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The Finnish Social Science Data Archive (FSD) is a national resource centre for social science research and teaching. FSD archives, promotes and disseminates digital research data for research, teaching and learning purposes. Data descriptions are published in Finnish and English on FSD’s service portal Aila Data Service, through which users also download data. Quantitative datasets are translated from Finnish into English on request, and a large number of datasets are available in English. All services are free of charge. FSD promotes transparency, accumulation and efficient reuse of scientific research as well as open access to research data. FSD is the Finnish Service Provider for CESSDA ERIC.
Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship (PROFILES)’ is a registry for the study of the physical and psychosocial impact of cancer and its treatment from a dynamic, growing population-based cohort of both short and long-term cancer survivors. Researchers from the Netherlands Comprehensive Cancer Centre and Tilburg University in Tilburg, The Netherlands, work together with medical specialists from national hospitals in order to setup different PROFILES studies, collect the necessary data, and present the results in scientific journals and (inter)national conferences.