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Found 37 result(s)
ALSPAC is a longitudinal birth cohort study which enrolled pregnant women who were resident in one of three Bristol-based health districts in the former County of Avon with an expected delivery date between 1st April 1991 and 31st December 1992. Around 14,000 pregnant women were initially recruited. Detailed information has been collected on these women, their partners and subsequent children using self-completion questionnaires, data extraction from medical notes, linkage to routine information systems and from hands-on research clinics. Additional cohorts of participants have since been enrolled in their own right including fathers, siblings, children of the children and grandparents of the children. Ethical approval for the study was obtained from the ALSPAC Ethics and Law Committee (IRB00003312) and Local Research Ethics.
B2SAFE is a robust, safe and highly available service which allows community and departmental repositories to implement data management policies on their research data across multiple administrative domains in a trustworthy manner. A solution to: provide an abstraction layer which virtualizes large-scale data resources, guard against data loss in long-term archiving and preservation, optimize access for users from different regions, bring data closer to powerful computers for compute-intensive analysis
Born in Bradford is one of the biggest and most important medical research studies undertaken in the UK. The project started in 2007 and is looking to answer questions about our health by tracking the lives of 13,500 babies and their families and will provide information for studies across the UK and around the world. The aim of Born in Bradford is to find out more about the causes of childhood illness by studying children from all cultures and backgrounds as their lives unfold.
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CaPSURE™ is a longitudinal, observational study of approximately 15,000 men with all stages of biopsy-proven prostate cancer. Patients have enrolled at 43 community urology practices, academic medical centers, and VA hospitals throughout the United States since 1995. CEASAR stands for Comparative Effectiveness Analysis of Surgery and Radiation. The ongoing goal of CEASAR is to help learn more about what prostate cancer treatments work best, for which patients, in whose hands. There are currently about 3,600 men with a prostate cancer diagnosis participating in CEASAR. Three rounds of surveys have been completed, with the first carried out in the spring of 2010. We are currently in the process of conducting our fourth survey with the same group of men in our study. This survey, our Three Year Follow-up, will occur throughout the summer of 2014.
CARIBIC is an innovative scientific project to study and monitor important chemical and physical processes in the Earth´s atmosphere. Detailed and extensive measurements are made during long distance flights. We deploy an airfreight container with automated scientific apparatus which are connected to an air and particle (aerosol) inlet underneath the aircraft. We use an Airbus A340-600 from Lufthansa since December 2004.
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.
Country
The Cross-National Time-Series Data Archive (CNTS) was initiated by Arthur S. Banks in 1968 with the aim of assembling, in machine readable, longitudinal format, certain of the aggregate data resources of The Statesman’s Yearbook. The CNTS offers a listing of international and national country-data facts. The dataset contains statistical information on a range of countries, with data entries ranging from 1815 to the present.
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data.deic.dk is an online data storage and synchronization service provided by the Danish e-Infrastructure Cooperation (DeIC), specifically aimed at researchers and scientists at Danish academic institutions. The service is primarily intended for working with and sharing active research data as well as for safekeeping of large datasets. Such data can be put in an area ('/Data') that is specifically not synced, i.e. not copied to desktops, laptops and mobile devices by the sync clients. Instead the data can be accessed and manipulated via the web interface, file transfer clients or the command line. The service is built on and with open-source software from the ground up: FreeBSD, ZFS, Apache, PHP, ownCloud+apps. DeIC is actively engaged in community efforts on developing such apps, and some are available as previews of things to come - including apps for getting large amounts of data into the system and tagging with meta-data. Our servers are attached directly to the 10-Gigabit backbone of "Forskningsnettet" - implying that wired up and download speed from Danish academic institutions is in principle comparable to those of an external USB hard drive.
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EMS is the BC Ministry of Environment's primary monitoring data repository. The system was designed to capture data covering physical/chemical and biological analyses performed on water, air, solid waste discharges and ambient monitoring sites throughout the province. It also contains related quality assurance data. Samples are collected by either ministry staff or permittees under the Environmental Management Act and then analyzed in public or private sector laboratories. The majority of such monitoring data is entered into EMS electronically via Electronic Data Transfer (EDT). EMS data is typically available in formatted hard copy reports or electronically in comma delimited (e.g., .csv) files as: Monitoring location-related data, Sample and results-related data. Direct access to EMS is restricted to ministry staff, however public access is available upon request through EMS Web Reporting (http://www.env.gov.bc.ca/emswr/).
Country
The RDSC provides researchers access to selected microdata from the Bundesbank's data records for independent and non-commercial scientific research projects on basis of the legal requirements. The RDSC is the mediator between the Bundesbank’s wide range of different micro data in various departments and – on the other side – researchers or analysts. In connection with this, the RDSC is responsible for the methodological improvement, the access of and the comprehensive documentation of the high-quality microdata. It also offers additional consultancy and support services to existing and prospective data users and satisfies data protection requirements.
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The Research Data Centre (FDZ) of the German Federal Employment Agency (BA) at the Institute for Employment Research (IAB) is intended mainly to facilitate access to BA and IAB micro data for non-commercial empirical research using standardised and transparent access rules. The FDZ mediates between data producers and external users. We also control for compliance with data protection regulations.
