Repository details

EyeGENE

Name of repository
EyeGENE
Additional name(s)
  • The National Ophthalmic Genotyping and Phenotyping Network
Repository URL
https://eyegene.nih.gov/
Subject(s)
Description
The eyeGENE® Research Resource is open for approved research studies. Application details here Researchers and clinicians are actively developing gene-based therapies to treat ophthalmic genetic diseases that were once considered untreatable.
Contact(s)
  • eyegeneinfo@nei.nih.gov
Keyword(s)
Persistent identifier(s) of the repository
Repository type(s)
  • disciplinary
Mission statement for designated community
https://eyegene.nih.gov/about
Research data repository language(s)
  • English
Data and/or service provider
  • dataProvider

Institutions (1)

Institution
National Institutes of Health, National Eye Institute
Additional name(s)
  • NIH, NEI
Institution
Country
United States
Type(s) of responsibility
  • technical
  • funding
  • general
Type of institution
non-profit

Policies (1)

Policy Name
Redearch Access

Database access

Type of access to research data repository
open

Data access (2)

Type of access to data
restricted
Data access restriction type(s)
  • other
Type of access to data
embargoed

Data licenses (2)

DataLicense
Copyrights
DataLicense
Public Domain

Data upload (1)

Type of data upload
restricted
Data upload restriction type(s)
  • other
Persistent identifier system(s)
  • other
Name of the repository software
  • unknown
Enhanced Publication
no
Quality management
unknown

Remarks

Remarks
BRICS - Biomedical Research Informatics Computing System is a dynamic, expanding, and easily reproducible informatics ecosystem developed to create secure, centralized biomedical databases to support research efforts to accelerate scientific discovery, by aggregating and sharing data using Web-based clinical report form generators and a data dictionary of Clinical Data Elements. BRICS has been used so far to support multiple neurobiological studies, including the National Ophthalmic Disease Genotyping and Phenotyping Network (eyeGENE). EyeGENE is part of National Eye Institute Data Commons https://www.re3data.org/repository/r3d100014148
Entry date
2018-08-27
Last update
2024-09-23
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Cite this re3data.org record:

re3data.org: EyeGENE; editing status 2024-09-23; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R36V4S last accessed: 2025-04-25