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Found 54 result(s)

Experimental Lakes Area

IISD - ELA

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IISD Experimental Lakes Area is one of the world’s most influential freshwater research facilities. It features a collection of 58 small lakes and their watersheds in Northwestern Ontario, Canada, as well as a facility with accommodations and laboratories for up to 60 personnel.

Clinical data repository

CDR

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The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.

National Human Brain Bank for Development and Function

国家发育和功能人脑组织资源库

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National Human Brain Bank for Development and Function was originally established in 2012 by the Institute of Basic Medical Sciences, Chinese Academy of Medical Sciences as a public interest institution dedicated to the preservation and research of human brain tissues based on the volunteer donor station of Peking Union Medical College. In 2019, it was officially recognised by the Ministry of Science and Technology as a national science and technology resource platform: National Human Brain Bank for Development and Function. Since its establishment, the Concordia Brain Bank has accepted and preserved more than two hundred and seventy whole brain tissue samples. While conducting its own research on the standardisation of brain banks, neuropathology and various histologies related to human brain ageing and dementia, it has also developed and published the Standardised Operational Protocol for Human Brain Tissue Banks in China for more than ten universities in China, and has provided valuable human brain tissue samples for a number of research groups in our own institutions and other units in China, which has strongly supported brain science and brain disease research in China. As a national resource platform, we will continue to aim to support and lead brain science research in China and make positive contributions to maintaining brain health and defeating brain diseases.

PAIN repository

Pain and Interoception Imaging Network Repository

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The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.

Fox Insight Date Exploration Network

Fox DEN

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Fox DEN provides investigators with a tool to explore, download and apply statistical models on aggregated data collected for the Fox Insight online clinical study. The Fox Insight study collects patient-reported outcomes and genetic data from people with Parkinson's disease and their loved ones.

National COVID Cohort Collaborative

National COVID Cohort Collaborative Data Enclave

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The N3C Data Enclave is a secure portal containing a very large and extensive set of harmonized COVID-19 clinical electronic health record (EHR) data. The data can be accessed through a secure cloud Enclave hosted by NCATS and cannot be downloaded due to regulatory control. Broad access is available to investigators at institutions that sign a Data Use Agreements and via Data Use Requests by investigators. The N3C is a unique open, reproducible, transparent, collaborative team science initiative to leverage sensitive clinical data to expedite COVID-19 discoveries and improve health outcomes.

National Health Research and Studies Portal

NHRSP

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The National Health Research and Studies Portal (NHRSP) is an initiative to build a national digital research data infrastructure, that provides data for health-related research, to meet tomorrow's health challenges. NHRSP aims to make health research more sustainable, efficient and responsive to health challenges, through research data sharing and re-cycling, in accordance with the ethical standards of scientific research.

LiceBase

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LiceBase is a database for sea lice genomics. LiceBase provides the genome annotation of the Atlantic salmon louse Lepeophtheirus salmonis, a genome browser, Blast functionality and access to related high-thoughput genomics data.

German Portal for Medical Research Data

Deutsches Forschungsdatenportal für Gesundheit

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The German Portal for Medical Research Data (FDPG) is the central point of administration for scientists conducting research projects with routine medical data from German universities. The Medical Informatics Initiative (MII), which is funded by the Federal Ministry of Education and Research (BMBF), collects patient data and biosamples taken during routine care for medical research and processes them at data integration centres based in university hospitals. The data are then made available in accordance with data protection regulations.

Zentrale Biomaterialbank der Charité

Central Biomaterial Bank Charité

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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.

InCHIANTI

The InCHIANTI Study

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<<<!!!<<< This repository is no longer available. >>>!!!>>>

Forschungsdaten- und Servicezentrum der Bundesbank

Research Data and Service Centre Deutsche Bundesbank

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The RDSC provides researchers access to selected microdata from the Bundesbank's data records for independent and non-commercial scientific research projects on basis of the legal requirements. The RDSC is the mediator between the Bundesbank’s wide range of different micro data in various departments and – on the other side – researchers or analysts. In connection with this, the RDSC is responsible for the methodological improvement, the access of and the comprehensive documentation of the high-quality microdata. It also offers additional consultancy and support services to existing and prospective data users and satisfies data protection requirements. English version see: https://www.bundesbank.de/en/bundesbank/research/rdsc/research-data-and-service-centre-rdsc--869492

HI HOPES

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HI HOPES aims is to provide free home based support and information without bias to every family with an infant or toddler with hearing loss. Through an early intervention framework of care, support, information and partnership in a culturally sensitive, community based manner to allow we aim to empower the family in their home environment and help the baby with a hearing loss to reach her/his full potential.

BIH / Charité Virtual Research Environment

Berlin Institute of Health / Charité Virtual Research Environment

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The Virtual Research Environment (VRE) is an open-source data management platform that enables medical researchers to store, process and share data in compliance with the European Union (EU) General Data Protection Regulation (GDPR). The VRE addresses the present lack of digital research data infrastructures fulfilling the need for (a) data protection for sensitive data, (b) capability to process complex data such as radiologic imaging, (c) flexibility for creating own processing workflows, (d) access to high performance computing. The platform promotes FAIR data principles and reduces barriers to biomedical research and innovation. The VRE offers a web portal with graphical and command-line interfaces, segregated data zones and organizational measures for lawful data onboarding, isolated computing environments where large teams can collaboratively process sensitive data privately, analytics workbench tools for processing, analyzing, and visualizing large datasets, automated ingestion of hospital data sources, project-specific data warehouses for structured storage and retrieval, graph databases to capture and query ontology-based metadata, provenance tracking, version control, and support for automated data extraction and indexing. The VRE is based on a modular and extendable state-of-the art cloud computing framework, a RESTful API, open developer meetings, hackathons, and comprehensive documentation for users, developers, and administrators. The VRE with its concerted technical and organizational measures can be adopted by other research communities and thus facilitates the development of a co-evolving interoperable platform ecosystem with an active research community.

