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Found 66 result(s)

45 and Up Study

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More than a quarter of a million people — one in 10 NSW men and women aged over 45 — have been recruited to our 45 and Up Study, the largest ongoing study of healthy ageing in the Southern Hemisphere. The baseline information collected from all of our participants is available in the Study’s Data Book. This information, which researchers use as the basis for their analyses, contains information on key variables such as height, weight, smoking status, family history of disease and levels of physical activity. By following such a large group of people over the long term, we are developing a world-class research resource that can be used to boost our understanding of how Australians are ageing. This will answer important health and quality-of-life questions and help manage and prevent illness through improved knowledge of conditions such as cancer, heart disease, depression, obesity and diabetes.

ABCD Data Repository

Adolescent Brain Cognitive Development

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The ABCD Data Repository houses all data generated by the Adolescent Brain Cognitive Development (ABCD) Study. The ABCD Study is supported by NIH partners (the National Institute on Drug Abuse, the National Institute on Alcohol Abuse and Alcoholism, the National Cancer Institute, the Eunice Kennedy Shriver National Institute of Child Health and Human Development, the National Institute of Mental Health, the National Institute on Minority Health and Health Disparities, the National Institute of Neurological Disorders and Stroke, the NIH Office of Behavioral and Social Sciences Research, and the NIH Office of Research on Women’s Health), as well as the Centers for Disease Control and Prevention – Division of Adolescent and School Health. This repository will store data generated by ABCD investigators, serve as a collaborative platform for harmonizing these data, and share those data with qualified researchers.

Agency for Healthcare Research and Quality, Data & Surveys

AHRQ data & surveys

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A collection of data at Agency for Healthcare Research and Quality (AHRQ) supporting research that helps people make more informed decisions and improves the quality of health care services. The portal contains U.S.Health Information Knowledgebase (USHIK) and Systematic Review Data Repository (SRDR) and other sources concerning cost, quality, accesibility and evaluation of healthcare and medical insurance.

AHRI Data Repository

Africa Health Research Institute Data Repository

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The Africa Health Research Institute (AHRI) has published its updated analytical datasets for 2016. The datasets cover socio-economic, education and employment information for individuals and households in AHRI’s population research area in rural northern KwaZulu-Natal. The datasets also include details on the migration patterns of the individuals and households who migrated into and out of the surveillance area as well as data on probable causes of death for individuals who passed away. Data collection for the 2016 individual interviews – which involves a dried blood spot sample being taken – is still in progress, and therefore datasets on HIV status and General Health only go up to 2015 for now. Over the past 16 years researchers have developed an extensive longitudinal database of demographic, social, economic, clinical and laboratory information about people over the age of 15 living in the AHRI population research area. During this time researchers have followed more than 160 000 people, of which 92 000 are still in the programme.

Androgen Receptor Mutations Database

AR Gene Mutations Database

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Androgen Receptor Gene Mutations Database is for all who are interested in mutations of the Androgen Receptor Gene. In light of the difficulty in getting new AR mutations published the curator will now accept new mutations that have not been published, provided that it is from a reputable research or clinical laboratory. The curator also strongly suggests that where possible, particularly in the case of new unique mutations that an attempt be made to at least confirm the pathogenicity of the putatative mutation, by showing that the mutation when transfected into a suitable expression system produces a mutant androgen receptor protein.

ARS

Antibiotika-Resistenz-Surveillance

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With ARS - Antimicrobial Resistance Surveillance in Germany - the infrastructure for a nationwide surveillance of antimicrobial resistance has been established, which covers both the inpatient medical care and the ambulatory care sector. This is intended to reliable data on the epidemiology of antimicrobial resistance in Germany and differential statements provided by structural features of the health care and by region are possible. ARS is designed as a laboratory-based surveillance system for continuous collection of resistance data from routine for the full range of clinically relevant bacterial pathogens. Project participants and thus data suppliers are laboratories that analyze samples of medical facilities and doctors' offices microbiologically.

