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Found 22 result(s)

The Health Improvement Network

THIN

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THIN is a medical data collection scheme that collects anonymised patient data from its members through the healthcare software Vision. The UK Primary Care database contains longitudinal patient records for approximately 6% of the UK Population. The anonymised data collection, which goes back to 1994, is nationally representative of the UK population.

45 and Up Study

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More than a quarter of a million people — one in 10 NSW men and women aged over 45 — have been recruited to our 45 and Up Study, the largest ongoing study of healthy ageing in the Southern Hemisphere. The baseline information collected from all of our participants is available in the Study’s Data Book. This information, which researchers use as the basis for their analyses, contains information on key variables such as height, weight, smoking status, family history of disease and levels of physical activity. By following such a large group of people over the long term, we are developing a world-class research resource that can be used to boost our understanding of how Australians are ageing. This will answer important health and quality-of-life questions and help manage and prevent illness through improved knowledge of conditions such as cancer, heart disease, depression, obesity and diabetes.

Nord-Trondelag Health Study

Helseundersokelsen i Nord-Trondelag

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The Trøndelag Health Study (The HUNT Study) is one of the largest health studies ever performed. It is a unique database of questionnaire data, clinical measurements and samples from a county’s inhabitants from 1984 onwards. The HUNT Study is well-known in the county of Trøndelag, and its inhabitants have a generally positive attitude to participation and health research resulting from the study. HUNT has high participation rates, providing a good base for further health surveys in the county and an excellent research environment. Today, HUNT Research Centre has a database with information on 230,000 people. Approximately 300 national and international research projects are currently using the samples and data from HUNTs collection.

EPIC study

European Prospective Investigation into Cancer and Nutrition Study

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The European Prospective Investigation into Cancer and Nutrition (EPIC) study is one of the largest cohort studies in the world, with more than half a million (521 000) participants recruited across 10 European countries and followed for almost 15 years. EPIC was designed to investigate the relationships between diet, nutritional status, lifestyle and environmental factors, and the incidence of cancer and other chronic diseases. EPIC investigators are active in all fields of epidemiology, and important contributions have been made in nutritional epidemiology using biomarker analysis and questionnaire information, as well as genetic and lifestyle investigations.

Knoema

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Knoema is a knowledge platform. The basic idea is to connect data with analytical and presentation tools. As a result, we end with one uniformed platform for users to access, present and share data-driven content. Within Knoema, we capture most aspects of a typical data use cycle: accessing data from multiple sources, bringing relevant indicators into a common space, visualizing figures, applying analytical functions, creating a set of dashboards, and presenting the outcome.

Aberdeen Birth Cohorts

1921 Birth Cohort, 1936 Birth Cohort, Children of the 1950s

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The University has followed all of the children born in Aberdeen in 1921, 1936, and 1950-1956 as they grow and age. Collectively these groups are known as the ABERDEEN BIRTH COHORTS, and are a jewel in the crown of Scottish health research and have helped to advance our understanding of aging well. The Children of the 1950s study is a population-based resource for the study of biological and social influences on health across the life-course and between generations.

Danish National Birth Cohort

DNBC

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Exposures in the period from conception to early childhood - including fetal growth, cell division, and organ functioning - may have long-lasting impact on health and disease susceptibility. To investigate these issues the Danish National Birth Cohort (Better health in generations) was established. A large cohort of pregnant women with long-term follow-up of the offspring was the obvious choice because many of the exposures of interest cannot be reconstructed with suffcient validity back in time. The study needed to be large, and the aim was to recruit 100,000 women early in pregnancy, and to continue follow-up for decades. Exposure information was collected by computer-assisted telephone interviews with the women twice during pregnancy and when their children were six and 18 months old. Participants were also asked to fill in a self-administered food frequency questionnaire in mid-pregnancy. Furthermore, a biological bank has been set up with blood taken from the mother twice during pregnancy and blood from theumbilical cord taken shortly after birth.

Work With Data

The Data Library

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Work With Data functions as a data library, collecting data from multiple reliable sources and merging them altogether into one database. It focuses on access through insights, datasets and api.

