Repository details

Integrated Neurodegenerative Disease Database

Name of repository
Integrated Neurodegenerative Disease Database
Additional name(s)
  • INDD
Repository URL
https://www.med.upenn.edu/cndr/datasharing.html
Subject(s)
Description
The Penn Integrated Neurodegenerative Disease Database (INDD) contains data from individuals with Alzheimer's disease, Parkinson's disease, frontotemporal dementia, and amyotrophic lateral sclerosis, who have been followed in research studies at the University of Pennsylvania. The database has been periodically described in publications (https://pubmed.ncbi.nlm.nih.gov/23978324/), with updates on the website. Researchers can request biosamples as well as clinical and biomarker data. Scientists work collaboratively to analyze the Integrative Neurodegenerative Disease Database (INDD) from the Center for Neurodegenerative Disease Research (CNDR) that tracks ~11,000 patients who attended one of four neurodegenerative disease centers at Penn.
Contact(s)
  • PennCNDRbiobank@pennmedicine.upenn.edu
Keyword(s)
Repository type(s)
  • disciplinary
Mission statement for designated community
https://www.pennbindlab.com/data-sharing
Research data repository language(s)
  • English
Data and/or service provider
  • dataProvider
  • serviceProvider

Institutions (1)

Institution
University of Pennsylvania, Perelman School of Medicine, Center for Neurodegenerative Disease Research
Additional name(s)
  • CNDR
Country
United States
Type(s) of responsibility
  • general
Type of institution
non-profit

Policies (1)

Policy Name
Biosamples & Data Sharing

Database access

Type of access to research data repository
restricted
Database access restriction type
  • other

Data access (1)

Type of access to data
restricted
Data access restriction type(s)
  • other

Data licenses (1)

DataLicense
other
Enhanced Publication
unknown
Quality management
unknown

Remarks

Entry date
2023-11-20
Last update
2023-11-24
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Cite this re3data.org record:

re3data.org: Integrated Neurodegenerative Disease Database; editing status 2023-11-24; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R31NJNIC last accessed: 2025-04-24