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Found 7 result(s)
The Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system was developed to share data across the entire TBI research field and to facilitate collaboration between laboratories, as well as interconnectivity with other informatics platforms. Sharing data, methodologies, and associated tools, rather than summaries or interpretations of this information, can accelerate research progress by allowing re-analysis of data, as well as re-aggregation, integration, and rigorous comparison with other data, tools, and methods. This community-wide sharing requires common data definitions and standards, as well as comprehensive and coherent informatics approaches.
Country
The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.
Country
The Austrian NeuroCloud (ANC) is a FAIR-enabling platform for sustainable research data management in Cognitive Neuroscience. Most of the offered research data is restricted, the publicly available datasets can be seen under https://data.anc.plus.ac.at/explore The ANC offers tools and services to archive, manage, and share neurocognitive data flexibly and according to community standards. Scientists have full control over what they share (e.g., full original datasets or data derivatives), how they share it (by choosing from a selection of licensing models), and with whom (e.g., by using the ANC’s adjustable User Agreement templates). The ANC provides persistent DOIs for data releases and operates in accordance with European GDPR. Moreover, the ANC fully supports the mission of the EOSC and is committed to the EU’s open science policy, legal standards, and best open science practices. Accordingly, the ANC aspires to facilitate FAIR data operations along the entire data lifecycle, actively supporting the ongoing shift in research culture towards increased transparency, data reusability, and result reproducibility.
Country
The Preclinical Image DAtaset Repository (PIDAR) is a public repository of metadata information of preclinical image datasets from any imaging modality associated to peer-review publications. The metadata information are organized in a proper schema to create a standard metadata model for preclinical imaging.
Country
BacDive is a bacterial metadatabase that provides strain-linked information about bacterial and archaeal biodiversity. The database is a resource for different kind of phenotypic data like taxonomy, morphology, physiology, environment and molecular-biology. The majority of data is manually annotated and curated. With the release in April 2019 BacDive offers information for 80,584 strains. The database is hosted by the Leibniz Institute DSMZ - German Collection of Microorganisms and Cell Cultures GmbH and is part of de.NBI the German Network for Bioinformatics Infrastructure.