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The Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system was developed to share data across the entire TBI research field and to facilitate collaboration between laboratories, as well as interconnectivity with other informatics platforms. Sharing data, methodologies, and associated tools, rather than summaries or interpretations of this information, can accelerate research progress by allowing re-analysis of data, as well as re-aggregation, integration, and rigorous comparison with other data, tools, and methods. This community-wide sharing requires common data definitions and standards, as well as comprehensive and coherent informatics approaches.
The NCI's Genomic Data Commons (GDC) provides the cancer research community with a unified data repository that enables data sharing across cancer genomic studies in support of precision medicine. The GDC obtains validated datasets from NCI programs in which the strategies for tissue collection couples quantity with high quality. Tools are provided to guide data submissions by researchers and institutions.
Country
Survey of India, The National Survey and Mapping Organization of the country under the Department of Science & Technology, is the OLDEST SCIENTIFIC DEPARTMENT OF THE GOVT. OF INDIA. It was set up in 1767 and has evolved rich traditions over the years. In its assigned role as the nation's Principal Mapping Agency, Survey of India bears a special responsibility to ensure that the country's domain is explored and mapped suitably, provide base maps for expeditious and integrated development and ensure that all resources contribute with their full measure to the progress, prosperity and security of our country now and for generations to come. The history of the Survey of India dates back to the 18th Century. Forerunners of army of the East India Company and Surveyors had an onerous task of exploring the unknown. Bit by bit the tapestry of Indian terrain was completed by the painstaking efforts of a distinguished line of Surveyors such as Mr. Lambton and Sir George Everest. It is a tribute to the foresight of such Surveyors that at the time of independence the country inherited a survey network built on scientific principles. The great Trigonometric series spanning the country from North to South East to West are some of the best geodetic control series available in the world. The scientific principles of surveying have since been augmented by the latest technology to meet the multidisciplinary requirement of data from planners and scientists. Organized into only 5 Directorates in 1950, mainly to look after the mapping needs of Defense Forces in North West and North East, the Department has now grown into 22 Directorates spread in approx. all parts (states) of the country to provide the basic map coverage required for the development of the country. Its technology, latest in the world, has been oriented to meet the needs of defense forces, planners and scientists in the field of geo-sciences, land and resource management. Its expert advice is being utilized by various Ministries and undertakings of Govt. of India in many sensitive areas including settlement of International borders, State boundaries and in assisting planned development of hitherto under developed areas. Faced with the requirement of digital topographical data, the department has created three Digital Centers during late eighties to generate Digital Topographical Data Base for the entire country for use in various planning processes and creation of geographic information system. Its specialized Directorates such as Geodetic and Research Branch, and Indian Institute of Surveying & Mapping (erstwhile Survey Training Institute) have been further strengthened to meet the growing requirement of user community. The department is also assisting in many scientific programs of the Nation related to the field of geo-physics, remote sensing and digital data transfers.
Brainlife promotes engagement and education in reproducible neuroscience. We do this by providing an online platform where users can publish code (Apps), Data, and make it "alive" by integragrate various HPC and cloud computing resources to run those Apps. Brainlife also provide mechanisms to publish all research assets associated with a scientific project (data and analyses) embedded in a cloud computing environment and referenced by a single digital-object-identifier (DOI). The platform is unique because of its focus on supporting scientific reproducibility beyond open code and open data, by providing fundamental smart mechanisms for what we refer to as “Open Services.”
In 2003, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at NIH established Data, Biosample, and Genetic Repositories to increase the impact of current and previously funded NIDDK studies by making their data and biospecimens available to the broader scientific community. These Repositories enable scientists not involved in the original study to test new hypotheses without any new data or biospecimen collection, and they provide the opportunity to pool data across several studies to increase the power of statistical analyses. In addition, most NIDDK-funded studies are collecting genetic biospecimens and carrying out high-throughput genotyping making it possible for other scientists to use Repository resources to match genotypes to phenotypes and to perform informative genetic analyses.
MEASURE DHS is advancing global understanding of health and population trends in developing countries through nationally-representative household surveys that provide data for a wide range of monitoring and impact evaluation indicators in the areas of population, health, HIV, and nutrition. The database collects, analyzes, and disseminates data from more than 300 surveys in over 90 countries. MEASURE DHS distributes, at no cost, survey data files for legitimate academic research.
The ACEnano Knowledge Infrastructure facilitates access and sharing of methodology applied in nanosafety, starting with nanomaterials characterisation protocols developed or optimised within the ACEnano project.
Country
The German General Social Survey (ALLBUS) collects up-to-date data on attitudes, behavior, and social structure in Germany. Every two years since 1980 a representative cross section of the population is surveyed using both constant and variable questions. The ALLBUS data become available to interested parties for research and teaching as soon as they are processed and documented.
The ISRCTN registry is a primary clinical trial registry recognised by WHO and ICMJE that accepts all clinical research studies (whether proposed, ongoing or completed), providing content validation and curation and the unique identification number necessary for publication. All study records in the database are freely accessible and searchable. ISRCTN supports transparency in clinical research, helps reduce selective reporting of results and ensures an unbiased and complete evidence base. ISRCTN accepts all studies involving human subjects or populations with outcome measures assessing effects on human health and well-being, including studies in healthcare, social care, education, workplace safety and economic development.