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Found 15 result(s)

Clinical data repository

CDR

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The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.

National COVID Cohort Collaborative

National COVID Cohort Collaborative Data Enclave

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The N3C Data Enclave is a secure portal containing a very large and extensive set of harmonized COVID-19 clinical electronic health record (EHR) data. The data can be accessed through a secure cloud Enclave hosted by NCATS and cannot be downloaded due to regulatory control. Broad access is available to investigators at institutions that sign a Data Use Agreements and via Data Use Requests by investigators. The N3C is a unique open, reproducible, transparent, collaborative team science initiative to leverage sensitive clinical data to expedite COVID-19 discoveries and improve health outcomes.

BIH / Charité Virtual Research Environment

Berlin Institute of Health / Charité Virtual Research Environment

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The Virtual Research Environment (VRE) is an open-source data management platform that enables medical researchers to store, process and share data in compliance with the European Union (EU) General Data Protection Regulation (GDPR). The VRE addresses the present lack of digital research data infrastructures fulfilling the need for (a) data protection for sensitive data, (b) capability to process complex data such as radiologic imaging, (c) flexibility for creating own processing workflows, (d) access to high performance computing. The platform promotes FAIR data principles and reduces barriers to biomedical research and innovation. The VRE offers a web portal with graphical and command-line interfaces, segregated data zones and organizational measures for lawful data onboarding, isolated computing environments where large teams can collaboratively process sensitive data privately, analytics workbench tools for processing, analyzing, and visualizing large datasets, automated ingestion of hospital data sources, project-specific data warehouses for structured storage and retrieval, graph databases to capture and query ontology-based metadata, provenance tracking, version control, and support for automated data extraction and indexing. The VRE is based on a modular and extendable state-of-the art cloud computing framework, a RESTful API, open developer meetings, hackathons, and comprehensive documentation for users, developers, and administrators. The VRE with its concerted technical and organizational measures can be adopted by other research communities and thus facilitates the development of a co-evolving interoperable platform ecosystem with an active research community.

PAC - Archiving Platform CINES

PAC - Plateforme d'Archivage au CINES

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CINES is the French national long-term preservation service provider for Higher Education and Research: more than 20 institutions (universities, librairies, labs) archive their digital heritage at CINES so that it's preserved over time in a secure, dedicated environment. This includes documents such as PhD theses or publications, digitized ancient/rare books, satellite imagery, 3D/vidéos/image galleries, datasets, etc.

ECCAD - the GEIA database

Emissions of atmospheric Compounds & Compilation of Ancillary Data

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The main goal of the ECCAD project is to provide scientific and policy users with datasets of surface emissions of atmospheric compounds, and ancillary data, i.e. data required to estimate or quantify surface emissions. The supply of ancillary data - such as maps of population density, maps of fires spots, burnt areas, land cover - could help improve and encourage the development of new emissions datasets. ECCAD offers: Access to global and regional emission inventories and ancillary data, in a standardized format Quick visualization of emission and ancillary data Rationalization of the use of input data in algorithms or emission models Analysis and comparison of emissions datasets and ancillary data Tools for the evaluation of emissions and ancillary data ECCAD is a dynamical and interactive database, providing the most up to date datasets including data used within ongoing projects. Users are welcome to add their own datasets, or have their regional masks included in order to use ECCAD tools.

Social Data Network

The Greek research infrastructure for social sciences

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So.Da.Net network, following the Social Data Bank (SDB) of the National Centre for Social Research (EKKE) that pre-existed, in a time frame of five years has been linked and closely collaborated with the european data archives. EKKE through SDB has participated to the European Consortium of Social Science Data Archives (CESSDA ERIC) since 2000. The national research network Sodanet_GR has been formed in 2012 and is consisted of the following 7 organisations: 1) National Centre for Social Research (EKKE) – Social Data Bank 2) University of the Aegean – Department of Sociology 3) National & Kapodistrian University of Athens – Department of Political Science & Public Administration 4) Panteion University – Department of Political Science & History 5) University of Peloponnese – Department of Social & Educational Policy 6) Democritus University of Trace – Department of Social Administration & Political Science 7) University of Crete – Department of Sociology . The So.Da.Net network is the Greek research infrastructure for the social sciences. So.Da.Net supports multidisciplinary research and promotes the acquisition, exchange, processing as well as dissemination of data deriving from and related to social science research.

