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Found 15 result(s)
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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
Copernicus is a European system for monitoring the Earth. Copernicus consists of a complex set of systems which collect data from multiple sources: earth observation satellites and in situ sensors such as ground stations, airborne and sea-borne sensors. It processes these data and provides users with reliable and up-to-date information through a set of services related to environmental and security issues. The services address six thematic areas: land monitoring, marine monitoring, atmosphere monitoring, climate change, emergency management and security. The main users of Copernicus services are policymakers and public authorities who need the information to develop environmental legislation and policies or to take critical decisions in the event of an emergency, such as a natural disaster or a humanitarian crisis. Based on the Copernicus services and on the data collected through the Sentinels and the contributing missions , many value-added services can be tailored to specific public or commercial needs, resulting in new business opportunities. In fact, several economic studies have already demonstrated a huge potential for job creation, innovation and growth.
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PARADISEC (the Pacific And Regional Archive for Digital Sources in Endangered Cultures) offers a facility for digital conservation and access to endangered materials from all over the world. Our research group has developed models to ensure that the archive can provide access to interested communities, and conforms with emerging international standards for digital archiving. We have established a framework for accessioning, cataloguing and digitising audio, text and visual material, and preserving digital copies. The primary focus of this initial stage is safe preservation of material that would otherwise be lost, especially field tapes from the 1950s and 1960s.
The Fragile Families and Child Wellbeing Study changed its name to The Future of Families and Child Wellbeing Study (FFCWS). Note that all documentation issued prior to January 2023 contains the study’s former name. Any further reference to FFCWS should kindly observe this name change. The Fragile Families & Child Wellbeing Study is following a cohort of nearly 5,000 children born in large U.S. cities between 1998 and 2000 (roughly three-quarters of whom were born to unmarried parents). We refer to unmarried parents and their children as “fragile families” to underscore that they are families and that they are at greater risk of breaking up and living in poverty than more traditional families. The core Study was originally designed to primarily address four questions of great interest to researchers and policy makers: (1) What are the conditions and capabilities of unmarried parents, especially fathers?; (2) What is the nature of the relationships between unmarried parents?; (3) How do children born into these families fare?; and (4) How do policies and environmental conditions affect families and children?
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Genome resource samples of wild animals, particularly those of endangered mammalian and avian species, are very difficult to collect. In Korea, many of these animals such as tigers, leopards, bears, wolves, foxes, gorals, and river otters, are either already extinct, long before the Korean biologists had the opportunity to study them, or are near extinction. Therefore, proposal for a systematic collection and preservation of genetic samples of these precious animals was adopted by Korea Science & Engineering Foundation (KOSEF). As an outcome, Conservation Genome Resource Bank for Korean Wildlife (CGRB; www.cgrb.org) was established in 2002 at the College of Veterinary Medicine, Seoul National University as one of the Special Research Materials Bank supported by the Scientific and Research Infrastructure Building Program of KOSEF. CGRB operates in collaboration with Seoul Grand Park Zoo managed by Seoul Metropolitan Government, and has offices and laboratories at both Seoul National University and Seoul Grand Park, where duplicate samples are maintained, thereby assuring a long-term, safe preservation of the samples. Thus, CGRB is the first example of the collaborative scientific infrastructure program between university and zoo in Korea.
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The population-based cancer registries in each German federal state transfer data to the German Centre for Cancer Registry Data, as required by the Federal Cancer Registry Data Act. These data are combined, quality-checked, analysed and evaluated, and the results published in collaboration with the public health institutions of the federal states.
The name Earth Online derives from ESA's Earthnet programme. Earthnet prepares and attracts new ESA Earth Observation missions by setting the international cooperation scheme, preparing the basic infrastructure, building the scientific and application Community and competency in Europe to define and set-up own European Programmes in consultation with member states. Earth Online is the entry point for scientific-technical information on Earth Observation activities by the European Space Agency (ESA). The web portal provides a vast amount of content, grown and collected over more than a decade: Detailed technical information on Earth Observation (EO) missions; Satellites and sensors; EO data products & services; Online resources such as catalogues and library; Applications of satellite data; Access to promotional satellite imagery. After 10 years of operations on distinct sites, the two principal portals of ESA Earth Observation - Earth Online (earth.esa.int) and the Principal Investigator's Portal (eopi.esa.int) have moved to a new platform. ESA's technical and scientific earth observation user communities will from now on be served from a single portal, providing a modern and easy-to-use interface to our services and data.
