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Found 20 result(s)

Clinical data repository

CDR

Subject(s)
Content type(s)
Country
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.

Nightingale Open Science

NGSCI

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Content type(s)
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Nightingale Open Science creates rich clinical datasets, linking imaging and waveforms to key health outcomes, and make them available to researchers, teachers, and learners around the world.

Growing Up Today Study

GUTS

Subject(s)
Content type(s)
Country
<<<!!!<<< The 2019-2020 Questionnaire is no longer live. >>>!!!>>>

Brain-CODE

Brain-Centre for Ontario Data Exploration

Subject(s)
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Brain-CODE is a large-scale informatics platform that manages the acquisition and storage of multidimensional data collected from participants with a variety of brain disorders.

Pennington/Louisiana NORC Biorepository

Pennington/Louisiana Nutrition Obesity Research Center Biorepository

Subject(s)
Content type(s)
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The Pennington/Louisiana NORC Biorepository is a collection of de-identified data from studies of human subjects conducted at Pennington Biomedical Research Center since 1980. The repository includes data from trials centered around obesity and nutrition and those funded by the National Institutes of Health, Department of Defense, United States Department of Agriculture, American Heart Association, American Diabetes Association and other government and non-profit organizations.

Health Data Nova Scotia

HDNS

Subject(s)
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Health Data Nova Scotia (HDNS), is a data repository based in the Faculty of Medicine's, Department of Community Health and Epidemiology at Dalhousie University, focused on supporting data driven research for a healthier Nova Scotia. HDNS facilitates research and innovation in Nova Scotia by providing access to linkable administrative health data and analysis for research and health service assessment purposes in a secure, controlled environment, while respecting the privacy and confidentiality of Nova Scotians.

AHRI Data Repository

Africa Health Research Institute Data Repository

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The Africa Health Research Institute (AHRI) has published its updated analytical datasets for 2016. The datasets cover socio-economic, education and employment information for individuals and households in AHRI’s population research area in rural northern KwaZulu-Natal. The datasets also include details on the migration patterns of the individuals and households who migrated into and out of the surveillance area as well as data on probable causes of death for individuals who passed away. Data collection for the 2016 individual interviews – which involves a dried blood spot sample being taken – is still in progress, and therefore datasets on HIV status and General Health only go up to 2015 for now. Over the past 16 years researchers have developed an extensive longitudinal database of demographic, social, economic, clinical and laboratory information about people over the age of 15 living in the AHRI population research area. During this time researchers have followed more than 160 000 people, of which 92 000 are still in the programme.

West of Scotland Twenty-07 Study

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The Twenty-07 Study was set up in 1986 in order to investigate the reasons for differences in health by socio-economic circumstances, gender, area of residence, age, ethnic group, and family type. 4510 people are being followed for 20 years. The initial wave of data collection took place in 1987/8, when respondents were aged 15, 35 and 55. The final wave of data collection took place in 2007/08 when respondents were aged 35, 55 and 75. In this way the Twenty-07 Study provides us with unique opportunities to investigate both the changes in people's lives over 20 years and how they affect their health, and the differences in people's experiences at the same ages 20 years apart, and how these have different effects on their health.

Open Government Data Portal of Surat City

Surat Municipal Corporation Open Data Initiative

Subject(s)
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It is a platform (designed and developed by the National Informatics Centre (NIC), Government of India) for supporting Open Data initiative of Surat Municipal Corporation, intended to publish government datasets for public use. The portal has been created under Software as A Service (SaaS) model of Open Government Data (OGD) Platform, thus gives avenues for resuing datasets of the City in different perspective. This Portal has numerious modules; (a) Data Management System (DMS) for contributing data catalogs by various departments for making those available on the front end website after a due approval process through a defined workflow; (b) Content Management System (CMS) for managing and updating various functionalities and content types of Open Government Data Portal of Surat City; (c) Visitor Relationship Management (VRM) for collating and disseminating viewer feedback on various data catalogs; and (d) Communities module for community users to interact and share their zeal and views with others, who share common interests as that of theirs.

Born in Bradford

BiB

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Born in Bradford is one of the biggest and most important medical research studies undertaken in the UK. The project started in 2007 and is looking to answer questions about our health by tracking the lives of 13,500 babies and their families and will provide information for studies across the UK and around the world. The aim of Born in Bradford is to find out more about the causes of childhood illness by studying children from all cultures and backgrounds as their lives unfold.

