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Found 10 result(s)
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The RAMEDIS system is a platform independent, web-based information system for rare metabolic diseases based on filed case reports. It was developed in close cooperation with clinical partners to allow them to collect information on rare metabolic diseases with extensive details, e.g. about occurring symptoms, laboratory findings, therapy and molecular data.
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<<<!!!<<< This product is in the archive and is no longer current. >>>!!!>>> Biobanks are a key prerequisite for modern medical research. By linking samples and clinical data they make it possible to clarify the causes and the course of diseases. The German Biobank Registry pools the medically relevant biobanks in Germany. The German Biobank Registry provides an overview of the medical biobanks in Germany; increases the international visibility of German biobanks; facilitates the networking of biobanks; promotes an exchange of information and samples between research teams; supports the use of existing resources; provides information for investments in biobanks and promotes transparency and trust in research where human samples are used. Searching for samples in all biobanks is possible at the project portal (P2B2) https://p2b2.fraunhofer.de/ after registration.
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The GISAID Initiative promotes the international sharing of all influenza virus sequences, related clinical and epidemiological data associated with human viruses, and geographical as well as species-specific data associated with avian and other animal viruses, to help researchers understand how the viruses evolve, spread and potentially become pandemics. *** GISAID does so by overcoming disincentives/hurdles or restrictions, which discourage or prevented sharing of influenza data prior to formal publication. *** The Initiative ensures that open access to data in GISAID is provided free-of-charge and to everyone, provided individuals identify themselves and agree to uphold the GISAID sharing mechanism governed through its Database Access Agreement. GISAID calls on all users to agree to the basic premise of upholding scientific etiquette, by acknowledging the originating laboratories providing the specimen and the submitting laboratories who generate the sequence data, ensuring fair exploitation of results derived from the data, and that all users agree that no restrictions shall be attached to data submitted to GISAID, to promote collaboration among researchers on the basis of open sharing of data and respect for all rights and interests.
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MDM-Portal (Medical Data Models) is a meta-data registry for creating, analyzing, sharing and reusing medical forms. It serves as an infrastructure for academic (non-commercial) medical research to contribute a solution to this problem. It contains forms in the system-independent CDISC Operational Data Model (ODM) format with more than 500,000 data-elements. The Portal provides numerous core data sets, common data elements or data standards, code lists and value sets. This enables researchers to view, discuss, download and export forms in most common technical formats such as PDF, CSV, Excel, SQL, SPSS, R, etc.
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The Research Data Centre (FDZ-RV) was set-up in 2004 as an integral part of the German Federal Pension Insurance (Deutsche Rentenversicherung). Since then, the Research Data Centre produced several cross-sectional and longitudinal datasets, also called Scientific Use Files (SUF), available to researchers interested in issues of retirement, disability and rehabilitation. The datasets are released on an annual basis. The Scientific Use Files are subsamples drawn from the pool of individuals who are insured in the Federal Pension Insurance. The information provided in the original datasets is necessary to administer the beneficiaries of the pension insurance.
The European Social Survey (the ESS) is a biennial multi-country survey covering over 30 nations. The first round was fielded in 2002/2003, the fifth in 2010/2011. The questionnaire includes two main sections, each consisting of approximately 120 items; a 'core' module which remains relatively constant from round to round, plus two or more 'rotating' modules, repeated at intervals. The core module aims to monitor change and continuity in a wide range of social variables, including media use; social and public trust; political interest and participation; socio-political orientations; governance and efficacy; moral; political and social values; social exclusion, national, ethnic and religious allegiances; well-being; health and security; human values; demographics and socio-economics
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>>>!!!<<< eyemoviepedia.com was shut down in the course of 2021 https://www.zbmed.de/en/research/completed-projects/eyemoviepedia/ >>>!!!<<< The eyeMoviePedia videos moved successively to be found on PUBLISSO-Repository for Life Sciences (FRL) in the future. https://www.re3data.org/repository/r3d100013523 To view the new eyeMoviePedia collection see: https://repository.publisso.de/resource?query[0][term]=%22https%3A%2F%2Fd-nb.info%2Fgnd%2F1223212661%22
Additional to the the e-publishing offer for articles, books and journals, Propylaeum provides classical scholars with the opportunity to archive the respective research data permanently. These can be linked directly to online publications hosted on the Heidelberg publishing platforms. All research data – e.g. images, videos, audio files, tables, graphics etc. – receive a DOI (Digital Object Identifiyer). Thus, they can be cited, viewed and permanently linked to as distinct academic output.
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The DRKS is an open access online register for clinical trials conducted in Germany, which allows all users to search, register and share information on clinical trials.