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The Informatics Research Data Repository is a Japanese data repository that collects data on disciplines within informatics. Such sub-categories are things like consumerism and information diffusion. The primary data within these data sets is from experiments run by IDR on how one group is linked to another.
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The GML contributes to the continual improvement of access to and information about official microdata; provides a service and research infrastructure for these data; adopts the function of an intermediary between the Federal Statistical Office and empirical research; conducts exemplary research based upon official data. The GML is an integral part of the German data infrastructure and features as one of six institutions funded by the German Council of Social and Economic Data.
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The NCIS is a national database of information on every death reported to a coroner in Australia and New Zealand. It contains demographic information on the deceased, contextual information on the nature of the fatality and medico-legal documents including the coroner's finding, autopsy and toxicology reports and the police notification of death report.
Country
More than a quarter of a million people — one in 10 NSW men and women aged over 45 — have been recruited to our 45 and Up Study, the largest ongoing study of healthy ageing in the Southern Hemisphere. The baseline information collected from all of our participants is available in the Study’s Data Book. This information, which researchers use as the basis for their analyses, contains information on key variables such as height, weight, smoking status, family history of disease and levels of physical activity. By following such a large group of people over the long term, we are developing a world-class research resource that can be used to boost our understanding of how Australians are ageing. This will answer important health and quality-of-life questions and help manage and prevent illness through improved knowledge of conditions such as cancer, heart disease, depression, obesity and diabetes.
Sound and Vision has one of the largest audiovisual archives in Europe. The institute manages over 70 percent of the Dutch audiovisual heritage. The collection contains more than a million hours of television, radio, music and film from the beginning in 1898 until today. All programs of the Dutch public broadcasters come in digitally every day. Individuals and institutions entrust their collection to Sound and Vision as well. The institute ensures that the material is optimally preserved for (re)use. Broadcasters, producers and editors use the archive for the creation of new programs. The collection is also used to develop products and services for a wide audience, such as exhibitions, iPhone applications, DVD boxes and various websites. The collection of Sound and Vision contains the complete radio and television archives of the Dutch public broadcasters; films of virtually every leading Dutch documentary maker; newsreels; the national music depot; various audiovisual corporate collections; advertising, radio and video material of cultural and social organizations, of scientific institutes and of all kinds of educational institutions. There are also collections of images and articles from the history of Dutch broadcasting itself, like the elaborate collection of historical television sets.
The UK Data Service is a national data service funded by the ESRC to provide research access to the UK’s largest collection of social, economic and population data including UK government-sponsored surveys, cross-national surveys, longitudinal studies, UK census data, international aggregate, business data, and qualitative data. Designed to meet the data needs of researchers, students and teachers from all sectors, including academia, central and local government, charities and foundations, independent research centres, think tanks, business consultants and analysts, communities and the commercial sector, the UK Data Service provides access to high-quality social and economic data; support for policy-relevant research; guidance and training for the development of skills in data use, and the development of best practice in digital preservation and sharing. Data users can browse collections online and register to analyse and download them. Open Data collections are available for anyone to use. Key partners include JISC, the University of Manchester, University of Southampton, University of Leeds, University of Edinburgh and University College London (UCL). The lead partner is the UK Data Archive (https://service.re3data.org/repository/r3d100010215) based at the University of Essex, a Trusted Digital Repository (TDR) certified against the CoreTrustSeal (https://www.coretrustseal.org/) and certified against ISO27001 for Information Security (https://www.iso.org/standard/27001). The UK Data Service replaces the earlier ESRC investments of the Economic and Social Data Service (ESDS), the Secure Data Service (SDS), the Survey Question Bank and elements of the ESRC Census Programme.