on which data sharing and accessibility need to be based include: Openness, Flexibility, Transparency, Quality, Security and Machine-readable.

United States Health Information Knowledgebase

USHIK

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<<<!!!<<< USHIK was archived because some of the metadata are maintained by other sites and there is no need for duplication. The USHIK metadata registry was a neutral repository of metadata from an authoritative source used to promote interoperability and reuse of data. The registry did not attempt to change the metadata content but rather provided a structured way to view data for the technical or casual user. Complete information see: https://www.ahrq.gov/data/ushik.html >>>!!!>>>

National Coronial Information System

NCIS

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The NCIS is a national database of information on every death reported to a coroner in Australia and New Zealand. It contains demographic information on the deceased, contextual information on the nature of the fatality and medico-legal documents including the coroner's finding, autopsy and toxicology reports and the police notification of death report.

EUROCAT

European Surveillance of Congenital Anomalies

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A European network of population-based registries for the epidemiologic surveillance of congenital anomalies.