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Found 41 result(s)
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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
The nationally recognized National Cancer Database (NCDB)—jointly sponsored by the American College of Surgeons and the American Cancer Society—is a clinical oncology database sourced from hospital registry data that are collected in more than 1,500 Commission on Cancer (CoC)-accredited facilities. NCDB data are used to analyze and track patients with malignant neoplastic diseases, their treatments, and outcomes. Data represent more than 70 percent of newly diagnosed cancer cases nationwide and more than 34 million historical records.
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The TRR228DB is the project-database of the Collaborative Research Centre 228 "Future Rural Africa: Future-making and social-ecological transformation" (CRC/Transregio 228, https://www.crc228.de) funded by the German Research Foundation (DFG, German Research Foundation – Project number 328966760). The project-database is a new implementation of the TR32DB and online since 2018. It handles all data including metadata, which are created by the involved project participants from several institutions (e.g. Universities of Cologne and Bonn) and research fields (e.g. anthropology, agroeconomics, ecology, ethnology, geography, politics and soil sciences). The data is resulting from several field campaigns, interviews, surveys, remote sensing, laboratory studies and modelling approaches. Furthermore, outcomes of the scientists such as publications, conference contributions, PhD reports and corresponding images are collected.
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National Human Brain Bank for Development and Function was originally established in 2012 by the Institute of Basic Medical Sciences, Chinese Academy of Medical Sciences as a public interest institution dedicated to the preservation and research of human brain tissues based on the volunteer donor station of Peking Union Medical College. In 2019, it was officially recognised by the Ministry of Science and Technology as a national science and technology resource platform: National Human Brain Bank for Development and Function. Since its establishment, the Concordia Brain Bank has accepted and preserved more than two hundred and seventy whole brain tissue samples. While conducting its own research on the standardisation of brain banks, neuropathology and various histologies related to human brain ageing and dementia, it has also developed and published the Standardised Operational Protocol for Human Brain Tissue Banks in China for more than ten universities in China, and has provided valuable human brain tissue samples for a number of research groups in our own institutions and other units in China, which has strongly supported brain science and brain disease research in China. As a national resource platform, we will continue to aim to support and lead brain science research in China and make positive contributions to maintaining brain health and defeating brain diseases.
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BExIS is the online data repository and information system of the Biodiversity Exploratories Project (BE). The BE is a German network of biodiversity related working groups from areas such as vegetation and soil science, zoology and forestry. Up to three years after data acquisition, the data use is restricted to members of the BE. Thereafter, the data is usually public available (https://www.bexis.uni-jena.de/ddm/publicsearch/index).
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
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Launched in February 2020, data.sciencespo is a repository that offers visibility, sharing and preservation of data collected, curated and processed at Sciences Po. The repository is based on the Dataverse open-source software and organised into collections: CDSP Collection This collection managed by the Centre des données socio-politiques (CDSP) includes the catalogue of surveys, in the social science and humanities, processed and curated by CDSP engineers since 2005. This catalogue brings together surveys produced at Sciences Po and other French and international institutions. - Sciences Po collection (self-deposit) This collection, which is managed by the Direction des ressources et de l'information scientifique (DRIS), is intended to host data produced by researchers affiliated with Sciences Po, following the self-deposit process assisted by the Library's staff.
The Magnetics Information Consortium (MagIC) improves research capacity in the Earth and Ocean sciences by maintaining an open community digital data archive for rock magnetic, geomagnetic, archeomagnetic (archaeomagnetic) and paleomagnetic (palaeomagnetic) data. Different parts of the website allow users access to archive, search, visualize, and download these data. MagIC supports the international rock magnetism, geomagnetism, archeomagnetism (archaeomagnetism), and paleomagnetism (palaeomagnetism) research and endeavors to bring data out of private archives, making them accessible to all and (re-)useable for new, creative, collaborative scientific and educational activities. The data in MagIC is used for many types of studies including tectonic plate reconstructions, geomagnetic field models, paleomagnetic field reversal studies, magnetohydrodynamical studies of the Earth's core, magnetostratigraphy, and archeology. MagIC is a domain-specific data repository and directed by PIs who are both producers and consumers of rock, geo, and paleomagnetic data. Funded by NSF since 2003, MagIC forms a major part of https://earthref.org which integrates four independent cyber-initiatives rooted in various parts of the Earth, Ocean and Life sciences and education.
