Repository details

Parkinson's Disease Biomarkers Program Data Management Resource

Name of repository

Parkinson's Disease Biomarkers Program Data Management Resource

Additional name(s)

PDBP DMR

Repository URL

https://pdbp.ninds.nih.gov/

Subject(s)

Description

The Parkinson's Disease Biomarkers Program (PDBP) is made up of researchers, patients, family members, and healthcare professionals who are dedicated to accelerating the pace of biomarkers research. The DMR is a collection of modular components that provide researchers with access to tools that allow for the collection and quality assurance of data in a standardized format. The DMR coordinates the assembly of de-identified data into a common database, enabling the query and distribution of aggregate data.

Contact(s)

administrative: https://pdbp.ninds.nih.gov/contact-us

Content type(s)

Keyword(s)

Persistent identifier(s) of the repository

Repository type(s)

disciplinary
governmental

Mission statement for designated community

https://pdbp.ninds.nih.gov/data-management-resource

Research data repository language(s)

English

Data and/or service provider

dataProvider

Institutions (1)

Institution name

National Institute of Neurological Disorders and Stroke

Additional name(s)

NINDS

Institution identifier(s)

Country

United States

Type(s) of responsibility

general
technical
funding

Type of institution

non-profit

Policies (4)

Policy name

PDBP Publications Policy

Policy name

Data Sharing Policy

Policy name

DMR Approved User Code of Conduct

Policy name

DMR Consent Language

Database access

Type of access to research data repository

restricted

Database access restriction type

registration

Data access (1)

Type of access to data

restricted

Data access restriction type(s)

registration

Data licenses (1)

Data license

other

Data upload (1)

Type of data upload

restricted

Data upload restriction type(s)

registration

Data upload license (1)

Data upload license name

How to submit data to the DMR

Data citation guideline

https://pdbp.ninds.nih.gov/policy#publications-policy

Quality measure(s)

Clinical Assessments Forms

Remarks

Entry date

2018-08-28

Last update

2026-06-11

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Cite this re3data.org record:

re3data.org: Parkinson's Disease Biomarkers Program Data Management Resource; editing status 2026-06-11; re3data.org - Registry of Research Data Repositories. https://doi.org/10.17616/R31NJMEO last accessed: 2026-07-24

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Cite this service: re3data.org - Registry of Research Data Repositories. https://doi.org/10.17616/R3D last accessed: 2026-07-24