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Found 20 result(s)

Zentrale Biomaterialbank der Charité

Central Biomaterial Bank Charité

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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.

National Cancer Data Base

NCDB

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The nationally recognized National Cancer Database (NCDB)—jointly sponsored by the American College of Surgeons and the American Cancer Society—is a clinical oncology database sourced from hospital registry data that are collected in more than 1,500 Commission on Cancer (CoC)-accredited facilities. NCDB data are used to analyze and track patients with malignant neoplastic diseases, their treatments, and outcomes. Data represent more than 70 percent of newly diagnosed cancer cases nationwide and more than 34 million historical records.

Collaborative Research Centre Transregio 228 Database

TRR228DB

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The TRR228DB is the project-database of the Collaborative Research Centre 228 "Future Rural Africa: Future-making and social-ecological transformation" (CRC/Transregio 228, https://www.crc228.de) funded by the German Research Foundation (DFG, German Research Foundation – Project number 328966760). The project-database is a new implementation of the TR32DB and online since 2018. It handles all data including metadata, which are created by the involved project participants from several institutions (e.g. Universities of Cologne and Bonn) and research fields (e.g. anthropology, agroeconomics, ecology, ethnology, geography, politics and soil sciences). The data is resulting from several field campaigns, interviews, surveys, remote sensing, laboratory studies and modelling approaches. Furthermore, outcomes of the scientists such as publications, conference contributions, PhD reports and corresponding images are collected.

WorldWide Antimalarial Resistance Network

WWARN

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The WorldWide Antimalarial Resistance Network (WWARN) is a collaborative platform generating innovative resources and reliable evidence to inform the malaria community on the factors affecting the efficacy of antimalarial medicines. Access to data is provided through diverse Tools and Resources: WWARN Explorer, Molecular Surveyor K13 Methodology, Molecular Surveyor pfmdr1 & pfcrt, Molecular Surveyor dhfr & dhps.

PAIN repository

Pain and Interoception Imaging Network Repository

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The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.

CARMEN

Code analysis, repository & modelling for e-neuroscience

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<<<!!!<<< This repository is no longer available. >>>!!!>>>

Canadian Research Data Centre Network

CRDCN

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Research Data Centres offer a secure access to detailed microdata from Statistics Canada's surveys, and to Canadian censuses' data, as well as to an increasing number of administrative data sets. The search engine was designed to help you find out more easily which dataset among all the surveys available in the RDCs best suits your research needs.

Alzheimer's Disease Neuroimaging Initiative Image and Data Archive

ADNI Image and Data Archive

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All ADNI data are shared without embargo through the LONI Image and Data Archive (IDA), a secure research data repository. Interested scientists may obtain access to ADNI imaging, clinical, genomic, and biomarker data for the purposes of scientific investigation, teaching, or planning clinical research studies. "The Alzheimer’s Disease Neuroimaging Initiative (ADNI) unites researchers with study data as they work to define the progression of Alzheimer’s disease (AD). ADNI researchers collect, validate and utilize data, including MRI and PET images, genetics, cognitive tests, CSF and blood biomarkers as predictors of the disease. Study resources and data from the North American ADNI study are available through this website, including Alzheimer’s disease patients, mild cognitive impairment subjects, and elderly controls. "

National Archive of Computerized Data on Aging

NACDA

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NACDA acquires and preserves data relevant to gerontological research, processing as needed to promote effective research use, disseminates them to researchers, and facilitates their use. By preserving and making available the largest library of electronic data on aging in the United States, NACDA offers opportunities for secondary analysis on major issues of scientific and policy relevance

Brown Digital Repository

BDR

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The Brown Digital Repository (BDR) is a place to gather, index, store, preserve, and make available digital assets produced via the scholarly, instructional, research, and administrative activities at Brown.

CaPSURE

Cancer of the Prostate Strategic Urologic Research Endeavor

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CaPSURE™ is a longitudinal, observational study of approximately 15,000 men with all stages of biopsy-proven prostate cancer. Patients have enrolled at 43 community urology practices, academic medical centers, and VA hospitals throughout the United States since 1995. CEASAR stands for Comparative Effectiveness Analysis of Surgery and Radiation. The ongoing goal of CEASAR is to help learn more about what prostate cancer treatments work best, for which patients, in whose hands. There are currently about 3,600 men with a prostate cancer diagnosis participating in CEASAR. Three rounds of surveys have been completed, with the first carried out in the spring of 2010. We are currently in the process of conducting our fourth survey with the same group of men in our study. This survey, our Three Year Follow-up, will occur throughout the summer of 2014.

ScienceData

Data store by DTU - the Technical University of Denmark

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sciencedata.dk is a research data store provided by DTU, the Danish Technical University, specifically aimed at researchers and scientists at Danish academic institutions. The service is intended for working with and sharing active research data as well as for safekeeping of large datasets. The data can be accessed and manipulated via a web interface, synchronization clients, file transfer clients or the command line. The service is built on and with open-source software from the ground up: FreeBSD, ZFS, Apache, PHP, ownCloud/Nextcloud. DTU is actively engaged in community efforts on developing research-specific functionality for data stores. Our servers are attached directly to the 10-Gigabit backbone of "Forskningsnettet" (the National Research and Education Network of Denmark) - implying that up and download speed from Danish academic institutions is in principle comparable to those of an external USB hard drive. Data store for research data allowing private sharing and sharing via links / persistent URLs.

