Filter
Reset all

Subjects

Content Types

Countries

AID systems

API

Data access

Data access restrictions

Database access

Database access restrictions

Data licenses

Data upload

Data upload restrictions

Enhanced publication

Institution responsibility type

Institution type

Keywords

Metadata standards

PID systems

Provider types

Quality management

Repository languages

Software

Syndications

Repository types

Versioning

  • * at the end of a keyword allows wildcard searches
  • " quotes can be used for searching phrases
  • + represents an AND search (default)
  • | represents an OR search
  • - represents a NOT operation
  • ( and ) implies priority
  • ~N after a word specifies the desired edit distance (fuzziness)
  • ~N after a phrase specifies the desired slop amount
  • 1 (current)
Found 8 result(s)
Country
Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.
Country
data.deic.dk is an online data storage and synchronization service provided by the Danish e-Infrastructure Cooperation (DeIC), specifically aimed at researchers and scientists at Danish academic institutions. The service is primarily intended for working with and sharing active research data as well as for safekeeping of large datasets. Such data can be put in an area ('/Data') that is specifically not synced, i.e. not copied to desktops, laptops and mobile devices by the sync clients. Instead the data can be accessed and manipulated via the web interface, file transfer clients or the command line. The service is built on and with open-source software from the ground up: FreeBSD, ZFS, Apache, PHP, ownCloud+apps. DeIC is actively engaged in community efforts on developing such apps, and some are available as previews of things to come - including apps for getting large amounts of data into the system and tagging with meta-data. Our servers are attached directly to the 10-Gigabit backbone of "Forskningsnettet" - implying that wired up and download speed from Danish academic institutions is in principle comparable to those of an external USB hard drive.
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
Country
IDA is a storage service for research data provided by the Ministry of Education and Culture to actors in the Finnish research system. The service is produced by CSC – IT Center for Science (CSC). IDA enables the safe storage of research datasets and related metadata. Access to the data may be granted within the research project or for a wider group of users. The service is intended for stable research data, both raw data and processed datasets. Owners of the data decide on the openness and usage policies for their own data. The service is not intended for data containing sensitive personal data. The data stored in the service must be connected to a research project. The person responsible for the project acts as a contact person towards the service provider and decides who can access the data in the project. Users may belong to one or more projects. Data stored in IDA is checked for viruses and integrity upon receipt. Data is automatically copied and the integrity of both the original files and copies is monitored. The service is offered to Finnish universities and polytechnics as well as projects and researchers funded by the Academy of Finland.
Content type(s)
CaPSURE™ is a longitudinal, observational study of approximately 15,000 men with all stages of biopsy-proven prostate cancer. Patients have enrolled at 43 community urology practices, academic medical centers, and VA hospitals throughout the United States since 1995. CEASAR stands for Comparative Effectiveness Analysis of Surgery and Radiation. The ongoing goal of CEASAR is to help learn more about what prostate cancer treatments work best, for which patients, in whose hands. There are currently about 3,600 men with a prostate cancer diagnosis participating in CEASAR. Three rounds of surveys have been completed, with the first carried out in the spring of 2010. We are currently in the process of conducting our fourth survey with the same group of men in our study. This survey, our Three Year Follow-up, will occur throughout the summer of 2014.
CARIBIC is an innovative scientific project to study and monitor important chemical and physical processes in the Earth´s atmosphere. Detailed and extensive measurements are made during long distance flights. We deploy an airfreight container with automated scientific apparatus which are connected to an air and particle (aerosol) inlet underneath the aircraft. We use an Airbus A340-600 from Lufthansa since December 2004.
Country
NAKALA allows research teams, who so request, to file their digital data (text files, sound, image, video) in a secure warehouse, which ensures both data availability and quotability time. NAKALA is a repository for humanities and social sciences. It's powered in France by Huma-Num, the french infrastructure for digital humanities.