Wildlife Management Information System

WMIS

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The Wildlife Management Information System (WMIS) is the Government of Northwest Territories (GNWT) online, geo-referenced wildlife database. WMIS provides a central repository for government staff, industry, researchers and public to store and access standardized wildlife observation data to support the conservation and management of wild species and their habitat in the Northwest Territories (NWT).

University of Tasmania Research Data Portal

UTAS RDP

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The University of Tasmania Research Data Portal (RDP) enables UTAS researchers to securely store and publish their datasets. Datasets published in RDP are publicly available through the Research Data Australia Search Portal (https://researchdata.edu.au/).

Integrated Neurodegenerative Disease Database

INDD

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The Penn Integrated Neurodegenerative Disease Database (INDD) contains data from individuals with Alzheimer's disease, Parkinson's disease, frontotemporal dementia, and amyotrophic lateral sclerosis, who have been followed in research studies at the University of Pennsylvania. The database has been periodically described in publications (https://pubmed.ncbi.nlm.nih.gov/23978324/), with updates on the website. Researchers can request biosamples as well as clinical and biomarker data. Scientists work collaboratively to analyze the Integrative Neurodegenerative Disease Database (INDD) from the Center for Neurodegenerative Disease Research (CNDR) that tracks ~11,000 patients who attended one of four neurodegenerative disease centers at Penn.

Diamond data catalogue

Diamond Light Source data catalogue

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Diamond Light Source is the UK’s national synchrotron, located at the Harwell Science and Innovation Campus in Oxfordshire. It works like a giant microscope, harnessing the power of electrons to produce bright light that scientists can use to study anything from fossils to jet engines to viruses and vaccines. ICAT allows you to browse and download archived data from instrument experiments at Diamond Light Source.

New York Brain Bank

NYBB

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The New York Brain Bank (NYBB) at Columbia University was established to collect postmortem human brains to meet the needs of neuroscientists investigating specific psychiatric and neurological disorders.

Study of Health in Pomerania

SHIP

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The SHIP study´s main aims include the investigation of health in all its aspects and complexity involving the collection and assessment of data relevant to the prevalence and incidence of common, population-relevant diseases and their risk factors.

PAC - Archiving Platform CINES

PAC - Plateforme d'Archivage au CINES

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CINES is the French national long-term preservation service provider for Higher Education and Research: more than 20 institutions (universities, librairies, labs) archive their digital heritage at CINES so that it's preserved over time in a secure, dedicated environment. This includes documents such as PhD theses or publications, digitized ancient/rare books, satellite imagery, 3D/vidéos/image galleries, datasets, etc.

Growing Up Today Study

GUTS

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The Growing Up Today Study is a collaborative study between clinicians, researchers, and thousands of participants across the US and beyond. The aim of this study is to gain a deeper understanding of the factors that affect health throughout life. Together we are working to building one of the most powerful resources for fighting cancer, obesity, heart disease, depression, and so much more.

Avon Longitudinal Study of Parents and Children

ALSPAC

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ALSPAC is a longitudinal birth cohort study which enrolled pregnant women who were resident in one of three Bristol-based health districts in the former County of Avon with an expected delivery date between 1st April 1991 and 31st December 1992. Around 14,000 pregnant women were initially recruited. Detailed information has been collected on these women, their partners and subsequent children using self-completion questionnaires, data extraction from medical notes, linkage to routine information systems and from hands-on research clinics. Additional cohorts of participants have since been enrolled in their own right including fathers, siblings, children of the children and grandparents of the children. Ethical approval for the study was obtained from the ALSPAC Ethics and Law Committee (IRB00003312) and Local Research Ethics.

Sikt Research Data Archive

Sikt forskningsdataarkiv

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Sikt archives research data on people and society to make sure the data can be shared and is made available for reuse. We continuously enrich our data collections to provide a richer basis for research. Sikt’s main focus is quantitative data matrices on individuals, organisations, administrative, political, and geographical actors. The archive specialise in survey data, which undergoes extensive curation at the variable level and detailed metadata is produced and published in Norwegian and English.

West of Scotland Twenty-07 Study

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The Twenty-07 Study was set up in 1986 in order to investigate the reasons for differences in health by socio-economic circumstances, gender, area of residence, age, ethnic group, and family type. 4510 people are being followed for 20 years. The initial wave of data collection took place in 1987/8, when respondents were aged 15, 35 and 55. The final wave of data collection took place in 2007/08 when respondents were aged 35, 55 and 75. In this way the Twenty-07 Study provides us with unique opportunities to investigate both the changes in people's lives over 20 years and how they affect their health, and the differences in people's experiences at the same ages 20 years apart, and how these have different effects on their health.