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The Swiss HIV Cohort Study (SHCS), established in 1988, is a systematic longitudinal study enrolling HIV-infected individuals in Switzerland. It is a collaboration of all Swiss University Hospital infectious disease outpatient clinics, two large cantonal hospitals, all with affiliated laboratories, and with affiliated smaller hospitals and private physicians carrying for HIV patients. The Swiss Mother and Child HIV Cohort Study (MoCHiV) is integrated into the SHCS. It aims at preventing mother to child transmission and enrolls HIV-infected pregnant women and their children. The SHCS involves practically all researchers being active in patient-oriented HIV research in Switzerland. The clinics can delegate recruitment of participants and follow-up visits to other outpatient clinics or to specialized private physicians, provided that the requirements of the protocol can be entirely fulfilled and controlled. The laboratories can contract other laboratories for some of the analyses.
Country
The Research Data Centre Education is a focal point for empirical educational research regarding the archiving and retrieval of audiovisual research data (AV) data and survey instruments (questionnaires and tests). In Research Data Centre Education relevant for empirical educational research data sets and tools for secondary use are provided conform with data protection via a central data repository. Contextual information for each origin study and data and instruments as well as related publications complete the offer. Content of Research Data Centre Education formation (so far) focuses on instruments and data sets of Schulqualitäts- and teaching quality research. Observation and interview data in the form of (anonymous) transcripts and codes - be viewed freely accessible - if any. The release of the original AV data for a scientific re-use is linked to a registration by specifying a reasoned research interest in order to protect the privacy rights of the observed or interviewed people.
Country
The Center for Tropical Forest Science (CTFS) is a global network of forest research plots committed to the study of tropical and temperate forest function and diversity. The multi-institutional network comprises more than forty forest research plots across the Americas, Africa, Asia, and Europe, with a strong focus on tropical regions. CTFS monitors the growth and survival of about 6 million trees of approximately 10,000 species.
Country
The Centre for Clinical Trials Cologne (Köln ZKS) aims to support all processes of clinical trials and the quality of patient-oriented clinical research in an academic environment. It supports doctors of University Hospital of Cologne, other clinics, study groups and professional associations in the design and conduct of clinical trials. For the pharmaceutical industry and contract research organizations, the ZKS Köln is a clinic near partner for medical research projects.
The Research Data Center PIAAC (RDC PIAAC) has been accredited by the German Data Forum (RatSWD). The RDC PIAAC makes research data accessible to the scientific community and offers advice to the users. The RDC PIAAC provides German and international datasets in the educational field focusing on the adult population, especially on the Programme for the International Assessment of Adult Competencies (PIAAC).
Country
The German Youth Institute is a leading non-university research institute. Since 1988, empirical studies about the growing up of children and young people and to life situations of adults and families were regularly conducted. The Research Data Centre is part of the department "Social Monitoring." It processes the data and provides data access for secondary analysis.
The repository is no longer available. >>>!!!<<< 2021-01-25: no more access to California Water CyberInfrastructure >>>!!!<<<
Country
The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.
In 2003, the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at NIH established Data, Biosample, and Genetic Repositories to increase the impact of current and previously funded NIDDK studies by making their data and biospecimens available to the broader scientific community. These Repositories enable scientists not involved in the original study to test new hypotheses without any new data or biospecimen collection, and they provide the opportunity to pool data across several studies to increase the power of statistical analyses. In addition, most NIDDK-funded studies are collecting genetic biospecimens and carrying out high-throughput genotyping making it possible for other scientists to use Repository resources to match genotypes to phenotypes and to perform informative genetic analyses.
The World Values Survey (WVS) is a worldwide network of social scientists studying changing values and their impact on social and political life. The WVS in collaboration with EVS (European Values Study) carried out representative national surveys in more than 100 countries containing almost 90 percent of the world's population. These surveys show pervasive changes in what people want out of life and what they believe. In order to monitor these changes, the EVS/WVS has executed six waves of surveys, from 1981 to 2013.