Fox DEN provides investigators with a tool to explore, download and apply statistical models on aggregated data collected for the Fox Insight online clinical study. The Fox Insight study collects patient-reported outcomes and genetic data from people with Parkinson's disease and their loved ones.
The Growing Up Today Study is a collaborative study between clinicians, researchers, and thousands of participants across the US and beyond. The aim of this study is to gain a deeper understanding of the factors that affect health throughout life. Together we are working to building one of the most powerful resources for fighting cancer, obesity, heart disease, depression, and so much more.
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IDA is a storage service for research data provided by the Ministry of Education and Culture to actors in the Finnish research system. The service is produced by CSC – IT Center for Science (CSC). IDA enables the safe storage of research datasets and related metadata. Access to the data may be granted within the research project or for a wider group of users. The service is intended for stable research data, both raw data and processed datasets. Owners of the data decide on the openness and usage policies for their own data. The service is not intended for data containing sensitive personal data. The data stored in the service must be connected to a research project. The person responsible for the project acts as a contact person towards the service provider and decides who can access the data in the project. Users may belong to one or more projects. Data stored in IDA is checked for viruses and integrity upon receipt. Data is automatically copied and the integrity of both the original files and copies is monitored. The service is offered to Finnish universities and polytechnics as well as projects and researchers funded by the Academy of Finland.
Older persons are often referred to physicians because of complaints of progressive difficulties in walking. The diagnostic and therapeutic approach to these patients is complex. Multiple physiologic subsystems may influence the ability to walk and no standard criteria are currently available to establish whether these subsystems are functioning within the “normal” range. To address lack of knowledge Dr. Luigi Ferrucci and Dr. Stefania Bandinelli conducted InCHIANTI, a representative population-based study of older persons living in the Chianti geographic area (Tuscany, Italy). The data collection started in September 1998 and was completed in March 2000. 3 and 6-year follow-up assessment of the InCHIANTI study population were performed in the years 2001-2003 and 2004-2006. A nine-year follow-up is already planned and funded through an NIA grant. The InCHIANTI Biobank is a collection of biological samples of the study population.
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The information system Graffiti in Germany (INGRID) is a cooperation project between the linguistics department at the University of Paderborn and the art history department at the Karlsruhe Institute of Technology (KIT). As part of the joint project, graffiti image collections will be compiled, stored in an image database and made available for scientific use. At present, more than 100,000 graffiti from the years 1983 to 2018 from major German cities are recorded, including Cologne, Mannheim and Munich.
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The Jülich Observatory for Cloud Evolution (JOYCE) operates ground-based active and passive remote sensing instruments for cloud and precipitation observations. ​JOYCE is based on a long-term successful collaboration between the University of Cologne, the University of Bonn and the Research Centre Jülich. Since 2017 JOYCE is transformed into a Core Facility (JOYCE - CF) funded by the DFG (Deutsche Forschungsgemeinschaft) with the aim of high quality radar and passive microwave observations of the atmosphere. JOYCE will serve as a reference center for best practices in data acquisition, storage and distribution. JOYCE instrumentation aims to observe spatial and temporal variability of atmospheric water cycle variables.
The Korea Polar Data Center (KPDC) is an organization dedicated for managing different types of data acquired during scientific research that South Korea carries out in Antarctic and Arctic regions. South Korea, as an Antarctic Treaty Consultative Party (ATCP) and an accredited member of the Scientific Committee on Antarctic Research (SCAR) established the Center in 2003 as part of its effort to joint international Antarctic research.
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The Population Health Research Data Repository housed at MCHP is a comprehensive collection of administrative, registry, survey, and other data primarily relating to residents of Manitoba. It was developed to describe and explain patterns of health care and profiles of health and illness, facilitating inter-sectoral research in areas such as health care, education, and social services.
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NAKALA allows research teams, who so request, to file their digital data (text files, sound, image, video) in a secure warehouse, which ensures both data availability and quotability time. NAKALA is a repository for humanities and social sciences. It's powered in France by Huma-Num, the french infrastructure for digital humanities.
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National Genomic Resources Repository is established as an institutional framework for methodical and centralized efforts to collect, generate, conserve and distribute genomic resources for agricultural research.
The National Trauma Data Bank® (NTDB) is the largest aggregation of trauma registry data ever assembled. The goal of the NTDB is to inform the medical community, the public, and decision makers about a wide variety of issues that characterize the current state of care for injured persons. Registry data that is collected from the NTDB is compiled annually and disseminated in the forms of hospital benchmark reports, data quality reports, and research data sets. Research data sets that can be used by researchers. To gain access to NTDB data, researchers must submit requests through our online application process
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This DOI repository provides permanent identifiers to data sets generated by Life Science researchers active in Sweden, and for which no other suitable public repository is available. BILS is a distributed national research infrastructure supported by the Swedish Research Council (Vetenskapsrådet) providing bioinformatics support to life science researchers in Sweden.
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The New York Brain Bank (NYBB) at Columbia University was established to collect postmortem human brains to meet the needs of neuroscientists investigating specific psychiatric and neurological disorders.