Repository details

German Central Health Study Hub

Name of repository
German Central Health Study Hub
Repository URL
https://csh.nfdi4health.de/
Subject(s)
Description
The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.
Contact
  • contact@nfdi4health.de
  • fb.studyhub@nfdi4health.de
Content type(s)
Keyword(s)
Repository size
1557 studies and 252 associated documents (questionnaires/case report forms)
Repository type(s)
  • disciplinary
Research data repository language(s)
  • English
Data and/or service provider
  • data provider
  • service provider
Institution name
Berlin Institute of Health at Charité
Additional name(s)
  • BIH
Identifier(s)
  • ROR:0493xsw21
Contact(s)
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
Deutsche Forschungsgemeinschaft
Additional name(s)
  • DFG
Identifier(s)
  • ROR:018mejw64
Contact(s)
Country
Germany
Type(s) of responsibility
  • funding
Type of institution
non-profit
Institution name
Fraunhofer Institute for Digital Medicine MEVIS
Additional name(s)
  • Fraunhofer-Institut für Digitale Medizin MEVIS
Identifier(s)
  • ROR:04farme71
Contact(s)
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
Heidelberg Institute for Theoretical Studies
Additional name(s)
  • HITS
  • Heidelberger Institut für Theoretische Studien
  • HITS gGmbH
Identifier(s)
  • ROR:01f7bcy98
Contact(s)
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
KKS-Netzwerk e.V.
Additional name(s)
  • KKS Network
  • KKSN
Contact(s)
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
Leibniz Institute for Prevention Research and Epidemiology
Additional name(s)
  • BIPS
  • Leibniz-Institut für Präventionsforschung und Epidemiologie
Identifier(s)
  • ROR:02c22vc57
Contact(s)
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
Robert Koch Institute
Additional name(s)
  • Robert Koch Institut
  • RKI
Identifier(s)
  • ROR:01k5qnb77
Contact(s)
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
University Medical Center Göttingen
Additional name(s)
  • UMG
  • Universitätsmedizin Göttingen
Identifier(s)
  • ROR:021ft0n22
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
University Medicine of Greifswald
Additional name(s)
  • Universitätsmedizin Greifswald
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
University of Leipzig,Medical Faculty; Institute for Medical Informatics, Statistics and Epidemiology
Additional name(s)
  • IMISE
  • Universität leipzig, Medizinische Fakultät, Institut für Medizinische Informatik, Statistik und Epidemiologie
Contact(s)
Country
Germany
Type(s) of responsibility
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01
End date of responsibility
2023-06-30
Institution name
ZB MED — Information Centre for Life Sciences
Additional name(s)
  • ZB MED - Informationszentrum Lebenswissenschaften
Identifier(s)
  • ROR:0259fwx54
Country
Germany
Type(s) of responsibility
  • technical
  • general
Type of institution
non-profit
Start date of responsibility
2020-07-01

Policies (1)

Policy Name
Health Data Use Act

Database access

Type of access to research data repository
open

Data access (2)

Type of access to data
open
Type of access to data
restricted
Data access restriction type(s)
  • other

Data licenses (1)

DataLicense
CC

Data upload (1)

Type of data upload
restricted
Data upload restriction type(s)
  • other
Persistent identifier system(s)
  • DOI
Versioning
no
Enhanced Publication
yes
Quality management
yes

Metadata standards (3)

Metadata standard name
DataCite Metadata Schema
Metadata standard scheme
DCC
Metadata standard name
Dublin Core
Metadata standard scheme
DCC
Metadata standard name
ISA-Tab
Metadata standard scheme
DCC

Remarks

Entry date
2021-06-30
Last update
2023-09-25
Back to search
Submit a change request
Get a badge
The DataCite logo

Cite this re3data.org record:

re3data.org: German Central Health Study Hub; editing status 2023-09-25; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R31NJMZG last accessed: 2024-04-28