Signature Bank

Banque Signature

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One of the world’s largest banks of biological, psychosocial and clinical data on people suffering from mental health problems. The Signature center systematically collects biological, psychosocial and clinical indicators from patients admitted to the psychiatric emergency and at four points throughout their journey in the hospital: upon arrival to the emergency room (state of crisis), at the end of their hospital stay, as well as at the beginning and the end of outpatient treatment. For all hospital clients who agree to participate, blood specimens are collected for the purpose of measuring metabolic, genetic, toxic and infectious biomarkers, while saliva samples are collected to measure sex hormones and hair samples are collected to measure stress hormones. Questionnaire has been selected to cover important dimensional aspects of mental illness such as Behaviour and Cognition (Psychosis, Depression, Anxiety, Impulsiveness, Aggression, Suicide, Addiction, Sleep),Socio-demographic Profile (Spiritual beliefs, Social functioning, Childhood experiences, Demographic, Family background) and Medical Data (Medication, Diagnosis, Long-term health, RAMQ data). On 2016, May there are more than 1150 participants and 400 for the longitudinal Follow-Up

Community Data Program

CDP

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The Community Data Program (CDP) is a membership-based community development initiative open to any Canadian public, non-profit or community sector organization with a local service delivery or public policy mandate. The program facilitates access to the evidence needed to tell our stories and inform effective and responsive policy and program design and implementation. The CDP makes data accessible and useful for all members with training and capacity building resources. Through its vibrant network, the CDP facilitates and supports dialogue and the sharing of best practices in the use of community data. The CDP has emerged as a unique Canada-wide platform for generating information, convening and collaborating.

Future of Families and Child Wellbeing Study

FFCWS

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The Fragile Families and Child Wellbeing Study changed its name to The Future of Families and Child Wellbeing Study (FFCWS). Note that all documentation issued prior to January 2023 contains the study’s former name. Any further reference to FFCWS should kindly observe this name change. The Fragile Families & Child Wellbeing Study is following a cohort of nearly 5,000 children born in large U.S. cities between 1998 and 2000 (roughly three-quarters of whom were born to unmarried parents). We refer to unmarried parents and their children as “fragile families” to underscore that they are families and that they are at greater risk of breaking up and living in poverty than more traditional families. The core Study was originally designed to primarily address four questions of great interest to researchers and policy makers: (1) What are the conditions and capabilities of unmarried parents, especially fathers?; (2) What is the nature of the relationships between unmarried parents?; (3) How do children born into these families fare?; and (4) How do policies and environmental conditions affect families and children?

HSRC Research Data Service

Human Sciences Research Council Research Data Service

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The HSRC Research Data Service provides a digital repository facility for the HSRC's research data in support of evidence based human and social development in South Africa and the broader region. It includes both quantitative and qualitative data. Access to data is dependent on ethical requirements for protecting research participants, as well as on legal agreements with the owners, funders or in the case of data owned by the HSRC, the requirements of the depositors of the data.

Forschungsdatenzentrum des SOEP

FDZ SOEP

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The German Socio-Economic Panel Study (SOEP) is a wide-ranging representative longitudinal study of private households, located at the German Institute for Economic Research, DIW Berlin. Every year, there were nearly 11,000 households, and more than 20,000 persons sampled by the fieldwork organization TNS Infratest Sozialforschung. The data provide information on all household members, consisting of Germans living in the Old and New German States, Foreigners, and recent Immigrants to Germany. The Panel was started in 1984. Some of the many topics include household composition, occupational biographies, employment, earnings, health and satisfaction indicators.

Queen's Research Data Centre

QRDC

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The Queen's Research Data Centre is a member of the Canadian Research Data Centre Network (CRDCN) that provides researchers with access to microdata 'masterfiles' from population and health surveys. Access to the RDC is limited to those with projects approved by Statistics Canada. Before applying to an RDC, you will have to show that your research cannot be conducted using Public Use Microdata Files (PUMFs) available through the Data Liberation Initiative (DLI). Access to DLI PUMFS at Queen's is available through the Social Science Data Centre, using the ODESI data portal.