Covid-19 Immunity Task Force Databank

CITF

Subject(s)
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From April 2020 to March 2023, the Covid-19 Immunity Task Force (CITF) supported 120 studies to generate knowledge about immunity to SARS-CoV-2. The subjects addressed by these studies include the extent of SARS-CoV-2 infection in Canada, the nature of immunity, vaccine effectiveness and safety, and the need for booster shots among different communities and priority populations in Canada. The CITF Databank was developed to further enhance the impact of CITF funded studies by allowing additional research using the data collected from CITF-supported studies. The CITF Databank centralizes and harmonizes individual-level data from CITF-funded studies that have met all ethical requirements to deposit data in the CITF Databank and have completed a data sharing agreement. The CITF Databank is an internationally unique resource for sharing epidemiological and laboratory data from studies about SARS-CoV-2 immunity in different populations. The types of research that are possible with data from the CITF Databank include observational epidemiological studies, mathematical modelling research, and comparative evaluation of surveillance and laboratory methods.

ROAR Isolate Database

Reservoirs of Antibiotic Resistance Network

Subject(s)
Content type(s)
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<<<!!!<<< The repository is no longer available. >>>!!!<<< 2019-03-29: no more access to ROAR Isolate Database

Manitoba Population Research Data Repository

MCHP Data Repository

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The Population Health Research Data Repository housed at MCHP is a comprehensive collection of administrative, registry, survey, and other data primarily relating to residents of Manitoba. It was developed to describe and explain patterns of health care and profiles of health and illness, facilitating inter-sectoral research in areas such as health care, education, and social services.

Project Tycho: Data for Health

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Project Tycho is a repository for global health, particularly disease surveillance data. Project Tycho currently includes data for 92 notifiable disease conditions in the US, and up to three dengue-related conditions for 99 countries. Project Tycho has compiled data from reputable sources such as the US Centers for Disease Control, the World Health Organization, and National health agencies for countries around the world. Project Tycho datasets are highly standardized and have rich metadata to improve access, interoperability, and reuse of global health data for research and innovation.

Survey of Health, Ageing and Retirement in Europe

SHARE

Subject(s)
Content type(s)
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The Survey of Health, Ageing and Retirement in Europe (SHARE) is a multidisciplinary and cross-national panel database of micro data on health, socio-economic status and social and family networks of more than 140,000 individuals (approximately 530,000 interviews) aged 50 or over from 28 European countries and Israel.

freeBIRD

free Bank of Injury and Emergency Research Data

Subject(s)
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The FREEBIRD website aims to facilitate data sharing in the area of injury and emergency research in a timely and responsible manner. It has been launched by providing open access to anonymised data on over 30,000 injured patients (the CRASH-1 and CRASH-2 trials).

EUROCAT

European Surveillance of Congenital Anomalies

Subject(s)
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A European network of population-based registries for the epidemiologic surveillance of congenital anomalies.

TwinsUK

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The TwinsUK resource is the biggest UK adult twin registry of 14.000 twins used to study the genetic and environmental aetiology of age related complex traits and diseases.

Research Domain Criteria Database

RDoCdb

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!!! >>> merged with https://www.re3data.org/repository/r3d100012653 <<< !!! RDoCdb is an informatics platform for the sharing of human subjects data generated by investigators as part of the NIMH's Research Domain Criteria initiative, and to support this initiative's aims. It also accepts and shares appropriate data related to mental health from other sources.

Swiss HIV Cohort Study & Swiss Mother and Child HIV Cohort Study

SHCS & MoCHIV

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The Swiss HIV Cohort Study (SHCS), established in 1988, is a systematic longitudinal study enrolling HIV-infected individuals in Switzerland. It is a collaboration of all Swiss University Hospital infectious disease outpatient clinics, two large cantonal hospitals, all with affiliated laboratories, and with affiliated smaller hospitals and private physicians carrying for HIV patients. The Swiss Mother and Child HIV Cohort Study (MoCHiV) is integrated into the SHCS. It aims at preventing mother to child transmission and enrolls HIV-infected pregnant women and their children. The SHCS involves practically all researchers being active in patient-oriented HIV research in Switzerland. The clinics can delegate recruitment of participants and follow-up visits to other outpatient clinics or to specialized private physicians, provided that the requirements of the protocol can be entirely fulfilled and controlled. The laboratories can contract other laboratories for some of the analyses.