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Found 26 result(s)
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.
ForestPlots.net is a web-accessible secure repository for forest plot inventories in South America, Africa and Asia. The database includes plot geographical information; location, taxonomic information and diameter measurements of trees inside each plot; and participants in plot establishment and re-measurement, including principal investigators, field assistants, students.
The N3C Data Enclave is a secure portal containing a very large and extensive set of harmonized COVID-19 clinical electronic health record (EHR) data. The data can be accessed through a secure cloud Enclave hosted by NCATS and cannot be downloaded due to regulatory control. Broad access is available to investigators at institutions that sign a Data Use Agreements and via Data Use Requests by investigators. The N3C is a unique open, reproducible, transparent, collaborative team science initiative to leverage sensitive clinical data to expedite COVID-19 discoveries and improve health outcomes.
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The RDSC provides researchers access to selected microdata from the Bundesbank's data records for independent and non-commercial scientific research projects on basis of the legal requirements. The RDSC is the mediator between the Bundesbank’s wide range of different micro data in various departments and – on the other side – researchers or analysts. In connection with this, the RDSC is responsible for the methodological improvement, the access of and the comprehensive documentation of the high-quality microdata. It also offers additional consultancy and support services to existing and prospective data users and satisfies data protection requirements. English version see: https://www.bundesbank.de/en/bundesbank/research/rdsc/research-data-and-service-centre-rdsc--869492
The Pennington/Louisiana NORC Biorepository is a collection of de-identified data from studies of human subjects conducted at Pennington Biomedical Research Center since 1980. The repository includes data from trials centered around obesity and nutrition and those funded by the National Institutes of Health, Department of Defense, United States Department of Agriculture, American Heart Association, American Diabetes Association and other government and non-profit organizations.
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The SHIP study´s main aims include the investigation of health in all its aspects and complexity involving the collection and assessment of data relevant to the prevalence and incidence of common, population-relevant diseases and their risk factors.
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CINES is the French national long-term preservation service provider for Higher Education and Research: more than 20 institutions (universities, librairies, labs) archive their digital heritage at CINES so that it's preserved over time in a secure, dedicated environment. This includes documents such as PhD theses or publications, digitized ancient/rare books, satellite imagery, 3D/vidéos/image galleries, datasets, etc.
ALSPAC is a longitudinal birth cohort study which enrolled pregnant women who were resident in one of three Bristol-based health districts in the former County of Avon with an expected delivery date between 1st April 1991 and 31st December 1992. Around 14,000 pregnant women were initially recruited. Detailed information has been collected on these women, their partners and subsequent children using self-completion questionnaires, data extraction from medical notes, linkage to routine information systems and from hands-on research clinics. Additional cohorts of participants have since been enrolled in their own right including fathers, siblings, children of the children and grandparents of the children. Ethical approval for the study was obtained from the ALSPAC Ethics and Law Committee (IRB00003312) and Local Research Ethics.
Yoda is a research data management service that enables researchers to deposit, share, publish and preserve large amounts of research data during all stages of a research project. This service is managed and supported by an interdisciplinary team of university employees. The software has been developed at Utrecht University and is used by multiple organisations, both in the Netherlands and abroad. Yoda publishes data packages via Datacite. To find data publications use: https://public.yoda.uu.nl/, or the Datacite search engine: https://commons.datacite.org/doi.org?query=client.uid:delft.uu
The Twenty-07 Study was set up in 1986 in order to investigate the reasons for differences in health by socio-economic circumstances, gender, area of residence, age, ethnic group, and family type. 4510 people are being followed for 20 years. The initial wave of data collection took place in 1987/8, when respondents were aged 15, 35 and 55. The final wave of data collection took place in 2007/08 when respondents were aged 35, 55 and 75. In this way the Twenty-07 Study provides us with unique opportunities to investigate both the changes in people's lives over 20 years and how they affect their health, and the differences in people's experiences at the same ages 20 years apart, and how these have different effects on their health.
