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Found 21 result(s)
The Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system was developed to share data across the entire TBI research field and to facilitate collaboration between laboratories, as well as interconnectivity with other informatics platforms. Sharing data, methodologies, and associated tools, rather than summaries or interpretations of this information, can accelerate research progress by allowing re-analysis of data, as well as re-aggregation, integration, and rigorous comparison with other data, tools, and methods. This community-wide sharing requires common data definitions and standards, as well as comprehensive and coherent informatics approaches.
The Comprehensive Epidemiologic Data Resource (CEDR) is the U.S. Department of Energy (DOE) electronic database comprised of health studies of DOE contract workers and environmental studies of areas surrounding DOE facilities. DOE recognizes the benefits of data sharing and supports the public's right to know about worker and community health risks. CEDR provides independent researchers and educators with access to de-identified data collected since the Department's early production years. Current CEDR holdings include more than 76 studies of over 1 million workers at 31 DOE sites. Access to these data is at no cost to the user.
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The Research Data Centre of the Robert Koch Institute (FDZ RKI) publishes the data of population-representative health surveys in the form of public use files (PUFs).The main purpose of health surveys is to generate a maximum amount of information on the state of health and health-related behaviour of Germany's resident population while ensuring an optimum use of funds. The methodology - i.e. the sample design, the principles on operationalization and measurement, and data-collection techniques - is largely modelled on the tried-and-tested methods of empirical social research. Health interview surveys (HIS) use established survey techniques such as filling out questionnaires, computer-assisted telephone interviews (CATI), computer-assisted personal interviews (CAPI), and online polling via the internet or email. The main difference compared to purely sociological surveys lies in the additional biomedical examinations, tests and medical-biochemical measurements, which generate significant added value in addition to the results of the surveys; this part is referred to internationally as the health examination survey (HES).
<<<!!!<<< The repository is no longer available. >>>!!!>>> Selected TOXMAP data can be accesse from the following sites: U.S. EPA Toxics Release Program (TRI) (https://www.epa.gov/toxics-release-inventory-tri-program) U.S. EPA Superfund Program (https://www.epa.gov/superfund) U.S. EPA Facilities Registry System (FRS) (https://www.epa.gov/frs) U.S. EPA Clean Air Markets Program (https://www.epa.gov/airmarkets) U.S. EPA Geospatial Applications (https://www.epa.gov/geospatial/epa-geospatial-applications) U.S. NIH NCI Surveillance, Epidemiology, and End Results Program (SEER) (https://seer.cancer.gov/) Government of Canada National Pollutant Release Inventory (NPRI) (https://www.canada.ca/en/services/environment/pollution-waste-management/national-pollutant-release-inventory.html) U.S. Census Bureau (https://www.census.gov/) U.S. Nuclear Regulatory Commission (NRC) (https://www.nrc.gov/) >>>!!!>>>
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The Research Documentation Centre of the Centre for Social Sciences at the Hungarian Academy of Sciences provides information on and access to research conducted at the Centre. The metadata and many of the documents of the Research Documentation Centre (RDC) are available to all visitors. External researchers may ask for access to restricted collections
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The Centre for Clinical Trials Cologne (Köln ZKS) aims to support all processes of clinical trials and the quality of patient-oriented clinical research in an academic environment. It supports doctors of University Hospital of Cologne, other clinics, study groups and professional associations in the design and conduct of clinical trials. For the pharmaceutical industry and contract research organizations, the ZKS Köln is a clinic near partner for medical research projects.
!!! >>> integrated in https://www.re3data.org/repository/r3d100012653 <<< !!! The National Database for Clinical Trials Related to Mental Illness (NDCT) is an informatics platform for the sharing of human subjects data from all clinical trials funded by the National Institute of Mental Health (NIMH).
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The UWA Profiles and Research Repository contains research publications, research datasets, theses, equipment, grants and activities created by researchers and postgraduates affiliated with the University of Western Australia (UWA). It is managed by the University Library and provides access to research datasets held at UWA. The information about each dataset has been provided by UWA research groups. Dataset metadata is harvested into Research Data Australia (RDA) https://researchdata.edu.au/.
The Pennington/Louisiana NORC Biorepository is a collection of de-identified data from studies of human subjects conducted at Pennington Biomedical Research Center since 1980. The repository includes data from trials centered around obesity and nutrition and those funded by the National Institutes of Health, Department of Defense, United States Department of Agriculture, American Heart Association, American Diabetes Association and other government and non-profit organizations.
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The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.
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A machine learning data repository with interactive visual analytic techniques. This project is the first to combine the notion of a data repository with real-time visual analytics for interactive data mining and exploratory analysis on the web. State-of-the-art statistical techniques are combined with real-time data visualization giving the ability for researchers to seamlessly find, explore, understand, and discover key insights in a large number of public donated data sets. This large comprehensive collection of data is useful for making significant research findings as well as benchmark data sets for a wide variety of applications and domains and includes relational, attributed, heterogeneous, streaming, spatial, and time series data as well as non-relational machine learning data. All data sets are easily downloaded into a standard consistent format. We also have built a multi-level interactive visual analytics engine that allows users to visualize and interactively explore the data in a free-flowing manner.
