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Found 41 result(s)
Research Data Centres offer a secure access to detailed microdata from Statistics Canada's surveys, and to Canadian censuses' data, as well as to an increasing number of administrative data sets. The search engine was designed to help you find out more easily which dataset among all the surveys available in the RDCs best suits your research needs.
The National Cancer Data Base (NCDB), a joint program of the Commission on Cancer (CoC) of the American College of Surgeons (ACoS) and the American Cancer Society (ACS), is a nationwide oncology outcomes database for more than 1,500 Commission-accredited cancer programs in the United States and Puerto Rico. Some 70 percent of all newly diagnosed cases of cancer in the United States are captured at the institutional level and reported to the NCDB. The NCDB, begun in 1989, now contains approximately 29 million records from hospital cancer registries across the United States. Data on all types of cancer are tracked and analyzed. These data are used to explore trends in cancer care, to create regional and state benchmarks for participating hospitals, and to serve as the basis for quality improvement.
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.
The CARMEN pilot project seeks to create a virtual laboratory for experimental neurophysiology, enabling the sharing and collaborative exploitation of data, analysis code and expertise. This study by the DCC contributes to an understanding of the data curation requirements of the eScience community, through its extended observation of the CARMEN neurophysiology community’s specification and selection of solutions for the organisation, access and curation of digital research output.
The UC San Diego Library Digital Collections website gathers two categories of content managed by the Library: library collections (including digitized versions of selected collections covering topics such as art, film, music, history and anthropology) and research data collections (including research data generated by UC San Diego researchers).
ResearchWorks Archive is the University of Washington’s digital repository (also known as “institutional repository”) for disseminating and preserving scholarly work. ResearchWorks Archive can accept any digital file format or content (examples include numerical datasets, photographs and diagrams, working papers, technical reports, pre-prints and post-prints of published articles).
The Research Collection is ETH Zurich's publication platform. It unites the functions of a university bibliography, an open access repository and a research data repository within one platform. Researchers who are affiliated with ETH Zurich, the Swiss Federal Institute of Technology, may deposit research data from all domains. They can publish data as a standalone publication, publish it as supplementary material for an article, dissertation or another text, share it with colleagues or a research group, or deposit it for archiving purposes. Research-data-specific features include flexible access rights settings, DOI registration and a DOI preview workflow, content previews for zip- and tar-containers, as well as download statistics and altmetrics for published data. All data uploaded to the Research Collection are also transferred to the ETH Data Archive, ETH Zurich’s long-term archive.
SSDA Dataverse is one of the archiving opportunities of SSDA, the others are: Data can be archived by SSDA itself ( or by ICPSR or by UCLA Library or by California Digital Library. The Social Science Data Archives serves the UCLA campus as an archive of faculty and graduate student survey research. We provide long term storage of data files and documentation. We ensure that the data are useable in the future by migrating files to new operating systems. We follow government standards and archival best practices. The mission of the Social Science Data Archive has been and continues to be to provide a foundation for social science research with faculty support throughout an entire research project involving original data collection or the reuse of publicly available studies. Data Archive staff and researchers work as partners throughout all stages of the research process, beginning when a hypothesis or area of study is being developed, during grant and funding activities, while data collection and/or analysis is ongoing, and finally in long term preservation of research results. Our role is to provide a collaborative environment where the focus is on understanding the nature and scope of research approach and management of research output throughout the entire life cycle of the project. Instructional support, especially support that links research with instruction is also a mainstay of operations.
Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
The WorldWide Antimalarial Resistance Network (WWARN) is a collaborative platform generating innovative resources and reliable evidence to inform the malaria community on the factors affecting the efficacy of antimalarial medicines. Access to data is provided through diverse Tools and Resources: WWARN Explorer, Molecular Surveyor K13 Methodology, Molecular Surveyor pfmdr1 & pfcrt, Molecular Surveyor dhfr & dhps.
In the framework of the Collaborative Research Centre/Transregio 32 ‘Patterns in Soil-Vegetation-Atmosphere Systems: Monitoring, Modelling, and Data Assimilation’ (CRC/TR32,, funded by the German Research Foundation from 2007 to 2018, a RDM system was self-designed and implemented. The so-called CRC/TR32 project database (TR32DB, is operating online since early 2008. The TR32DB handles all data including metadata, which are created by the involved project participants from several institutions (e.g. Universities of Cologne, Bonn, Aachen, and the Research Centre Jülich) and research fields (e.g. soil and plant sciences, hydrology, geography, geophysics, meteorology, remote sensing). The data is resulting from several field measurement campaigns, meteorological monitoring, remote sensing, laboratory studies and modelling approaches. Furthermore, outcomes of the scientists such as publications, conference contributions, PhD reports and corresponding images are collected in the TR32DB.
The Brown Digital Repository (BDR) is a place to gather, index, store, preserve, and make available digital assets produced via the scholarly, instructional, research, and administrative activities at Brown.
The Scholars Portal Dataverse network is a repository for research data collected by individuals and organizations associated with Ontario universities. The Dataverse platform makes it easy for researchers to deposit data, create appropriate metadata, and version documents as you work. Access to data and supporting documentation can be controlled down to the file level, and researchers can choose to make content available publicly, only to select individuals, or to keep it completely locked.