Collaborative Research Centre Transregio 32 Database

TR32DB

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In the framework of the Collaborative Research Centre/Transregio 32 ‘Patterns in Soil-Vegetation-Atmosphere Systems: Monitoring, Modelling, and Data Assimilation’ (CRC/TR32, www.tr32.de), funded by the German Research Foundation from 2007 to 2018, a RDM system was self-designed and implemented. The so-called CRC/TR32 project database (TR32DB, www.tr32db.de) is operating online since early 2008. The TR32DB handles all data including metadata, which are created by the involved project participants from several institutions (e.g. Universities of Cologne, Bonn, Aachen, and the Research Centre Jülich) and research fields (e.g. soil and plant sciences, hydrology, geography, geophysics, meteorology, remote sensing). The data is resulting from several field measurement campaigns, meteorological monitoring, remote sensing, laboratory studies and modelling approaches. Furthermore, outcomes of the scientists such as publications, conference contributions, PhD reports and corresponding images are collected in the TR32DB.

National Addiction & HIV Data Archive Program

NAHDAP

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NAHDAP acquires, preserves and disseminates data relevant to drug addiction and HIV research. By preserving and making available an easily accessible library of electronic data on drug addiction and HIV infection in the United States, NAHDAP offers scholars the opportunity to conduct secondary analysis on major issues of social and behavioral sciences and public policy

Bicocca Open Archive Research Data

BOARD

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BOARD (Bicocca Open Archive Research Data) is the institutional data repository of the University of Milano-Bicocca. BOARD is an open, free-to-use research data repository, which enables members of University of Milano-Bicocca to make their research data publicly available. By depositing their research data in BOARD researchers can: - Make their research data citable - Share their data privately or publicly - Ensure long-term storage for their data - Keep access to all versions - Link their article to their data

Data Sharing for Demographic Research

A data archive for demography and population sciences

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Data Sharing for Demographic Research (DSDR) aims to serve the demographic community by archiving, preserving, and and disseminating data relevant for population studies

Research Data Oxford

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Research data management is a general term covering how you organize, structure, store, and care for the information used or generated during a research project. The University of Oxford policy mandates the preservation of research data and records for a minimum of 3 years after publication. A place to securely hold digital research materials (data) of any sort along with documentation that helps explain what they are and how to use them (metadata). The application of consistent archiving policies, preservation techniques and discovery tools, further increases the long term availability and usefulness of the data. This is the main difference between storage and archiving of data. ORA-Data is the University of Oxford’s research data archive https://www.re3data.org/repository/r3d100011230

Whitehall II Study

Stress and Health Study

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The Whitehall II study was established to explore the relationship between socio-economic status, stress and cardiovascular disease. A cohort of 10,308 participants aged 35-55, of whom 3,413 were women and 6,895 men, was recruited from the British Civil Service in 1985. Since this first wave of data collection, self-completion questionnaires and clinical data have been collected from the cohort every two to five years with a high level of participation. Data collection is intended to continue until 2030.

SimTK

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SimTK is a free project-hosting platform for the biomedical computation community that enables researchers to easily share their software, data, and models and provides the infrastructure so they can support and grow a community around their projects. It has over 126.656 members, hosts 1.648 projects from researchers around the world, and has had more than 2.095.783 files downloaded from it. Individuals have created SimTK projects to meet publisher and funding agencies’ software and data sharing requirements, run scientific challenges, create a collection of their community’s resources, and much more.

Fairdata IDA Research Data Storage Service

IDA Research Data Storage Service

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Fairdata IDA is a research data storage service that provides secure storage for research data. The Fairdata services are a group of nationally developed Finnish ICT services for managing research data, especially in the later phases of the research life cycle (sharing, publishing, and preserving). Development of research data management infrastructure has been identified as an important step in enabling implementation of the FAIR principles. The Fairdata services are funded by the Finnish Ministry of Education and Culture, and developed and maintained by CSC IT Center for Science. The services consist of the following service components: IDA – Research Data Storage; Etsin – Research Data Finder; Qvain – Research Dataset Metadata Tool; Metax – Metadata Warehouse; AVAA – Dynamic Data Publishing Platform and the Digital Preservation Service for Research Data (including management and packaging). The services also provide means for applying for and granting permits to use restricted access datasets. The service is offered free of charge for its users. The services are available to the research community in accordance with the applicable usage policy. Minedu offers access to research data storage service IDA to Finnish higher education institutions, state research institutes and projects funded by the Academy of Finland. Minedu may also grant separate access or storage capacity to the service. Finnish higher education institutions and research institutes may distribute IDA storage capacity to actors within the Finnish research system, within the limits of their usage shares. The service is intended for storing research data and materials related to it. The data stored in the service is available to all project users. The users mark their data to be persistently stored (“Frozen”) in the service. All project members may make the “Frozen” data and related metadata publicly accessible by using the other aforementioned Fairdata services. The data in the service is stored in Finland. IDA service stores the data stored by organisations projects continuously or until it’s transferred to digital preservation, provided that the Terms of Use are met. The owners of the data decide on the openness and usage policies for their own data. User organisations are offered support and guidance on using the service.