Repository details
EyeGENE
Name of repository
EyeGENE
Additional name(s)
- The National Ophthalmic Genotyping and Phenotyping Network
Repository URL
Description
The eyeGENE® Research Resource is open for approved research studies. Application details here Researchers and clinicians are actively developing gene-based therapies to treat ophthalmic genetic diseases that were once considered untreatable.
Contact
- eyegeneinfo@nei.nih.gov
Keyword(s)
Persistent identifier(s) of the repository
- OMICS_05773
- RRID:nif-0000-00229
- RRID:SCR_004523
- FAIRsharing_doi.:10.25504/FAIRsharing.5nnxqn
Repository type(s)
- disciplinary
Mission statement for designated community
Research data repository language(s)
- English
Data and/or service provider
- data provider
Institution name
Additional name(s)
- NIH, NEI
Identifier(s)
- RRID:SCR_011411
- RRID:nlx_inv_1005096
- ROR:03wkg3b53
Contact(s)
Country
Type(s) of responsibility
- technical
- funding
- general
Type of institution
non-profit
Policies (1)
Database access
Type of access to research data repository
open
Data access (2)
Type of access to data
restricted
Data access restriction type(s)
- other
Type of access to data
embargoed
Data licenses (1)
DataLicense
Data upload (1)
Type of data upload
restricted
Data upload restriction type(s)
- other
Persistent identifier system(s)
- other
Name of the repository software
- unknown
Author identifier system(s)
- none
Enhanced Publication
no
Quality management
unknown
Remarks
Remarks
BRICS - Biomedical Research Informatics Computing System is a dynamic, expanding, and easily reproducible informatics ecosystem developed to create secure, centralized biomedical databases to support research efforts to accelerate scientific discovery, by aggregating and sharing data using Web-based clinical report form generators and a data dictionary of Clinical Data Elements. BRICS has been used so far to support multiple neurobiological studies, including the National Ophthalmic Disease Genotyping and Phenotyping Network (eyeGENE).
Entry date
2018-08-27
Last update
2020-12-08
Cite this re3data.org record:
re3data.org: EyeGENE; editing status 2020-12-08; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R36V4S last accessed: 2023-01-30- Current projects
- FAIRsFAIR
- re3data COREF
-
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- Cite this service: re3data.org - Registry of Research Data Repositories. https://doi.org/10.17616/R3D last accessed: 2023-01-30