In 2003, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at NIH established Data, Biosample, and Genetic Repositories to increase the impact of current and previously funded NIDDK studies by making their data and biospecimens available to the broader scientific community. These Repositories enable scientists not involved in the original study to test new hypotheses without any new data or biospecimen collection, and they provide the opportunity to pool data across several studies to increase the power of statistical analyses. In addition, most NIDDK-funded studies are collecting genetic biospecimens and carrying out high-throughput genotyping making it possible for other scientists to use Repository resources to match genotypes to phenotypes and to perform informative genetic analyses.
Born in Bradford is one of the biggest and most important medical research studies undertaken in the UK. The project started in 2007 and is looking to answer questions about our health by tracking the lives of 13,500 babies and their families and will provide information for studies across the UK and around the world. The aim of Born in Bradford is to find out more about the causes of childhood illness by studying children from all cultures and backgrounds as their lives unfold.
So.Da.Net network, following the Social Data Bank (SDB) of the National Centre for Social Research (EKKE) that pre-existed, in a time frame of five years has been linked and closely collaborated with the european data archives. EKKE through SDB has participated to the European Consortium of Social Science Data Archives (CESSDA ERIC) since 2000. The national research network Sodanet_GR has been formed in 2012 and is consisted of the following 7 organisations: 1) National Centre for Social Research (EKKE) – Social Data Bank 2) University of the Aegean – Department of Sociology 3) National & Kapodistrian University of Athens – Department of Political Science & Public Administration 4) Panteion University – Department of Political Science & History 5) University of Peloponnese – Department of Social & Educational Policy 6) Democritus University of Trace – Department of Social Administration & Political Science 7) University of Crete – Department of Sociology . The So.Da.Net network is the Greek research infrastructure for the social sciences. So.Da.Net supports multidisciplinary research and promotes the acquisition, exchange, processing as well as dissemination of data deriving from and related to social science research.
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KiGGS is a long-term study conducted by the Robert Koch Institute (RKI) on the health of children and adolescents in Germany. The study repeatedly supplies data, representative of the country as a whole, on the health of under 18-year-olds. In addition, the children and adolescents of the first KiGGS study are repeatedly invited, and they continue to be monitored right into their adulthood.
<<<!!!<<<The IGETS data base at GFZ Potsdam http://www.re3data.org/repository/r3d100010300 continues the activities of the International Center for Earth Tides (ICET), in particular, in collecting, archiving and distributing Earth tide records from long series of gravimeters, tiltmeters, strainmeters and other geodynamic sensors. >>>!!!>>> The ICET Data Bank contains results from 360 tidal gravity stations: hourly values, main tidal waves obtained by least squares analyses, residual vectors, oceanic attraction and loading vectors. The Data Bank contains also data from tiltmeters and extensometers. ICET is responsible for the Information System and Data Center of the Global Geodynamic Project (GGP). The tasks ascribed to ICET are : to collect all available measurements of Earth tides (which is its task as World Data Centre C), to evaluate these data by convenient methods of analysis in order to reduce the very large amount of measurements to a limited number of parameters which should contain all the desired and needed geophysical information, to compare the data from different instruments and different stations distributed all over the world, evaluate their precision and accuracy from the point of view of internal errors as well as external errors, to help to solve the basic problem of calibrations and to organize reference stations or build reference calibration devices, to fill gaps in information or data as far as feasible, to build a data bank allowing immediate and easy comparison of Earth tide parameters with different Earth models and other geodetical and geophysical parameters like geographical position, Bouguer anomaly, crustal thickness and age, heat flow, ... to ensure a broad diffusion of the results and information to all interested laboratories and individual scientists.
