Repository details

Patient-Centered Outcomes Data Repository

Name of repository
Patient-Centered Outcomes Data Repository
Additional name(s)
  • PCODR
Repository URL
https://www.icpsr.umich.edu/sites/pcodr
Subject(s)
Description
The Patient-Centered Outcomes Data Repository (PCODR) is where you can find, access, and examine data on how different treatments work, collected from studies funded by the Patient-Centered Outcomes Research Institute (PCORI). It's the only collection focused entirely on research that centers around patient experiences and outcomes.
Contact(s)
  • administrative: ICPSR-help@umich.edu
Content type(s)
Keyword(s)
Repository size
30 datasets
Repository type(s)
  • disciplinary
Mission statement for designated community
https://www.icpsr.umich.edu/sites/pcodr/about
Research data repository language(s)
  • English
Data and/or service provider
  • dataProvider

Institutions (2)

Institution
Inter-university Consortium for Political and Social Research
Additional name(s)
  • ICPSR
Institution
Country
United States
Type(s) of responsibility
  • general
Type of institution
non-profit
Institution
Patient-Centered Outcomes Research Institute
Additional name(s)
  • PCORI
Institution
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit

Funding (1)

Funder name
Patient-Centered Outcomes Research Institute
CrossrefFunderID
100006093

Policies (3)

Policy Name
PCORI Policy for Data Management and Data Sharing
Policy Name
Data Access Application Guideline
Policy Name
Privacy Policy

Database access

Type of access to research data repository
open

Data access (2)

Type of access to data
restricted
Type of access to data
open

Data licenses (1)

DataLicense
other

Data upload (1)

Type of data upload
restricted
Data upload restriction type(s)
  • institutional membership

Data upload license (1)

Data upload license name
Data Deposit Guideline
Persistent identifier system(s)
  • DOI
Name of the repository software
  • unknown
Versioning
yes
Enhanced Publication
yes
Quality management
yes
qualityManagementMeasure(s)
Metric(s)
  • Usage statistics

Metadata standards (3)

Metadata standard
DCAT (Data Catalog Vocabulary)
Metadata standard
DDI (Data Documentation Initiative)
Metadata standard
Dublin Core

Remarks

Entry date
2025-08-19
Last update
2025-08-22
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Cite this re3data.org record:

re3data.org: Patient-Centered Outcomes Data Repository; editing status 2025-08-22; re3data.org - Registry of Research Data Repositories. https://doi.org/10.17616/R31NJNTO last accessed: 2025-08-22