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Research Data Centres offer a secure access to detailed microdata from Statistics Canada's surveys, and to Canadian censuses' data, as well as to an increasing number of administrative data sets. The search engine was designed to help you find out more easily which dataset among all the surveys available in the RDCs best suits your research needs.
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The arctic data archive system (ADS) collects observation data and modeling products obtained by various Japanese research projects and gives researchers to access the results. By centrally managing a wide variety of Arctic observation data, we promote the use of data across multiple disciplines. Researchers use these integrated databases to clarify the mechanisms of environmental change in the atmosphere, ocean, land-surface and cryosphere. That ADS will be provide an opportunity of collaboration between modelers and field scientists, can be expected.
META-SHARE, the open language resource exchange facility, is devoted to the sustainable sharing and dissemination of language resources (LRs) and aims at increasing access to such resources in a global scale. META-SHARE is an open, integrated, secure and interoperable sharing and exchange facility for LRs (datasets and tools) for the Human Language Technologies domain and other applicative domains where language plays a critical role. META-SHARE is implemented in the framework of the META-NET Network of Excellence. It is designed as a network of distributed repositories of LRs, including language data and basic language processing tools (e.g., morphological analysers, PoS taggers, speech recognisers, etc.). Data and tools can be both open and with restricted access rights, free and for-a-fee.
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Our system consists of a portal (portal.geomar.de), providing access to several projects with personal password. The portal offers document exchange, common or individual blogs and fora and implementation of external webpages and -services. Moreover, you can access the expedition database, that organizes data description and exchange of cruises and expeditions for each project. Expeditions are linked to KML-files (Google-Earth compatible), allowing a visualization of all stations of a cruise/expedition. We established the linkage to the publications database /repository OceanRep (EPrints), as well as the description of model-output and linkage to paper publications.
BSRN is a project of the Radiation Panel (now the Data and Assessment Panel) from the Global Energy and Water Cycle Experiment (GEWEX) under the umbrella of the World Climate Research Programme (WCRP). It is the global baseline network for surface radiation for the Global limate Observing System (GCOS), contributing to the Global Atmospheric Watch (GAW), and forming a ooperative network with the Network for the Detection of Atmospheric Composition Change NDACC).
NACDA acquires and preserves data relevant to gerontological research, processing as needed to promote effective research use, disseminates them to researchers, and facilitates their use. By preserving and making available the largest library of electronic data on aging in the United States, NACDA offers opportunities for secondary analysis on major issues of scientific and policy relevance
The Cross-National Equivalent File (CNEF) contains population panel data from Australia, Canada, Germany, Great Britain, Korea, Russia, Switzerland and the United States. Each of these countries undertakes a longitudinal household economic survey. The data are made equivalent, providing a reference dataset which cross-links each of the individual studies and allowing cross-national comparisons.
