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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.
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DUnAs is the institutional research data repository of the University of Aveiro. This repository is intended to share, archive, preserve, cite, access, and explore research data produced in the university scientific research activities.
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National Human Brain Bank for Development and Function was originally established in 2012 by the Institute of Basic Medical Sciences, Chinese Academy of Medical Sciences as a public interest institution dedicated to the preservation and research of human brain tissues based on the volunteer donor station of Peking Union Medical College. In 2019, it was officially recognised by the Ministry of Science and Technology as a national science and technology resource platform: National Human Brain Bank for Development and Function. Since its establishment, the Concordia Brain Bank has accepted and preserved more than two hundred and seventy whole brain tissue samples. While conducting its own research on the standardisation of brain banks, neuropathology and various histologies related to human brain ageing and dementia, it has also developed and published the Standardised Operational Protocol for Human Brain Tissue Banks in China for more than ten universities in China, and has provided valuable human brain tissue samples for a number of research groups in our own institutions and other units in China, which has strongly supported brain science and brain disease research in China. As a national resource platform, we will continue to aim to support and lead brain science research in China and make positive contributions to maintaining brain health and defeating brain diseases.
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Veterinar – Electronic Repository of Research and Scientific Papers is the institutional digital repository of the University of Belgrade - Faculty of Veterinary Medicine. It provides open access to publications and other research outputs resulting from the projects implemented by the Faculty of Veterinary Medicine. The software platform of the repository is adapted to the modern standards applied in the dissemination of scientific publications and is compatible with international infrastructure in this field.
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The Institutional Repository of the Universidad Francisco José de Caldas RIUD is a tool where digital objects corresponding to the intellectual production of the University are deposited to protect, preserve, and disseminate.
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BExIS is the online data repository and information system of the Biodiversity Exploratories Project (BE). The BE is a German network of biodiversity related working groups from areas such as vegetation and soil science, zoology and forestry. Up to three years after data acquisition, the data use is restricted to members of the BE. Thereafter, the data is usually public available (https://www.bexis.uni-jena.de/ddm/publicsearch/index).
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RepoMed is the institutional repository of the Hannover Medical School (MHH) and is operated by the MHH Library. It serves to publish research results and scientific publications by researchers at Hannover Medical School.
The Research Collection is ETH Zurich's publication platform. It unites the functions of a university bibliography, an open access repository and a research data repository within one platform. Researchers who are affiliated with ETH Zurich, the Swiss Federal Institute of Technology, may deposit research data from all domains. They can publish data as a standalone publication, publish it as supplementary material for an article, dissertation or another text, share it with colleagues or a research group, or deposit it for archiving purposes. Research-data-specific features include flexible access rights settings, DOI registration and a DOI preview workflow, content previews for zip- and tar-containers, as well as download statistics and altmetrics for published data. All data uploaded to the Research Collection are also transferred to the ETH Data Archive, ETH Zurich’s long-term archive.
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
ResearchWorks Archive is the University of Washington’s digital repository (also known as “institutional repository”) for disseminating and preserving scholarly work. ResearchWorks Archive can accept any digital file format or content (examples include numerical datasets, photographs and diagrams, working papers, technical reports, pre-prints and post-prints of published articles).
The figshare service for the University of Sheffield allows researchers to store, share and publish research data. It helps the research data to be accessible by storing Metadata alongside datasets. Additionally, every uploaded item receives a Digital Object identifier (DOI), which allows the data to be citable and sustainable. If there are any ethical or copyright concerns about publishing a certain dataset, it is possible to publish the metadata associated with the dataset to help discoverability while sharing the data itself via a private channel through manual approval.
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Research Data Centres offer a secure access to detailed microdata from Statistics Canada's surveys, and to Canadian censuses' data, as well as to an increasing number of administrative data sets. The search engine was designed to help you find out more easily which dataset among all the surveys available in the RDCs best suits your research needs.
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OpARA (Open Access Repository and Archive) is the repository for digital research data of the TU Dresden (TUD) and the TU Bergakademie Freiberg (TUBAF). It offers researchers the possibility of archiving their digital research data and optionally making it accessible to third parties under an Open Access license.
All ADNI data are shared without embargo through the LONI Image and Data Archive (IDA), a secure research data repository. Interested scientists may obtain access to ADNI imaging, clinical, genomic, and biomarker data for the purposes of scientific investigation, teaching, or planning clinical research studies. "The Alzheimer’s Disease Neuroimaging Initiative (ADNI) unites researchers with study data as they work to define the progression of Alzheimer’s disease (AD). ADNI researchers collect, validate and utilize data, including MRI and PET images, genetics, cognitive tests, CSF and blood biomarkers as predictors of the disease. Study resources and data from the North American ADNI study are available through this website, including Alzheimer’s disease patients, mild cognitive impairment subjects, and elderly controls. "
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The University of Northern British Columbia Dataverse is a research data repository for research data from UNBC researchers. Files are held in a secure environment on Canadian servers. The platform makes it possible for researchers to deposit data, create appropriate metadata, and version documents as they work. Researchers can choose to make content available publicly, to specific individuals, or to keep it locked.
NACDA acquires and preserves data relevant to gerontological research, processing as needed to promote effective research use, disseminates them to researchers, and facilitates their use. By preserving and making available the largest library of electronic data on aging in the United States, NACDA offers opportunities for secondary analysis on major issues of scientific and policy relevance
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The Centre for Clinical Trials Cologne (Köln ZKS) aims to support all processes of clinical trials and the quality of patient-oriented clinical research in an academic environment. It supports doctors of University Hospital of Cologne, other clinics, study groups and professional associations in the design and conduct of clinical trials. For the pharmaceutical industry and contract research organizations, the ZKS Köln is a clinic near partner for medical research projects.
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Since 2004, the Leibniz Institute for Prevention Research and Epidemiology – BIPS has been working on the establishment and maintenance of the project-based German Pharmacoepidemiological Research Database (short GePaRD). GePaRD is based on claims data from statutory health insurance (SHI) providers and currently includes information on about 20 million persons who have been insured with one of the participating providers since 2004. Per data year, there is information on approximately 17% of the general population from all geographical regions of Germany.
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The SMU Dataverse is a research data repository for our faculty, students, and staff. Files are held in a secure environment on Canadian servers. Researchers can choose to make content available publicly, to specific individuals, or to keep it locked.
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UWinnipeg Research Data Repository accepts research data and datasets that have been created by researchers and research groups at the University of Winnipeg. Files are held in a secure environment on Canadian servers. The UWinnipeg Data Repository accepts finalized datasets that are ready for publication and sharing.
EarthWorks is a discovery tool for geospatial (a.k.a. GIS) data. It allows users to search and browse the GIS collections owned by Stanford University Libraries, as well as data collections from many other institutions. Data can be searched spatially, by manipulating a map; by keyword search; by selecting search limiting facets (e.g., limit to a given format type); or by combining these options.
The WashU Research Data repository accepts any publishable research data set, including textual, tabular, geospatial, imagery, computer code, or 3D data files, from researchers affiliated with Washington University in St. Louis. Datasets include metadata and are curated and assigned a DOI to align with FAIR data principles.
The range of CIRAD's research has given rise to numerous datasets and databases associating various types of data: primary (collected), secondary (analysed, aggregated, used for scientific articles, etc), qualitative and quantitative. These "collections" of research data are used for comparisons, to study processes and analyse change. They include: genetics and genomics data, data generated by trials and measurements (using laboratory instruments), data generated by modelling (interpolations, predictive models), long-term observation data (remote sensing, observatories, etc), data from surveys, cohorts, interviews with players.