NACDA acquires and preserves data relevant to gerontological research, processing as needed to promote effective research use, disseminates them to researchers, and facilitates their use. By preserving and making available the largest library of electronic data on aging in the United States, NACDA offers opportunities for secondary analysis on major issues of scientific and policy relevance
The arctic data archive system (ADS) collects observation data and modeling products obtained by various Japanese research projects and gives researchers to access the results. By centrally managing a wide variety of Arctic observation data, we promote the use of data across multiple disciplines. Researchers use these integrated databases to clarify the mechanisms of environmental change in the atmosphere, ocean, land-surface and cryosphere. That ADS will be provide an opportunity of collaboration between modelers and field scientists, can be expected.
The University of Lincoln's Institutional Repository is for the permanent deposit of research outputs produced by the University. Repository content can be browsed or searched through this website or through searching the internet. Wherever possible, repository content is freely available for download and use according to our Copyright and Use Notice.
DR-NTU (Data) is the institutional open access research data repository for Nanyang Technological University (NTU). NTU researchers are encouraged to use DR-NTU (Data) to deposit, publish and archive their final research data in order to make their research data discoverable, accessible and reusable.
The Centre for Clinical Trials Cologne (Köln ZKS) aims to support all processes of clinical trials and the quality of patient-oriented clinical research in an academic environment. It supports doctors of University Hospital of Cologne, other clinics, study groups and professional associations in the design and conduct of clinical trials. For the pharmaceutical industry and contract research organizations, the ZKS Köln is a clinic near partner for medical research projects.
The figshare service for The Open University was launched in 2016 and allows researchers to store, share and publish research data. It helps the research data to be accessible by storing metadata alongside datasets. Additionally, every uploaded item receives a Digital Object Identifier (DOI), which allows the data to be citable and sustainable. If there are any ethical or copyright concerns about publishing a certain dataset, it is possible to publish the metadata associated with the dataset to help discoverability while sharing the data itself via a private channel through manual approval.
The Avian Knowledge Network (AKN) is an international network of governmental and non-governmental institutions and individuals linking avian conservation, monitoring and science through efficient data management and coordinated development of useful solutions using best-science practices based on the data.
IDEALS is an institutional repository that collects, disseminates, and provides persistent and reliable access to the research and scholarship of faculty, staff, and students at the University of Illinois at Urbana-Champaign. Faculty, staff, graduate students, and in some cases undergraduate students, can deposit their research and scholarship directly into IDEALS. Departments can use IDEALS to distribute their working papers, technical reports, or other research material. Contact us at for more information.
IDA is a storage service for research data provided by the Ministry of Education and Culture to actors in the Finnish research system. The service is produced by CSC – IT Center for Science (CSC). IDA enables the safe storage of research datasets and related metadata. Access to the data may be granted within the research project or for a wider group of users. The service is intended for stable research data, both raw data and processed datasets. Owners of the data decide on the openness and usage policies for their own data. The service is not intended for data containing sensitive personal data. The data stored in the service must be connected to a research project. The person responsible for the project acts as a contact person towards the service provider and decides who can access the data in the project. Users may belong to one or more projects. Data stored in IDA is checked for viruses and integrity upon receipt. Data is automatically copied and the integrity of both the original files and copies is monitored. The service is offered to Finnish universities and polytechnics as well as projects and researchers funded by the Academy of Finland.
>>>!!!<<< The Monash University Research Repository is being developed into three new repositories to better manage the research data and open access publications needs of the University. These repositories are the most recent developments in research data and open access publication management for the discovery, citation and reuse of research outcomes. The collections of the former ARROW repository will be progressively moved, with publications going to MyResearch, research data and theses into Figshare, and Library special collections into Monash Collections Online. >>>!!!<<< The Monash University Research Repository provides a place for the Monash research community to store and manage digital research data and related publications. The repository aims to promote Monash research by making it discoverable and accessible online for the world wide research community. The repository contains accepted versions of published works like books, book chapters, journal articles and conference papers. Non-published manuscripts and grey literature like theses, technical reports, working and discussion papers, and conference posters are collected. Research data holdings, data sets, image collections, audio and video files are also included in the repository. -- monash.figshare is the research data and theses repository for Monash. It allows researchers to manage, store, share and publish their research data as citable research outputs with a DOI. Researchers control who can access their data in a variety of ways. monash.figshare is used by students to submit their theses which are then verified/accepted by Library staff.
PSI is a global health organization dedicated to improving the health of people in the developing world by focusing on serious challenges like a lack of family planning, HIV and AIDS, barriers to maternal health, and the greatest threats to children under five, including malaria, diarrhea, pneumonia and malnutrition. A hallmark of PSI is a commitment to the principle that health services and products are most effective when they are accompanied by robust communications and distribution efforts that help ensure wide acceptance and proper use. PSI works in partnership with local governments, ministries of health and local organizations to create health solutions that are built to last. We use original data to monitor and evaluate our programs, generate consumer insight, estimate the impact of our solutions, and evaluate the health of the markets we work to strengthen.