Datenbank Gesprochenes Deutsch

Database for Spoken German

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The "Database for Spoken German (DGD)" is a corpus management system in the program area Oral Corpora of the Institute for German Language (IDS). It has been online since the beginning of 2012 and since mid-2014 replaces the spoken German database, which was developed in the "Deutsches Spracharchiv (DSAv)" of the IDS. After single registration, the DGD offers external users a web-based access to selected parts of the collection of the "Archive Spoken German (AGD)" for use in research and teaching. The selection of the data for external use depends on the consent of the respective data provider, who in turn must have the appropriate usage and exploitation rights. Also relevant to the selection are certain protection needs of the archive. The Archive for Spoken German (AGD) collects and archives data of spoken German in interactions (conversation corpora) and data of domestic and non-domestic varieties of German (variation corpora). Currently, the AGD hosts around 50 corpora comprising more than 15000 audio and 500 video recordings amounting to around 5000 hours of recorded material with more than 7000 transcripts. With the Research and Teaching Corpus of Spoken German (FOLK) the AGD is also compiling an extensive German conversation corpus of its own. !!! Access to data of Datenbank Gesprochenes Deutsch (DGD) is also provided by: IDS Repository https://www.re3data.org/repository/r3d100010382 !!!

Queen's Research Data Centre

QRDC

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The Queen's Research Data Centre is a member of the Canadian Research Data Centre Network (CRDCN) that provides researchers with access to microdata 'masterfiles' from population and health surveys. Access to the RDC is limited to those with projects approved by Statistics Canada. Before applying to an RDC, you will have to show that your research cannot be conducted using Public Use Microdata Files (PUMFs) available through the Data Liberation Initiative (DLI). Access to DLI PUMFS at Queen's is available through the Social Science Data Centre, using the ODESI data portal.

Laboratory of Neuroimaging Image & Data Archive

LONI Image & Data Archive

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LONI’s Image and Data Archive (IDA) is a secure data archiving system. The IDA uses a robust infrastructure to provide researchers with a flexible and simple interface for de-identifying, searching, retrieving, converting, and disseminating their biomedical data. With thousands of investigators across the globe and more than 21 million data downloads to data, the IDA guarantees reliability with a fault-tolerant network comprising multiple switches, routers, and Internet connections to prevent system failure.

Cancer Cell Line Encyclopedia

CCLE

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The Cancer Cell Line Encyclopedia project is a collaboration between the Broad Institute, and the Novartis Institutes for Biomedical Research and its Genomics Institute of the Novartis Research Foundation to conduct a detailed genetic and pharmacologic characterization of a large panel of human cancer models, to develop integrated computational analyses that link distinct pharmacologic vulnerabilities to genomic patterns and to translate cell line integrative genomics into cancer patient stratification. The CCLE provides public access to genomic data, analysis and visualization for about 1000 cell lines.

Population Data BC

PopData

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Population Data BC (PopData) is a multi-university, data and education resource facilitating interdisciplinary research on the determinants of human health, well-being and development. Providing a range of services to researchers and data providers, PopData strives to ensure that researchers have timely access to the data and training they need to address research questions on population health. Research using these data informs policy-making and leads to healthier communities.

HilData

HILDEonline

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HilData is registered by Hildesheim University Library, The access is via registration to the data and to the repository. Research data is with regards to educational science. Research data are sensitive and cannot be made fully open. HILDE Online is integrated in HilData: https://www.uni-hildesheim.de/celeb/projekte/fallarchiv-hilde/hildeonline-streaming-server/ HilData is working on its metadata (exposing metadata via interfaces) w.r.t. the FAIR principles and data citation. HilData and HILDE Online provide long-term storage and access to research data. The research data repository provides restricted access to its data. The research data repository uses DOI to make its provided data persistent, unique and citable.

eKlima

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>>>!!!<<< As stated 2021-06-28 eklima is no longer available >>>!!!<<<

Gateway to Global Aging Data

RAND Survey Meta Data Repository

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The Gateway to Global Aging Data is a platform for population survey data on aging around the world. This site offers a digital library of survey questions, a search engine for finding comparable questions across surveys, and identically defined variables for cross-country analysis. The Survey Meta Data Repository provides Health and Retirement Study metadata of family surveys. Survey Meta Data Repository primarily provides access to survey metadata so researchers can compare survey formats, types and identically defined variables. Additional resources include tools for cross-country analysis, general statistics by country and year, survey question library, and tools for comparing questions across the surveys. Datasets are in Stata format; users must register and request datasets.

Coscine

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Coscine is a web-based RDM platform for all kind of generic research data that was developed at RWTH Aachen University. It enables the storage, management and archiving for ten years of research and metadata generated in the context of research projects. The platform also promotes cooperation across organizational boundaries, as researchers can log in either via their organization via SSO or via ORCID. To enable meaningful metadata management for all research areas, Coscine allows flexible description with metadata based on established technologies (SHACL/RDF). The platform is designed to make warm/used/active data FAIR.