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THIN has created a medical research database of anonymised patient records from information entered by general practices in their ViSion systems. THIN will supply anonymised data (with the identities of patients and practices fully protected) to approved researchers for drug safety and epidemiological studies. Such research will be approved by the appropriate ethics/scientific committee. The anonymised patient data will be collected from the practice's Vision clinical system, with the help of In Practice Systems, on a regular basis without interruption to the running of the system. CSD Medical Research UK can supply non-interventional, anonymised, longitudinal patient data for UK, France, Italy, Germany, Spain, Belgium and Australia. Data for the USA will be available in the near future.
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A small genotype data repository containing data used in recent papers from the Estonian Biocentre. Most of the data pertains to human population genetics. PDF files of the papers are also freely available.
The Behavioral Risk Factor Surveillance System (BRFSS) is the world's largest, on-going telephone health survey system. As a result, surveys were developed and conducted to monitor state-level prevalence of the major behavioral risks among adults associated with premature morbidity and mortality. The basic philosophy was to collect data on actual behaviors, rather than on attitudes or knowledge, that would be especially useful for planning, initiating, supporting, and evaluating health promotion and disease prevention programs. Currently data are collected monthly in all 50 states.
The Medical Expenditure Panel Survey (MEPS) is a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States. MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.