Cross-national Equivalent File

CNEF

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The Cross-National Equivalent File (CNEF) contains population panel data from Australia, Canada, Germany, Great Britain, Korea, Russia, Switzerland and the United States. Each of these countries undertakes a longitudinal household economic survey. The data are made equivalent, providing a reference dataset which cross-links each of the individual studies and allowing cross-national comparisons.

Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder

Research Data Centres of the Federal Statistical Offices and of the Statistical Offices of the Federal States

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The basic goal of the research data centres of the statistical offices of the Federation and the Länder is to improve the accessibility and usability of microdata of official statistics by setting up various ways of using the data. Research data centres of the Federal Statistical Office (FDZ-Bund) and the statistical offices of the Länder (FDZ-Länder) provide collectively access to selected microdata of official statistics to researchers for scientific purposes.

Communication Portal for Accessing Social Statistics

COMPASS

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<<<!!!<<< The repository is no longer available. 2018-11-20; COMPASS used to be provided and available at FORS but is no longer supported. >>>!!!>>>

Reality Commons

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Cell phones have become an important platform for the understanding of social dynamics and influence, because of their pervasiveness, sensing capabilities, and computational power. Many applications have emerged in recent years in mobile health, mobile banking, location based services, media democracy, and social movements. With these new capabilities, we can potentially be able to identify exact points and times of infection for diseases, determine who most influences us to gain weight or become healthier, know exactly how information flows among employees and productivity emerges in our work spaces, and understand how rumors spread. In an attempt to address these challenges, we release several mobile data sets here in "Reality Commons" that contain the dynamics of several communities of about 100 people each. We invite researchers to propose and submit their own applications of the data to demonstrate the scientific and business values of these data sets, suggest how to meaningfully extend these experiments to larger populations, and develop the math that fits agent-based models or systems dynamics models to larger populations. These data sets were collected with tools developed in the MIT Human Dynamics Lab and are now available as open source projects or at cost.

The National Archives

The National Archives Discovery

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The National Archives is home to millions of historical documents, known as records, which were created and collected by UK central government departments and major courts of law. Data of the fomer National Digital Archive of Datasets (NDAD) collection, which was active from 1997 to 2010 and preserves and provides online access to archived digital datasets and documents from UK central government departments, is integrated. Access to records held by The National Archives and more than 2,500 other archives.

Tilburg University Dataverse

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TiU Dataverse is the central online repository for research data at Tilburg University. The TiU Dataverse is managed by the Research Data Office (RDO) at Library and IT Services (LIS). TiU Dataverse takes part of the DataverseNL network. DataverseNL is a shared data service of several Dutch universities and institutions. The data management is in the hands of the member organizations, while the national organization Data Archiving and Networked Services (DANS) manages the network

Avon Longitudinal Study of Parents and Children

ALSPAC

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ALSPAC is a longitudinal birth cohort study which enrolled pregnant women who were resident in one of three Bristol-based health districts in the former County of Avon with an expected delivery date between 1st April 1991 and 31st December 1992. Around 14,000 pregnant women were initially recruited. Detailed information has been collected on these women, their partners and subsequent children using self-completion questionnaires, data extraction from medical notes, linkage to routine information systems and from hands-on research clinics. Additional cohorts of participants have since been enrolled in their own right including fathers, siblings, children of the children and grandparents of the children. Ethical approval for the study was obtained from the ALSPAC Ethics and Law Committee (IRB00003312) and Local Research Ethics.

TARKI Data Archive

TÁRKI

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TÁRKI Social Research Institute is an independent, employee-owned research organisation that specialises in policy research in the fields of social policy and the social consequences of economic policies. This includes related data-collection, archiving and statistical activities. We recently increased our involvement in the areas of strategic market research and health policy analysis. In addition, we regularly contribute to basic research, in the areas of social stratification and inequality, and to the methodology of empirical social research.