The Polinsky Language Sciences Lab at Harvard University is a linguistics lab that examines questions of language structure and its effect on the ways in which people use and process language in real time. We engage in linguistic and interdisciplinary research projects ourselves; offer linguistic research capabilities for undergraduate and graduate students, faculty, and visitors; and build relationships with the linguistic communities in which we do our research. We are interested in a broad range of issues pertaining to syntax, interfaces, and cross-linguistic variation. We place a particular emphasis on novel experimental evidence that facilitates the construction of linguistic theory. We have a strong cross-linguistic focus, drawing upon English, Russian, Chinese, Korean, Mayan languages, Basque, Austronesian languages, languages of the Caucasus, and others. We believe that challenging existing theories with data from as broad a range of languages as possible is a crucial component of the successful development of linguistic theory. We investigate both fluent speakers and heritage speakers—those who grew up hearing or speaking a particular language but who are now more fluent in a different, societally dominant language. Heritage languages, a novel field of linguistic inquiry, are important because they provide new insights into processes of linguistic development and attrition in general, thus increasing our understanding of the human capacity to maintain and acquire language. Understanding language use and processing in real time and how children acquire language helps us improve language study and pedagogy, which in turn improves communication across the globe. Although our lab does not specialize in language acquisition, we have conducted some studies of acquisition of lesser-studied languages and heritage languages, with the purpose of comparing heritage speakers to adults.
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The Research Data Centre (Forschungsdatenzentrum, FDZ) at the Institute for Educational Quality Improvement (Institut zur Qualitätsentwicklung im Bildungswesen, IQB) archives and documents data sets resulting from national and international assessment studies (such as DESI, PIRLS, PISA, IQB-Bildungstrends). Moreover, the FDZ makes these data sets available for re- and secondary analysis. Members of the scientific community can apply for access to the data sets archived at the FDZ.
IAGOS aims to provide long-term, regular and spatially resolved in situ observations of the atmospheric composition. The observation systems are deployed on a fleet of 10 to 15 commercial aircraft measuring atmospheric chemistry concentrations and meteorological fields. The IAGOS Data Centre manages and gives access to all the data produced within the project.
The central mission of the NACJD is to facilitate and encourage research in the criminal justice field by sharing data resources. Specific goals include providing computer-readable data for the quantitative study of crime and the criminal justice system through the development of a central data archive, supplying technical assistance in the selection of data collections and computer hardware and software for data analysis, and training in quantitative methods of social science research to facilitate secondary analysis of criminal justice data
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This guide aims to provide a starting point to locating Geographic Information System (GIS) information both through the University of Sydney library catalogue and on the World Wide Web.
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CaPSURE™ is a longitudinal, observational study of approximately 15,000 men with all stages of biopsy-proven prostate cancer. Patients have enrolled at 43 community urology practices, academic medical centers, and VA hospitals throughout the United States since 1995. CEASAR stands for Comparative Effectiveness Analysis of Surgery and Radiation. The ongoing goal of CEASAR is to help learn more about what prostate cancer treatments work best, for which patients, in whose hands. There are currently about 3,600 men with a prostate cancer diagnosis participating in CEASAR. Three rounds of surveys have been completed, with the first carried out in the spring of 2010. We are currently in the process of conducting our fourth survey with the same group of men in our study. This survey, our Three Year Follow-up, will occur throughout the summer of 2014.
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In the framework of the Collaborative Research Centre/Transregio 32 ‘Patterns in Soil-Vegetation-Atmosphere Systems: Monitoring, Modelling, and Data Assimilation’ (CRC/TR32, www.tr32.de), funded by the German Research Foundation from 2007 to 2018, a RDM system was self-designed and implemented. The so-called CRC/TR32 project database (TR32DB, www.tr32db.de) is operating online since early 2008. The TR32DB handles all data including metadata, which are created by the involved project participants from several institutions (e.g. Universities of Cologne, Bonn, Aachen, and the Research Centre Jülich) and research fields (e.g. soil and plant sciences, hydrology, geography, geophysics, meteorology, remote sensing). The data is resulting from several field measurement campaigns, meteorological monitoring, remote sensing, laboratory studies and modelling approaches. Furthermore, outcomes of the scientists such as publications, conference contributions, PhD reports and corresponding images are collected in the TR32DB.
NAHDAP acquires, preserves and disseminates data relevant to drug addiction and HIV research. By preserving and making available an easily accessible library of electronic data on drug addiction and HIV infection in the United States, NAHDAP offers scholars the opportunity to conduct secondary analysis on major issues of social and behavioral sciences and public policy