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The YODA Project is an effort by a group of academically-based clinical researchers to facilitate access to participant-level clinical research data and/or comprehensive reports of clinical research, such as full Clinical Study Reports (CSRs), a level of detail not customarily found in journal publications, with the aim of promoting scientific research that may advance science or lead to improvements in individual and public health and healthcare delivery. The YODA Project is guided by the following core principles, which reflect the overall mission of the project to promote open science by: Promoting the sharing of clinical research data to advance science and improve public health and healthcare, Promoting the responsible conduct of research, Ensuring good stewardship of clinical research data, and Protecting the rights of research participants
BioLINCC is the Biologic Specimen and Data Repository Coordinating Center. The center coordinates data and biospecimens from NHLBI-funded studies that are available for use in other approved studies. The center also creates teaching data sets from NHLBI-funded studies for use in training future biostatisticians.
Databrary is a data library for researchers to share research data and analytical tools with other investigators. It is a web-based repository for open sharing and preservation of video data and associated metadata in the area of behavioral sciences. The project aims to increase the openness in scientific research and dedicated to transforming the culture of science through building a community of researchers empowering them with an unprecedented set of tools for discovery. Databrary is complemented by Datavyu (an open source video-coding software).
The African Development Bank Group (AfDB) is committed to supporting statistical development in Africa as a sound basis for designing and managing effective development policies for reducing poverty on the continent. Reliable and timely data is critical to setting goals and targets as well as evaluating project impact. Reliable data constitutes the single most convincing way of getting the people involved in what their leaders and institutions are doing. It also helps them to get involved in the development process, thus giving them a sense of ownership of the entire development process. The AfDB has a large team of researchers who focus on the production of statistical data on economic and social situations. The data produced by the institution’s statistics department constitutes the background information in the Bank’s flagship development publications. Besides its own publication, the AfDB also finances studies in collaboration with its partners. The Statistics Department aims to stand as the primary source of relevant, reliable and timely data on African development processes, starting with the data generated from its current management of the Africa component of the International Comparison Program (ICP-Africa). The Department discharges its responsibilities through two divisions: The Economic and Social Statistics Division (ESTA1); The Statistical Capacity Building Division (ESTA2)
BBMRI-ERIC is a European research infrastructure for biobanking. We bring together all the main players from the biobanking field – researchers, biobankers, industry, and patients – to boost biomedical research. To that end, we offer quality management services, support with ethical, legal and societal issues, and a number of online tools and software solutions. Ultimately, our goal is to make new treatments possible. The Directory is a tool to share aggregate information about the biobanks that are willing external collaboration. It is based on the MIABIS 2.0 standard, which describes the samples and data in the biobanks at an aggregated level.