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Found 3 result(s)

PROFILES Registry

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Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship (PROFILES)’ is a registry for the study of the physical and psychosocial impact of cancer and its treatment from a dynamic, growing population-based cohort of both short and long-term cancer survivors. Researchers from the Netherlands Comprehensive Cancer Centre and Tilburg University in Tilburg, The Netherlands, work together with medical specialists from national hospitals in order to setup different PROFILES studies, collect the necessary data, and present the results in scientific journals and (inter)national conferences.

FDZ German Microdata Lab

GML

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The GML contributes to the continual improvement of access to and information about official microdata; provides a service and research infrastructure for these data; adopts the function of an intermediary between the Federal Statistical Office and empirical research; conducts exemplary research based upon official data. The GML is an integral part of the German data infrastructure and features as one of six institutions funded by the German Council of Social and Economic Data.

Recherche Data Gouv France

French Research Data Gouv Platform

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The Research Data Gouv platform is the French national federated platform for open and shared research data serving the national scientific community. This platform was an integral part of the Second National Plan for Open Science (PNSO) and offers a multidisciplinary data repository, a registry which reports data hosted in other repositories and a web portal. The multidisciplinary repository is a sovereign publishing solution for sharing and opening up data for communities which are yet to set up their own recognised thematic repository.