Filter
Reset all

Subjects

Content Types

Countries

AID systems

API

Data access

Data access restrictions

Database access

Database access restrictions

Database licenses

Data licenses

Data upload

Data upload restrictions

Enhanced publication

Institution responsibility type

Institution type

Keywords

Metadata standards

PID systems

Provider types

Quality management

Repository languages

Software

Repository types

Versioning

  • * at the end of a keyword allows wildcard searches
  • " quotes can be used for searching phrases
  • + represents an AND search (default)
  • | represents an OR search
  • - represents a NOT operation
  • ( and ) implies priority
  • ~N after a word specifies the desired edit distance (fuzziness)
  • ~N after a phrase specifies the desired slop amount
  • 1 (current)
Found 14 result(s)

Agency for Healthcare Research and Quality, Data & Surveys

AHRQ data & surveys

Subject(s)
Content type(s)
Country
A collection of data at Agency for Healthcare Research and Quality (AHRQ) supporting research that helps people make more informed decisions and improves the quality of health care services. The portal contains U.S.Health Information Knowledgebase (USHIK) and Systematic Review Data Repository (SRDR) and other sources concerning cost, quality, accesibility and evaluation of healthcare and medical insurance.

United States Health Information Knowledgebase

USHIK

Subject(s)
Content type(s)
Country
<<<!!!<<< USHIK was archived because some of the metadata are maintained by other sites and there is no need for duplication. The USHIK metadata registry was a neutral repository of metadata from an authoritative source used to promote interoperability and reuse of data. The registry did not attempt to change the metadata content but rather provided a structured way to view data for the technical or casual user. Complete information see: https://www.ahrq.gov/data/ushik.html >>>!!!>>>

YODA Project

Yale University Open Data Access

Subject(s)
Content type(s)
Country
The YODA Project is an effort by a group of academically-based clinical researchers to facilitate access to participant-level clinical research data and/or comprehensive reports of clinical research, such as full Clinical Study Reports (CSRs), a level of detail not customarily found in journal publications, with the aim of promoting scientific research that may advance science or lead to improvements in individual and public health and healthcare delivery. The YODA Project is guided by the following core principles, which reflect the overall mission of the project to promote open science by: Promoting the sharing of clinical research data to advance science and improve public health and healthcare, Promoting the responsible conduct of research, Ensuring good stewardship of clinical research data, and Protecting the rights of research participants

ISRCTN Registry

International Standard Randomised Controlled Trial Number Registry

Subject(s)
Content type(s)
Country
The ISRCTN registry is a primary clinical trial registry recognised by WHO and ICMJE that accepts all clinical research studies (whether proposed, ongoing or completed), providing content validation and curation and the unique identification number necessary for publication. All study records in the database are freely accessible and searchable. ISRCTN supports transparency in clinical research, helps reduce selective reporting of results and ensures an unbiased and complete evidence base. ISRCTN accepts all studies involving human subjects or populations with outcome measures assessing effects on human health and well-being, including studies in healthcare, social care, education, workplace safety and economic development.

Minnesota Population Center

MPC

Subject(s)
Content type(s)
Country
The Minnesota Population Center (MPC) is a University-wide interdisciplinary cooperative for demographic research. The MPC serves more than 80 faculty members and research scientists from eight colleges and institutes at the University of Minnesota. As a leading developer and disseminator of demographic data, we also serve a broader audience of some 50,000 demographic researchers worldwide. MPC is a DataONE member node: https://search.dataone.org/#profile/US_MPC

ClinicalCodes.org

ClinicalCodes repository

Subject(s)
Content type(s)
Country
The ClinicalCodes repository aims to hold code lists for all published electronic medical record studies, irrespective of code type (e.g. Read, ICD9-10, SNOMED) and database (CPRD, QResearch, THIN etc.). Once deposited, code lists will be freely available, with no login needed to download codes.

LifeMap Discovery

Embryonic development & stem cell Compendium

Subject(s)
Content type(s)
Country
LifeMap Discovery® is a compendium of embryonic development for stem cell research and regenerative medicine, constructed by integrating extensive molecular, cellular, anatomical and medical data curated from scientific literature and high-throughput data sources.

