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ALSPAC is a longitudinal birth cohort study which enrolled pregnant women who were resident in one of three Bristol-based health districts in the former County of Avon with an expected delivery date between 1st April 1991 and 31st December 1992. Around 14,000 pregnant women were initially recruited. Detailed information has been collected on these women, their partners and subsequent children using self-completion questionnaires, data extraction from medical notes, linkage to routine information systems and from hands-on research clinics. Additional cohorts of participants have since been enrolled in their own right including fathers, siblings, children of the children and grandparents of the children. Ethical approval for the study was obtained from the ALSPAC Ethics and Law Committee (IRB00003312) and Local Research Ethics.
TRAILS is a prospective cohort study, which started in 2001 with population cohort and 2004 with a clinical cohort (CC). Since then, a group of 2500 young people from the Northern part of the Netherlands has been closely monitored in order to chart and explain their mental, physical, and social development. These TRAILS participants have been measured every two to three years, by means of questionnaires, interviews, and all kinds of tests. By now, we have collected information that spans the total period from preadolescence up until young adulthood. One of the main goals of TRAILS is to contribute to the knowledge of the development of emotional and behavioral problems and the (social) functioning of preadolescents into adulthood, their determinants, and underlying mechanisms.
The HSRC Research Data Service provides a digital repository facility for the HSRC's research data in support of evidence based human and social development in South Africa and the broader region. It includes both quantitative and qualitative data. Access to data is dependent on ethical requirements for protecting research participants, as well as on legal agreements with the owners, funders or in the case of data owned by the HSRC, the requirements of the depositors of the data.
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The “ICSSR Data Service” is culmination of signing of Memorandum of Understanding (MoU) between Indian Council of Social Science Research (ICSSR) and Ministry of Statistics and Programme Implementation (MoSPI). The MoU provides for setting-up of “ICSSR Data Service: Social Science Data Repository” and host NSS and ASI datasets generated by MoSPI. Under the initiative, social science research institutes, NGOs, individuals and others dealing with social science research are also being approached to deposit / provide their research datasets for hosting into the repository of ICSSR Data Service. The ICSSR Data Service includes social science and statistical datasets of various national-level surveys on debt & investment, domestic tourism, enterprise survey, employment and unemployment, housing condition, household consumer expenditure, health care, etc., into its repository. ICSSR Data Service aims to facilitate data sharing, preservation, accessibility and reuse of social science research data collected from entire social science community in India & abroad. The Information and Library Network (INFLIBNET) Centre, Gandhinagar has been assigned the task of setting-up the data repository.