In 2003, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at NIH established Data, Biosample, and Genetic Repositories to increase the impact of current and previously funded NIDDK studies by making their data and biospecimens available to the broader scientific community. These Repositories enable scientists not involved in the original study to test new hypotheses without any new data or biospecimen collection, and they provide the opportunity to pool data across several studies to increase the power of statistical analyses. In addition, most NIDDK-funded studies are collecting genetic biospecimens and carrying out high-throughput genotyping making it possible for other scientists to use Repository resources to match genotypes to phenotypes and to perform informative genetic analyses.
ArrayExpress is one of the major international repositories for high-throughput functional genomics data from both microarray and high-throughput sequencing studies, many of which are supported by peer-reviewed publications. Data sets are submitted directly to ArrayExpress and curated by a team of specialist biological curators. In the past (until 2018) datasets from the NCBI Gene Expression Omnibus database were imported on a weekly basis. Data is collected to MIAME and MINSEQE standards.
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sciencedata.dk is a research data store provided by DTU, the Danish Technical University, specifically aimed at researchers and scientists at Danish academic institutions. The service is intended for working with and sharing active research data as well as for safekeeping of large datasets. The data can be accessed and manipulated via a web interface, synchronization clients, file transfer clients or the command line. The service is built on and with open-source software from the ground up: FreeBSD, ZFS, Apache, PHP, ownCloud/Nextcloud. DTU is actively engaged in community efforts on developing research-specific functionality for data stores. Our servers are attached directly to the 10-Gigabit backbone of "Forskningsnettet" (the National Research and Education Network of Denmark) - implying that up and download speed from Danish academic institutions is in principle comparable to those of an external USB hard drive. Data store for research data allowing private sharing and sharing via links / persistent URLs.
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Through its Blood4Research Program based in Vancouver, the Centre for Innovation collects blood from committed donors who have been deferred from donating blood for patient use. The collected blood is processed and provided to investigators to facilitate research that promotes advances in the fields of transfusion, cellular therapies, and transplantation medicine. Through its Cord Blood for Research Program, Canadian Blood Services’ Cord Blood Bank provides investigators with cord blood products to facilitate research that promotes advances in the fields of transfusion, cellular therapies, and transplantation medicine.​ The Cord Blood for Research Program distributes cord blood products that do not meet the criteria for storage in the cord blood bank but still contain enough cells for meaningful research and for which mothers’ research consent has been obtained.
It is a platform for supporting Open Data initiative of Government of Odisha, intends to publish datasets collected by them for public use. It also supports widely used file formats that are suitable for machine processing, thus gives avenues for many more innovative uses of Government Data in different perspective. This portal has been created under Software as A Service (SaaS) model of Open Government Data (OGD) Platform India of NIC. The data available in the portal are owned by various Departments/Organization of Government of Odisha. It follows principles on which data sharing and accessibility need to be based include: Openness, Flexibility, Transparency, Quality, Security and Machine-readable.
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The DRKS is an open access online register for clinical trials conducted in Germany, which allows all users to search, register and share information on clinical trials.
The world’s largest collection of TCR and BCR sequences. Easily incorporate millions of sequences worth of public data into your next papers and projects using immunoSEQ Analyzer. Construct your own projects, draw your own conclusions, and freely publish new discoveries.
The Swiss HIV Cohort Study (SHCS), established in 1988, is a systematic longitudinal study enrolling HIV-infected individuals in Switzerland. It is a collaboration of all Swiss University Hospital infectious disease outpatient clinics, two large cantonal hospitals, all with affiliated laboratories, and with affiliated smaller hospitals and private physicians carrying for HIV patients. The Swiss Mother and Child HIV Cohort Study (MoCHiV) is integrated into the SHCS. It aims at preventing mother to child transmission and enrolls HIV-infected pregnant women and their children. The SHCS involves practically all researchers being active in patient-oriented HIV research in Switzerland. The clinics can delegate recruitment of participants and follow-up visits to other outpatient clinics or to specialized private physicians, provided that the requirements of the protocol can be entirely fulfilled and controlled. The laboratories can contract other laboratories for some of the analyses.
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The mission of the platform is to enable access for academic projects towards experiments in high-throughput without loss of IP and on a cost basis, which does not restrict access towards HTS usage. The FMP hosts the central open access technology platform of EU-OPENSCREEN, the ChemBioNet and theHelmholtz-Initiative für Wirkstoffforschung, the Screening Unit. The Unit serves for systematic screening of large compound or genome-wide RNAi libraries with state-of-the-art equipment like automated microscopes and microfluidic systems. The Screening Unit is part of the Chemical Biology Platform of the FMP also supported by the MDC. See also: https://www.mdc-berlin.de/screening-unit