Repository details

NF Data Portal

Name of repository
NF Data Portal
Repository URL
https://nf.synapse.org
Subject(s)
Description
The NF Data Portal is designed to help openly explore and share NF datasets, analysis tools, resources, and publications related to neurofibromatosis. Anyone can join the NF Open Science Initiative (NF-OSI) to participate! We welcome contributions from anyone in the neurofibromatosis and schwannomatosis research community, such as original datasets generated by the community or analyses of data from the NF Data Portal.
Contact(s)
Keyword(s)
Persistent identifier(s) of the repository
Repository size
233 studies; 27.704 files; 1.147 tools
Repository type(s)
  • disciplinary
Mission statement for designated community
https://nf.synapse.org/About
Research data repository language(s)
  • English
Data and/or service provider
  • serviceProvider

Institutions (5)

Institution
Children's Tumor Foundation
Additional name(s)
  • CTF
Institution
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit
Institution
Gilbert Family Foundation
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit
Start date of responsibility
2020-02
Institution
Leona M. and Harry B. Helmsley Charitable Trust
Institution
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit
Institution
Neurofibromatosis Therapeutic Acceleration Program
Additional name(s)
  • NTAP
Institution
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit
Start date of responsibility
2014
Institution
Sage Bionetworks
Institution
Country
United States
Type(s) of responsibility
  • general
  • technical
Type of institution
non-profit
Start date of responsibility
2015

Policies (1)

Policy Name
Governance Overview

Database access

Type of access to research data repository
open

Data access (4)

Type of access to data
restricted
Data access restriction type(s)
  • registration
  • other
Type of access to data
closed
Type of access to data
embargoed
Type of access to data
open

Data licenses (1)

DataLicense
CC

Data upload (1)

Type of data upload
restricted
Data upload restriction type(s)
  • registration
Versioning
yes
Data citation guideline
https://nf.synapse.org/About
Author identifier system(s)
  • ORCID
Enhanced Publication
yes
Quality management
yes

Application programming interfaces (1)

Type
REST
Url
https://rest-docs.synapse.org/rest/

Remarks

Remarks
GitHub: https://github.com/nf-osi/ Documentation: https://help.nf.synapse.org/NFdocs/ Nf-metadata-dictionary: https://github.com/nf-osi/nf-metadata-dictionary
Entry date
2021-05-13
Last update
2024-02-13
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Cite this re3data.org record:

re3data.org: NF Data Portal; editing status 2024-02-13; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R31NJMYR last accessed: 2025-04-22