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WHIP is a database of individual work histories, based on Inps administrative archives. The reference population is made up by all the people – Italian and foreign – who have worked in Italy even only for only a part of their working career. A large representative sample has been extracted from this population: in the standard file the sampling coefficient is about 1: 180, for a dynamic population of about 370,000 people (figures will be doubled in the full edition). For each of these people the main episodes of their working careers are observed. The complete list of observations includes: private employee working contracts, atypical contracts, self-employment activities as artisan, trader and some activities as freelancer, retirement spells, as well as non-working spells in which the individual received social benefits, like unemployment subsidies or mobility benefits. The workers for whom activity is not observed in WHIP are those who worked in the public sector or as freelancers (lawyers or notaries) – who have an autonomous security fund. The WHIP section concerning employee contracts is a Linked Employer Employee Database: in addition to the data about the contract, thanks to a linkage with the Inps Firm Observatory, data concerning the firm in which the worker is employed is also available.
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The National Forest Inventory (NFI) is a collaborative effort involving federal, provincial and territorial government agencies. They monitor a network of twenty thousand sampling points across Canada on an ongoing basis to provide information on the state of Canada's forests and a continuous record of forest change. They provide data and products to forest science researchers, forest policy decision-makers and interested stakeholders.
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The FDZ-BO at DIW Berlin is a central archive for quantitative and qualitative operational and organizational data. It archives these, informs about their existence and provides datasets for secondary analytical purposes. The archiving of studies and datasets ensures long-term security and long-term availability of the data. In consultation with the responsible scientists, access to individual datasets is made possible as scientific use files, via remote data processing or as part of guest stays. The FDZ-BO offers detailed information on current research projects and develops concepts for research data management of organizational data. The study portal (public in March 2019) provides an overview of existing studies in the field of business and organizational research: content, methodology, information on data and data availability information on how to gain access to the data.
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EMS is the BC Ministry of Environment's primary monitoring data repository. The system was designed to capture data covering physical/chemical and biological analyses performed on water, air, solid waste discharges and ambient monitoring sites throughout the province. It also contains related quality assurance data. Samples are collected by either ministry staff or permittees under the Environmental Management Act and then analyzed in public or private sector laboratories. The majority of such monitoring data is entered into EMS electronically via Electronic Data Transfer (EDT). EMS data is typically available in formatted hard copy reports or electronically in comma delimited (e.g., .csv) files as: Monitoring location-related data, Sample and results-related data. Direct access to EMS is restricted to ministry staff, however public access is available upon request through EMS Web Reporting.
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The Queen's Research Data Centre is a member of the Canadian Research Data Centre Network (CRDCN) that provides researchers with access to microdata 'masterfiles' from population and health surveys. Access to the RDC is limited to those with projects approved by Statistics Canada. Before applying to an RDC, you will have to show that your research cannot be conducted using Public Use Microdata Files (PUMFs) available through the Data Liberation Initiative (DLI). Access to DLI PUMFS at Queen's is available through the Social Science Data Centre, using the ODESI data portal.
The ACEnano Knowledge Infrastructure facilitates access and sharing of methodology applied in nanosafety, starting with nanomaterials characterisation protocols developed or optimised within the ACEnano project.
The Swiss HIV Cohort Study (SHCS), established in 1988, is a systematic longitudinal study enrolling HIV-infected individuals in Switzerland. It is a collaboration of all Swiss University Hospital infectious disease outpatient clinics, two large cantonal hospitals, all with affiliated laboratories, and with affiliated smaller hospitals and private physicians carrying for HIV patients. The Swiss Mother and Child HIV Cohort Study (MoCHiV) is integrated into the SHCS. It aims at preventing mother to child transmission and enrolls HIV-infected pregnant women and their children. The SHCS involves practically all researchers being active in patient-oriented HIV research in Switzerland. The clinics can delegate recruitment of participants and follow-up visits to other outpatient clinics or to specialized private physicians, provided that the requirements of the protocol can be entirely fulfilled and controlled. The laboratories can contract other laboratories for some of the analyses.