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Found 6 result(s)

Federal Interagency Traumatic Brain Injury Research Informatics System

FITBIR

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The Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system was developed to share data across the entire TBI research field and to facilitate collaboration between laboratories, as well as interconnectivity with other informatics platforms. Sharing data, methodologies, and associated tools, rather than summaries or interpretations of this information, can accelerate research progress by allowing re-analysis of data, as well as re-aggregation, integration, and rigorous comparison with other data, tools, and methods. This community-wide sharing requires common data definitions and standards, as well as comprehensive and coherent informatics approaches.

Genomic Data Commons

GDC

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The NCI's Genomic Data Commons (GDC) provides the cancer research community with a unified data repository that enables data sharing across cancer genomic studies in support of precision medicine. The GDC obtains validated datasets from NCI programs in which the strategies for tissue collection couples quantity with high quality. Tools are provided to guide data submissions by researchers and institutions.

OpenHeritage 3D

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As 3D and reality capture strategies for heritage documentation become more widespread and available, there has emerged a growing need to assist with guiding and facilitating accessibility to data, while maintaining scientific rigor, cultural and ethical sensitivity, discoverability, and archival standards. In response to these areas of need, The Open Heritage 3D Alliance (OHA) has developed as an advisory group governing the Open Heritage 3D initiative. This collaborative advisory group are among some of the earliest adopters of 3D heritage documentation technologies, and offer first-hand guidance for best practices in data management, sharing, and dissemination approaches for 3D cultural heritage projects. The founding members of the OHA, consist of experts and organizational leaders from CyArk, Historic Environment Scotland, and the University of South Florida Libraries, who together have significant repositories of legacy and on-going 3D research and documentation projects. These groups offer unique insight into not only the best practices for 3D data capture and sharing, but also have come together around concerns dealing with standards, formats, approach, ethics, and archive commitment. Together, the OHA has begun the journey to provide open access to cultural heritage 3D data, while maintaining integrity, security, and standards relating to discoverable dissemination. Together, the OHA will work to provide democratized access to primary heritage 3D data submitted from donors and organizations, and will help to facilitate an operation platform, archive, and organization of resources into the future.

Novartis Clinical Trial Results Database

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Novartis provides the technical results and trial summaries for patients from Phase 1 through 4 interventional trials for innovative products within one year of trial completion. A trial summary for patients is a trial result written in easier to understand language than the technical results.

GWAS Central

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GWAS Central (previously the Human Genome Variation database of Genotype-to-Phenotype information) is a database of summary level findings from genetic association studies, both large and small. We actively gather datasets from public domain projects, and encourage direct data submission from the community.

Rolling Deck to Repository

R2R

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The Rolling Deck to Repository (R2R) Program provides a comprehensive shore-side data management program for a suite of routine underway geophysical, water column, and atmospheric sensor data collected on vessels of the academic research fleet. R2R also ensures data are submitted to the NOAA National Centers for Environmental Information for long-term preservation.