Biobank of blood donors

Biobank der Blutspender

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With its “Blood Donor BIOBANK”, the Bavarian Red Cross (BRK) Blood Donor Service offers a unique and innovative resource for biomarker research: the world’s first blood donor based biobank. Biobanks as collections of biological material together with associated medical data open new possibilities for the development of new targeted diagnostics and therapies. The BRK Blood Donor Service maintains a unique collection of over 3 million blood samples, making it one of the largest sample collections worldwide. Every working day 2,000 new samples are added to the collection.

Biobanque québécoise de la COVID-19

BQC19

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The Biobanque québécoise de la COVID-19 (BQC19) is a pan-provincial initiative that collects, stores and shares data and blood samples from COVID-19 patients, both severe and non-severe cases and control cases, in an effort to respond effectively to the public health challenges posed by the pandemic. BQC19 believes that better understanding the disease will help society in returning to social activities and in preparing for future pandemics. It sees access to high-quality samples and data as essential in fulfilling research and works to bring about national and international research collaborations.

Biogrid Australia

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BioGrid Australia Limited operates a federated data sharing platform for collaborative translational health and medical research providing a secure infrastructure that advances health research by linking privacy-protected and ethically approved data among a wide network of health collaborators. BioGrid links real-time de-identified health data across institutions, jurisdictions and diseases to assist researchers and clinicians improve their research and clinical outcomes. The web-based infrastructure provides ethical access while protecting both privacy and intellectual property.

Canadian Institute for Health Information Repository

CIHI's Repository

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The Canadian Institute for Health Information (CIHI) provides comparable and actionable data and information that are used to accelerate improvements in health care, health system performance and population health across Canada.

Center for Demography of Health and Aging

CDHA

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The CDHA assists researchers to create, document, and distribute public use microdata on health and aging for secondary analysis. Major research themes include: midlife development and aging; economics of population aging; inequalities in health and aging; international comparative studies of health and aging; and the investigation of linkages between social-demographic and biomedical research in population aging. The CDHA is one of fourteen demography centers on aging sponsored by the National Institute on Aging.

Chesapeake Bay Data Hub

Chesapeake Bay Program

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This interface provides access to several types of data related to the Chesapeake Bay. Bay Program databases can be queried based upon user-defined inputs such as geographic region and date range. Each query results in a downloadable, tab- or comma-delimited text file that can be imported to any program (e.g., SAS, Excel, Access) for further analysis. Comments regarding the interface are encouraged. Questions in reference to the data should be addressed to the contact provided on subsequent pages.

ClinicalCodes.org

ClinicalCodes repository

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The ClinicalCodes repository aims to hold code lists for all published electronic medical record studies, irrespective of code type (e.g. Read, ICD9-10, SNOMED) and database (CPRD, QResearch, THIN etc.). Once deposited, code lists will be freely available, with no login needed to download codes.

Covid-19 Immunity Task Force Databank

CITF

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From April 2020 to March 2023, the Covid-19 Immunity Task Force (CITF) supported 120 studies to generate knowledge about immunity to SARS-CoV-2. The subjects addressed by these studies include the extent of SARS-CoV-2 infection in Canada, the nature of immunity, vaccine effectiveness and safety, and the need for booster shots among different communities and priority populations in Canada. The CITF Databank was developed to further enhance the impact of CITF funded studies by allowing additional research using the data collected from CITF-supported studies. The CITF Databank centralizes and harmonizes individual-level data from CITF-funded studies that have met all ethical requirements to deposit data in the CITF Databank and have completed a data sharing agreement. The CITF Databank is an internationally unique resource for sharing epidemiological and laboratory data from studies about SARS-CoV-2 immunity in different populations. The types of research that are possible with data from the CITF Databank include observational epidemiological studies, mathematical modelling research, and comparative evaluation of surveillance and laboratory methods.

Curtin University Research Data Collection

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Curtin University has 2758 data records in Research Data Australia, which cover 527 subjects areas including EARTH SCIENCES, GEOLOGY and MINERAL EXPLORATION and involve 64 group(s).