INTREPID bioinformatics

Subject(s)
Content type(s)
Country
!!! >>> intrepidbio.com expired <<< !!!! Intrepid Bioinformatics serves as a community for genetic researchers and scientific programmers who need to achieve meaningful use of their genetic research data – but can’t spend tremendous amounts of time or money in the process. The Intrepid Bioinformatics system automates time consuming manual processes, shortens workflow, and eliminates the threat of lost data in a faster, cheaper, and better environment than existing solutions. The system also provides the functionality and community features needed to analyze the large volumes of Next Generation Sequencing and Single Nucleotide Polymorphism data, which is generated for a wide range of purposes from disease tracking and animal breeding to medical diagnosis and treatment.

Nightingale Open Science

NGSCI

Subject(s)
Content type(s)
Country
Nightingale Open Science creates rich clinical datasets, linking imaging and waveforms to key health outcomes, and make them available to researchers, teachers, and learners around the world.

HealthData.gov

Subject(s)
Content type(s)
Country
This site is dedicated to making high value health data more accessible to entrepreneurs, researchers, and policy makers in the hopes of better health outcomes for all. In a recent article, Todd Park, United States Chief Technology Officer, captured the essence of what the Health Data Initiative is all about and why our efforts here are so important.

Scientific Data Repository

Data Repository. Interactive Analytics, Exploration & Visualization.

Subject(s)
Content type(s)
Country
A machine learning data repository with interactive visual analytic techniques. This project is the first to combine the notion of a data repository with real-time visual analytics for interactive data mining and exploratory analysis on the web. State-of-the-art statistical techniques are combined with real-time data visualization giving the ability for researchers to seamlessly find, explore, understand, and discover key insights in a large number of public donated data sets. This large comprehensive collection of data is useful for making significant research findings as well as benchmark data sets for a wide variety of applications and domains and includes relational, attributed, heterogeneous, streaming, spatial, and time series data as well as non-relational machine learning data. All data sets are easily downloaded into a standard consistent format. We also have built a multi-level interactive visual analytics engine that allows users to visualize and interactively explore the data in a free-flowing manner.

CardiacAI Data Repository

Cardiac Analaytics and Innovation Data Repository

Subject(s)
Content type(s)
Country
The team have established the CardiacAI Data Repository that brings large amounts of Australian healthcare data together in a secure environment with strict conditions for use of these data with an appropriate level of oversight of research activities. The CardiacAI Data Repository collects de-identified EMR data about cardiovascular patients who are admitted to a group of urban and regional hospitals in NSW and links this with state-wide hospital and emergency deparment visit and mortality data and mobile-health remote monitoring data.

Gazel

The Gazel cohort

Subject(s)
Content type(s)
Country
GAZEL is an open epidemiologic laboratory. Like major scientific instruments (telescopes or particle accelerators, for example, or genotyping laboratories equipped with sequencers), GAZEL was not constructed to answer a specific question. Instead it was designed to help analyze a wide range of scientific problems and is accessible to the community of researchers specializing in epidemiology. In accordance with its purpose as a scientific research platform, the GAZEL cohort is permanently open to epidemiologic research teams. Today, more than 50 projects on very diversified themes have been set up in GAZEL by some 20 teams, French, belonging to different bodies, and foreign (Germany, Belgium, Canada, Great Britain, Sweden, Finland, and USA).

45 and Up Study

Subject(s)
Content type(s)
Country
More than a quarter of a million people — one in 10 NSW men and women aged over 45 — have been recruited to our 45 and Up Study, the largest ongoing study of healthy ageing in the Southern Hemisphere. The baseline information collected from all of our participants is available in the Study’s Data Book. This information, which researchers use as the basis for their analyses, contains information on key variables such as height, weight, smoking status, family history of disease and levels of physical activity. By following such a large group of people over the long term, we are developing a world-class research resource that can be used to boost our understanding of how Australians are ageing. This will answer important health and quality-of-life questions and help manage and prevent illness through improved knowledge of conditions such as cancer, heart disease, depression, obesity and diabetes.