Repository details

Parkinson's Disease Biomarkers Program Data Management Resource

Name of repository
Parkinson's Disease Biomarkers Program Data Management Resource
Additional name(s)
  • PDBP DMR
Repository URL
https://pdbp.ninds.nih.gov/
Subject(s)
Description
The Parkinson's Disease Biomarkers Program (PDBP) is made up of researchers, patients, family members, and healthcare professionals who are dedicated to accelerating the pace of biomarkers research. The DMR is a collection of modular components that provide researchers with access to tools that allow for the collection and quality assurance of data in a standardized format. The DMR coordinates the assembly of de-identified data into a common database, enabling the query and distribution of aggregate data.
Contact(s)
Content type(s)
Keyword(s)
Persistent identifier(s) of the repository
Repository type(s)
  • disciplinary
  • governmental
Mission statement for designated community
https://pdbp.ninds.nih.gov/data-management-resource
Research data repository language(s)
  • English
Data and/or service provider
  • dataProvider

Institutions (1)

Institution name
National Institute of Neurological Disorders and Stroke
Additional name(s)
  • NINDS
Institution identifier(s)
Country
United States
Type(s) of responsibility
  • general
  • technical
  • funding
Type of institution
non-profit

Policies (4)

Policy name
PDBP Publications Policy
Policy name
Data Sharing Policy
Policy name
DMR Approved User Code of Conduct
Policy name
DMR Consent Language

Database access

Type of access to research data repository
restricted
Database access restriction type
  • registration

Data access (1)

Type of access to data
restricted
Data access restriction type(s)
  • registration

Data licenses (1)

Data license
other

Data upload (1)

Type of data upload
restricted
Data upload restriction type(s)
  • registration

Data upload license (1)

Data upload license name
How to submit data to the DMR
Data citation guideline
https://pdbp.ninds.nih.gov/policy#publications-policy
Quality measure(s)

Remarks

Entry date
2018-08-28
Last update
2026-06-09
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