Data Sharing for Demographic Research

A data archive for demography and population sciences

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Data Sharing for Demographic Research (DSDR) aims to serve the demographic community by archiving, preserving, and and disseminating data relevant for population studies

Diabetes Study of Northern California

DISTANCE

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<<<!!!<<< This repository is no longer available. >>>!!!>>> The Diabetes Study of Northern California (DISTANCE) conducts epidemiological and health services research in diabetes among a large, multiethnic cohort of patients in a large, integrated health care delivery system.

diversitydata.org

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diversitydata.org is an online tool for exploring quality of life data across metropolitan areas for people of different racial/ethnic groups in the United States. It provides values and rankings for the largest U.S. metropolitan areas on different indicators in 8 areas of life (domains), including demographics, education, economic opportunity, housing, neighborhoods, and health. It also provides a simple mapping utility, showing the range of indicator values for metros across the U.S. Data from 1999 indicators is archives in the companion Diversity Data Archive (https://diversitydata-archive.org/). For a wider selection of data on child wellbeing, visit our partner site, diversitydatakids.org (https://www.diversitydatakids.org/). diversitydata.org has been named a Health Data All Star by the Health Data Consortium. The list was compiled in consultation with leading health researchers, government officials, entrepreneurs, advocates and others to identify the health data resources that matter most.

EUROCAT

European Surveillance of Congenital Anomalies

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A European network of population-based registries for the epidemiologic surveillance of congenital anomalies.

European Centre for Disease Prevention and Control

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ECDC is an EU agency aimed at strengthening Europe's defences against infectious diseases. The core functions cover a wide spectrum of activities: surveillance, epidemic intelligence, response, scientific advice, microbiology, preparedness, public health training, international relations, health communication, and the scientific journal Eurosurveillance. Within the field of its mission, the Centre shall: search for, collect, collate, evaluate and disseminate relevant scientific and technical data; provide scientific opinions and scientific and technical assistance including training; provide timely information to the Commission, the Member States, Community agencies and international organisations active within the field of public health; coordinate the European networking of bodies operating in the fields within the Centre's mission, including networks that emerge from public health activities supported by the Commission and operating the dedicated surveillance networks; exchange information, expertise and best practices, and facilitate the development and implementation of joint actions.

Exposome-Explorer

Exposome-Explorer database

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Exposome-Explorer is the first database dedicated to biomarkers of exposure to environmental risk factors for diseases. It contains detailed information on the nature of biomarkers, populations and subjects where measured, samples analyzed, methods used for biomarker analyses, concentrations in biospecimens, correlations with external exposure measurements, and biological reproducibility over time.

Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder

Research Data Centres of the Federal Statistical Offices and of the Statistical Offices of the Federal States

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The basic goal of the research data centres of the statistical offices of the Federation and the Länder is to improve the accessibility and usability of microdata of official statistics by setting up various ways of using the data. Research data centres of the Federal Statistical Office (FDZ-Bund) and the statistical offices of the Länder (FDZ-Länder) provide collectively access to selected microdata of official statistics to researchers for scientific purposes.

Forschungsdatenzentrum des Deutschen Zentrum für Altersfragen

FDZ-DZA

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The FDZ-DZA (Forschungsdatenzentrum DZA) is a facility of the German Centre of Gerontology (Deutsches Zentrum für Altersfragen, DZA) and has received accreditation as research data center DZA by the German Data Forum (RatSWD). Its main task is to make data of the German Ageing Survey DEAS and the German Survey on Volunteering (FWS) accessible to researchers by providing user-friendly Scientific Use Files (SUF), documentation of the contents and instruments as well support for scholars using the data.

Gambling Research Exchange Dataverse

GREO

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Gambling Research Exchange Ontario (GREO) is a knowledge translation and exchange organization that aims to eliminate harm from gambling. Our goal is to support evidence-informed decision making in responsible gambling policies, standards and practices. In line with this mandate, datasets curated in this archive relate to gambling and reducing gambling related harms.

Global Health Observatory Data Repository

GHO Data Repository

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The GHO data repository is WHO's gateway to health-related statistics for its 194 Member States. It provides access to over 1000 indicators on priority health topics including mortality and burden of diseases, the Millennium Development Goals (child nutrition, child health, maternal and reproductive health, immunization, HIV/AIDS, tuberculosis, malaria, neglected diseases, water and sanitation), non communicable diseases and risk factors, epidemic-prone diseases, health systems, environmental health, violence and injuries, equity among others. In addition, the GHO provides on-line access to WHO's annual summary of health-related data for its Member states: the World Health Statistics.